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X-WR-CALDESC:Events for Solve ME/CFS Initiative
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240410T160000
DTEND;TZID=America/Los_Angeles:20240410T170000
DTSTAMP:20240321T192001Z
CREATED:20240312T171000Z
LAST-MODIFIED:20240321T192001Z
UID:39962-1712764800-1712768400@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 4 - South
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-4-south/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240408T160000
DTEND;TZID=America/Los_Angeles:20240408T170000
DTSTAMP:20240321T192413Z
CREATED:20240312T164926Z
LAST-MODIFIED:20240321T192413Z
UID:39952-1712592000-1712595600@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 4: How to use the Advocacy Associates App
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-4-how-to-use-the-advocacy-associates-app/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240403T160000
DTEND;TZID=America/Los_Angeles:20240403T170000
DTSTAMP:20240321T192026Z
CREATED:20240312T170631Z
LAST-MODIFIED:20240321T192026Z
UID:39959-1712160000-1712163600@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 3 - Midwest
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-3-midwest/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240401T160000
DTEND;TZID=America/Los_Angeles:20240401T170000
DTSTAMP:20240321T192347Z
CREATED:20240312T164746Z
LAST-MODIFIED:20240321T192347Z
UID:39950-1711987200-1711990800@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 3: What we are advocating for
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-3-what-we-are-advocating-for/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240327T160000
DTEND;TZID=America/Los_Angeles:20240327T170000
DTSTAMP:20240321T192050Z
CREATED:20240312T170357Z
LAST-MODIFIED:20240321T192050Z
UID:39957-1711555200-1711558800@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 2 - Northeast
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-2-northeast/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240325T160000
DTEND;TZID=America/Los_Angeles:20240325T170000
DTSTAMP:20240321T192307Z
CREATED:20240312T164502Z
LAST-MODIFIED:20240321T192307Z
UID:39948-1711382400-1711386000@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 2: What to expect in your meetings
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App  \n  \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-2-what-to-expect-in-your-meetings/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240320T160000
DTEND;TZID=America/Los_Angeles:20240320T170000
DTSTAMP:20240321T192112Z
CREATED:20240312T165756Z
LAST-MODIFIED:20240321T192112Z
UID:39954-1710950400-1710954000@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 1 - West
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-1-west/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240318T160000
DTEND;TZID=America/Los_Angeles:20240318T170000
DTSTAMP:20240321T192209Z
CREATED:20240306T221835Z
LAST-MODIFIED:20240321T192209Z
UID:39922-1710777600-1710781200@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 1: How to tell your story
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App  \n  \n 
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-1-how-to-tell-your-story/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240216T140000
DTEND;TZID=America/Los_Angeles:20240216T150000
DTSTAMP:20240214T063942Z
CREATED:20240131T224155Z
LAST-MODIFIED:20240214T063942Z
UID:39761-1708092000-1708095600@solvecfs.org
SUMMARY:Caregiving\, Grief\, and Self-Care: Healthy Coping Through Change\, and Loss
DESCRIPTION:In our Caregiver Corner webinar series\, Stephanie Harrison\, founder of The New Happy\, joins Solve M.E. to help you cultivate greater well-being by sharing her unique perspective as a caregiver fused with her expertise in applied positive psychology. \nIn this session\, and in honor of National Caregivers Day (February 16)\, Stephanie will cover the topic of grief. As with patients\, sometimes being a caregiver means grieving losses caused by living with a debilitating disease. From changing relationships and missed opportunities to coping with regret\, Stephanie will discuss tools for managing these difficult feelings and finding hope—and even joy—through times of change and loss. \nStephanie’s interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true\, lasting happiness comes from being of service to others. \nNo registration is required. Join at this link.
URL:https://solvecfs.org/event/caregiving-grief-and-self-care-healthy-coping-through-change-and-loss/
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/CaregiverFebUpdateFRIDAY_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240126T120000
DTEND;TZID=UTC:20240126T130000
DTSTAMP:20240125T213444Z
CREATED:20240123T224519Z
LAST-MODIFIED:20240125T213444Z
UID:39759-1706270400-1706274000@solvecfs.org
SUMMARY:January 2024 Advocacy Cafe Chat
DESCRIPTION:Join us for this month’s Advocacy Cafe Chat! In this session\, Solve’s Vice President of Advocacy and Engagement Emily Taylor will review our recently updated Policy Advocacy Statement\, which drives our decisions about the advocacy and engagement work we do here at Solve. Tune in to share your views about the updated Solve Policy Advocacy Statement! \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/january-2024-advocacy-cafe-chat/
CATEGORIES:Advocacy,Advocacy Week 2024,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/Advocacy-Cafe-Jan-2024_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231027T100000
DTEND;TZID=America/Los_Angeles:20231027T110000
DTSTAMP:20231011T213849Z
CREATED:20231011T213849Z
LAST-MODIFIED:20231011T213849Z
UID:39349-1698400800-1698404400@solvecfs.org
SUMMARY:October Advocacy Cafe
DESCRIPTION:Join us for this month’s Advocacy Cafe Chat! This session will be your chance to provide input on our Policy Advocacy Statement. We are about to begin updating the statement\, which drives our decisions about the advocacy and engagement work we do here at Solve. We want to ensure that we hear from the community as we move into this phase of reflection and direction setting. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/october-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230926T110000
DTEND;TZID=America/Los_Angeles:20230926T120000
DTSTAMP:20230918T181956Z
CREATED:20230815T233137Z
LAST-MODIFIED:20230918T181956Z
UID:39065-1695726000-1695729600@solvecfs.org
SUMMARY:Federal Policy: How to Make an Impact with Support Long COVID and a National Taskforce
DESCRIPTION:Join Solve M.E.\, Marked By Covid\, and Long COVID Alliance for an interactive discussion on key COVID policy actions: the National Task Force on the COVID-19 Pandemic Act (S.1489) and Long COVID Support Act (S.2560). This event will detail the bills\, their importance for the COVID and Long Covid patient community\, and next steps for federal advocacy in 2024.  \nSee Samantha Koehler (Health Policy Advisor\, Sen. Tim Kaine) and Gilbert Ruiz (Legislative Director\, Sen. Kirsten Gillibrand) in conversation with Kristin Urquiza (Co-founder\, Marked By Covid)\, Emily Taylor (Vice President of Advocacy\, Solve M.E.)\, Liza Fisher (Executive Committee Member\, Long COVID Alliance)\, and Michael Sieverts (Executive Committee Member\, Long COVID Alliance).  \nRegister here.
URL:https://solvecfs.org/event/advocacy-cafe-chat-2/
LOCATION:Online
CATEGORIES:Advocacy,Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/08/LC-Federal-Policy-Webinar-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230721T120000
DTEND;TZID=America/Los_Angeles:20230721T130000
DTSTAMP:20230706T200638Z
CREATED:20230706T200638Z
LAST-MODIFIED:20230706T200638Z
UID:38930-1689940800-1689944400@solvecfs.org
SUMMARY:July Advocacy Cafe
DESCRIPTION:Advocacy Cafe is a community-favorite event that brings you more stories\, inspiration\, and conversations to connect and empower our advocates. This month’s session will take place 7/21 at 12 pm PT/ 3 pm ET and feature a conversation with Solve M.E.’s Emily Taylor about our appropriations process. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/july-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230512T120000
DTEND;TZID=America/Los_Angeles:20230512T130000
DTSTAMP:20230426T160513Z
CREATED:20230424T210130Z
LAST-MODIFIED:20230426T160513Z
UID:38278-1683892800-1683896400@solvecfs.org
SUMMARY:Advocacy Cafe Chat
DESCRIPTION:Advocacy Cafe is a community-favorite event that brings you more stories\, inspiration\, and conversations to connect and empower our advocates.  \nOur next session will be on Friday\, May 12 at 12 pm PT/ 3 pm ET to coincide with World ME Day. Solve M.E.’s Emily Taylor will bring you a recap of this month’s Advocacy Week. \nPlease note — no registration is required\, join here.
URL:https://solvecfs.org/event/april-advocacy-cafe-chat/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230421T100000
DTEND;TZID=America/New_York:20230421T110000
DTSTAMP:20230330T201248Z
CREATED:20230330T173436Z
LAST-MODIFIED:20230330T201248Z
UID:38107-1682071200-1682074800@solvecfs.org
SUMMARY:EmPOWER M.E. 2023: Navigating the World with Energy Limiting Disabilities
DESCRIPTION:Hosting EmPOWER M.E. during Advocacy Week each year is one of our favorite ways to connect with our community after a long week of congressional meetings.  \nThis year\, our Lived Experience Taskforce (LET) partners helped us choose our topic: Navigating the World with Energy Limiting Disabilities. This special event on April 21 at 10 AM ET will feature expert ME/CFS and Long Covid advocates sharing tips for overcoming personal\, professional\, and medical challenges. \nDuring our EmPOWER M.E. roundtables\, we convene panels of patient advocates\, professionals\, and scientists to share their expertise on topics relevant to the quality of life for people with ME/CFS\, Long Covid\, and their caregivers. Learn more and watch past events here. \nRegister here.
URL:https://solvecfs.org/event/38107/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/Empower-ME-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230417
DTEND;VALUE=DATE:20230423
DTSTAMP:20230207T162649Z
CREATED:20230207T011136Z
LAST-MODIFIED:20230207T162649Z
UID:37652-1681689600-1682207999@solvecfs.org
SUMMARY:Advocacy Week 2023
DESCRIPTION:Advocacy Week 2023 will take place virtually and in person throughout the week of April 17th to April 22nd\, 2023!  \nAdvocacy Week is a nationwide advocacy effort to connect people with ME/CFS\, Long COVID\, and associated conditions; scientists; clinicians\, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS\, Long COVID\, and associated conditions widely understood\, diagnosable\, and treatable. \nThere are actions for every energy level and ability to join\, from social media posts to virtual meetings with Congressional leaders. This year we will be offering both virtual and in-person (Washington DC) events.  \n\n\n\n\nAdvocacy Week 2023  \nMonday\, April 17th\, 2023 – Training Day – Washington DC & Virtual \nTuesday\, April 18th\, 2023 – Senate Advocacy Day – Washington DC \nWednesday\, April 19th\, 2023 – Social Media Action Day – Virtual \nThursday\, April 20th\, 2023 – House Advocacy Day – Virtual \nFriday\, April 21st\, 2023 – EmPOWER ME Day – Virtual \nFor registration and more event details\, visit StopTheLongHaul.org.
URL:https://solvecfs.org/event/advocacy-week-2023/
CATEGORIES:Advocacy,Advocacy Week 2023,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/Advo-Week-2023-Announcement-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230403
DTEND;VALUE=DATE:20230418
DTSTAMP:20230224T233341Z
CREATED:20230224T233341Z
LAST-MODIFIED:20230224T233341Z
UID:37812-1680480000-1681775999@solvecfs.org
SUMMARY:Solve M.E. Advocacy Week Training Sessions
DESCRIPTION:No advocacy experience? Join our training sessions!\n\n\n \n\n\nWe’re hosting three virtual training sessions — all will cover the same material\, to allow multiple opportunities to register. Join our virtual Congressional Meeting Trainings on Monday\, April 3rd\, Thursday\, April 6th\, and Tuesday\, April 11\, 2023. We will also have an In-Person Congressional Meeting Training on April 17th\, 2023\, in Washington DC. \n\n\n \n\n\nRegister for training here.
URL:https://solvecfs.org/event/solve-m-e-advocacy-week-training-sessions/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/ADVOCACY-MONTH-ACTION-CENTER.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230127T120000
DTEND;TZID=America/Los_Angeles:20230127T130000
DTSTAMP:20230125T010604Z
CREATED:20230124T225429Z
LAST-MODIFIED:20230125T010604Z
UID:37486-1674820800-1674824400@solvecfs.org
SUMMARY:Advocacy Cafe Chat
DESCRIPTION:During Advocacy Month 2022\, we premiered a new series spotlighting the voices of several standout members of our community as they inspired us with their stories\, advocated for change\, and answered your questions. This series — Advocacy Cafe — became a community favorite\, and we’re excited to announce that we will continue hosting more throughout 2023. \nPlease join us for our first Advocacy Café Chat of 2023\, hosted by Solve M.E.’s Vice President of Advocacy and Engagement\, Emily Taylor. Emily will discuss the recently announced 2023 budget and how your advocacy efforts in 2022 influenced the current payout. \nThe next Café Chat takes place on Friday\, January 27\, and registration is not required — join here.
URL:https://solvecfs.org/event/advocacy-cafe-chat/
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/01/Advocacy-Cafe.png
END:VEVENT
END:VCALENDAR