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DTSTART;TZID=UTC:20261020T130000
DTEND;TZID=UTC:20261020T140000
DTSTAMP:20260925T225328Z
CREATED:20260925T225328Z
LAST-MODIFIED:20260925T225328Z
UID:45092-1792501200-1792504800@solvecfs.org
SUMMARY:The Solve M.E. 2026 Community Address: Shaping What Comes Next
DESCRIPTION:On October 20th\, Solve M.E. is bringing our community together for the 2026 Community Address: Shaping What Comes Next\, a live conversation about how we are thinking about science and advocacy as we approach the midterms\, and your role in what comes next. \nFor two years\, this community has been playing defense\, protecting federal programs and holding the line while research funding and the agencies we depend on were pulled apart. But holding the line was never the goal. With a new Congress ahead\, we are planning to make the most of the opportunity to rebuild the research infrastructure this field runs on; and to make sure ME/CFS and associated conditions are part of that rebuild instead of left out again. \nJoin President & CEO\, Emily Taylor\,  Director of Advocacy\, Monique Wike\, Chief Scientific Officer\, Sadie Whittaker\, PhD\, and VP of Scientific Programs\, Jessica Maya\, PhD\, as we lay out the plan for the year ahead and talk about your role in it. \n🗓 Monday\, October 20 · 1 PM PT / 4 PM ET · Live on Zoom · Recorded & live-captioned
URL:https://solvecfs.org/event/2026-community-address/
LOCATION:Online
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2026/09/Oct-2026-Community-Address-Webinar-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260812T090000
DTEND;TZID=America/Los_Angeles:20260812T100000
DTSTAMP:20260811T203443Z
CREATED:20260722T192831Z
LAST-MODIFIED:20260811T203443Z
UID:44685-1786525200-1786528800@solvecfs.org
SUMMARY:"Coffee With a Clinician" in Recognition of Severe M.E. Awareness Month
DESCRIPTION:Solve M.E. is proud to join our hosts from the Bateman Horne Center for a special edition of their program “Coffee with a Clinician” in observance of Severe ME/CFS Awareness Month. \nSolve Vice President of Scientific Programs Dr. Jessica Maya\, along with representatives from Open Medicine Foundation\, #MEAction\, and the authors of What is Myalgic Encephalomyelitis Like? will share insights and updates related to Severe M.E. research and advocacy. \nDon’t miss this opportunity to hear from leaders across the ME/CFS community and learn how we can continue advancing Severe M.E. awareness\, research\, and hope. \nWednesday\, August 12 | 9:00 AM PT \n(10:00 AM MT | 11:00 AM CT | 12:00 PM ET) \nRegister for this free event here.
URL:https://solvecfs.org/event/coffee-with-a-clinician-in-recognition-of-severe-m-e-awareness-month/
CATEGORIES:Advocacy,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2026/07/Aug-CWC-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260211T120000
DTEND;TZID=America/Los_Angeles:20260211T130000
DTSTAMP:20251104T211937Z
CREATED:20251104T211937Z
LAST-MODIFIED:20251104T211937Z
UID:42968-1770811200-1770814800@solvecfs.org
SUMMARY:Protecting the Ones You Love: Legal & Insurance Tools for ME/CFS Caregivers
DESCRIPTION: Caring for someone with ME/CFS is an act of deep love–and preparation is one of the most meaningful ways to protect their future. \nHosted by Solve M.E. Director of Advocacy Monique Wike\, Andrew Kantor\, Esq. (Senior Partner at Kantor & Kantor\, LLP)\,  will walk caregivers through essential legal and insurance strategies to support a loved one living with ME/CFS. \nAndrew will break down long-term disability (LTD) insurance\, long-term care (LTC) planning\, medical and legal documentation tips\, and practical steps families can take to secure benefits and long-term stability. \nWhether you’re just beginning this journey or planning ahead\, you’ll gain the knowledge and confidence to advocate effectively\, protect your loved one’s financial security\, and support their care with clarity and strength. \nRegister here:\nhttps://us02web.zoom.us/webinar/register/WN_wfVeRW4bTXGLRUp5VjHzng
URL:https://solvecfs.org/event/protecting-the-ones-you-love-legal-insurance-tools-for-me-cfs-caregivers/
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/11/Protecting-the-Ones-You-Love-Legal-Insurance-Tools-for-MECFS-Caregivers-Final.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250627T100000
DTEND;TZID=America/Los_Angeles:20250627T130000
DTSTAMP:20250616T221303Z
CREATED:20250616T221212Z
LAST-MODIFIED:20250616T221303Z
UID:42186-1751018400-1751029200@solvecfs.org
SUMMARY:Pacing: Power in Slowing Down
DESCRIPTION:One of the cornerstones of our annual Advocacy Week program is the EmPOWER M.E. roundtable. Panels of patient advocates\, professionals\, and scientists share their expertise on topics relevant to the quality of life for people with ME/CFS and Long Covid and their caregivers. \nEmPOWER M.E. is dedicated to empowering patients and caregivers in medical and advocacy environments\, giving our community tools to share our stories with impact. \nDriven by patient input\, EmPOWER M.E. projects strive to ensure that no family ever has to learn “the hard way” on their journey with ME/CFS\, Long Covid\, or other post-infection diseases. \nThis year the EmPOWER M.E. topic is “Pacing: Power In Slowing Down.” \nThe program will include a main information session\, followed by two community forums with experts and patient leaders. \nPanelists include: \nTodd E. Davenport\, PT\, DPT\, PhD\, MPH \nDr. Lisa Hamilton\, OTD\, OTR/L \nHollis Mickey\, MA\, MFA \nClayton Powers\, DPT \n\nEmPOWER M.E. Main Session – Pacing: Power in Slowing Down\n10-11:00 am PDT / 1:00-2:00 pm EDT \nPacing is one of the most talked-about — but often misunderstood — tools in chronic illness management. In this informative session\, we’ll break down what pacing really means\, why it works\, and how it works — so no family has to learn the hard way. \nCommunity Forum: Pacing in Public: Know Your Rights \n11:30 am-12:00 pm PDT / 2:30-3:00 pm EDT  \nWe will explore the practical realities and impact of navigating pacing strategies in public spaces — including work\, education\, and civic life — from a care and support perspective\, as well as how support networks can play a role in reinforcing these strategies. \nCommunity Forum: Pacing at Home: Prioritizing\, Planning & The Art of Asking\n12:15-12:45 PM PDT / 3:15-3:45 PM EDT  \nWe will focus on how individuals living with ME/CFS and related conditions can structure their home routines through intentional pacing strategies — including prioritizing essential activities\, planning around limited energy\, and communicating needs to caregivers and support networks. \nClick here to register for our Friday\, June 27 EmPOWER M.E. event “Pacing: Power in Slowing Down.” \nClick here to view previous EmPOWER M.E. roundtable events.
URL:https://solvecfs.org/event/pacing-power-in-slowing-down/
CATEGORIES:Advocacy,Advocacy Week 2025,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2025/06/Empower2025FINAL2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250121T100000
DTEND;TZID=UTC:20250121T110000
DTSTAMP:20250113T182537Z
CREATED:20240829T000158Z
LAST-MODIFIED:20250113T182537Z
UID:40917-1737453600-1737457200@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Research (Pt. 4 of 4)
DESCRIPTION:**NEW DATE: Tuesday\, January 21 @ 10 am PT** \nME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care \nNEW DATE:\n• January 21: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-research-pt-4-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/SevereMEResearchTwitter_1.11.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241218T100000
DTEND;TZID=America/Los_Angeles:20241218T110000
DTSTAMP:20241203T172519Z
CREATED:20241111T193438Z
LAST-MODIFIED:20241203T172519Z
UID:41153-1734516000-1734519600@solvecfs.org
SUMMARY:The Future of IACCI and Long Covid Research: ME/CFS and the Unfinished work of the COPVS Task Force
DESCRIPTION:**NEW TIME AND DATE!** \nIn 2021 the National Institutes of Health (NIH) launched the RECOVER Initiative\, a patient-centered\, integrated\, adaptive research network created to study Long Covid. Included in the RECOVER Initiative infrastructure was the Commonalities with Other Post-Viral Syndromes Task Force. \nThe Task Force included Solve President and CEO Emily Taylor\, Dr. Leonard Jason (Professor of Psychology at DePaul University and the Director of the Center for Community Research)\, and other well-known ME/CFS experts and played a crucial role in fostering collaboration among researchers\, clinicians\, and patient advocates. It also facilitated the exchange of knowledge and identified common data elements\, treatment strategies\, and diagnostic criteria. This multidisciplinary approach was essential for advancing our understanding of post-viral illnesses and developing effective interventions. \nThe Task Force concluded that Long Covid researchers can learn from ME/CFS efforts to identify key symptoms\, provide explicit criteria for when a symptom meets the threshold for being considered a problem\, and employ tactics to ensure that consistent information is elicited from patient interviews across settings. \nThe Task Force published a paper on their findings in December 2023 and was then disbanded by NIH. However\, there is clearly still a need to educate care providers\, researchers\, and the public about the connection between ME/CFS and Long Covid. \nIn this webinar\, Emily Taylor and Dr. Jason will discuss their findings and what they signal for the future of research on ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). The session will conclude with the launch of an important advocacy action.
URL:https://solvecfs.org/event/the-future-of-iacci-and-long-covid-research-me-cfs-and-the-unfinished-work-of-the-copvs-task-force/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/11/500LennyJasonCOPVSIG121824.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241204T100000
DTEND;TZID=America/Los_Angeles:20241204T110000
DTSTAMP:20240909T173412Z
CREATED:20240828T235832Z
LAST-MODIFIED:20240909T173412Z
UID:40914-1733306400-1733310000@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Medical Care (Pt. 3 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-medical-care-pt-3-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/SolveBHCWebinarSeriesDatesIG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241113T100000
DTEND;TZID=America/Los_Angeles:20241113T110000
DTSTAMP:20241112T184500Z
CREATED:20240828T235023Z
LAST-MODIFIED:20241112T184500Z
UID:40911-1731492000-1731495600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Legal Rights (Pt. 2 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nThe second webinar in our series focuses on the multifaceted legal considerations faced by people with Severe ME and those who care for them. \nA panel of legal experts will share information on the topics of guardianship\, conservatorship\, power of attorney\, Social Security Disability Insurance (SSDI)\, Supplemental Security Income (SSI)\, and more. \nThe panelists will offer practical strategies for determining which legal protections are right for you\, successful application for different forms of disability benefits\, and what to do if disability claims are denied. \nJoin Solve M.E. President and CEO Emily Taylor as she moderates a panel of attorneys with valuable insights to share with our community. \nTopics and dates are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances. \n 
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-legal-rights-pt-2-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/Legal1_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241011T090000
DTEND;TZID=America/Los_Angeles:20241011T100000
DTSTAMP:20240918T204343Z
CREATED:20240918T204343Z
LAST-MODIFIED:20240918T204343Z
UID:40996-1728637200-1728640800@solvecfs.org
SUMMARY:ICUE Webinar: Uniting Voices\, Amplifying Impact: National Organizations Collaborating to Support Our IACC Communities
DESCRIPTION:Please join us for the final\, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project\, where we will discuss the findings and results from the project as well as on-going efforts to collaborate across the IACC community on advancing awareness\, clinical care\, patient support and research. \nDuring this webinar\, you will hear from ICUE project leadership from the COVID-19 Longhauler Advocacy Project\, Patient-Led Research Collaborative\, and Solve M.E.\, as well as leading experts in IACC education\, clinical care\, and research. At the conclusion of the presentations\, we will take questions and answers. \nThis webinar is an opportunity to learn and identify ways to engage and collaborate. Patients\, clinicians\, researchers\, and various other stakeholders all have vital roles to play\, both independently and collaboratively\, in advancing the understanding and management of IACCs. By working together\, we can raise awareness to advance patient-centered research\, enhance clinical care\, and improve educational outreach\, ultimately leading to better health outcomes for all affected individuals.  \nWe look forward to your participation in this important discussion. Please confirm your attendance by October 10th and join us in our efforts to advance the understanding and management of IACCs. Your involvement is crucial\, and we hope to see you there. \nUNITING VOICES\, AMPLIFYING IMPACT: COLLABORATING TO SUPPORT OUR IACC COMMUNITIES\nFriday\, October 11\, 2024\n9 am PT /12 pm ET \nRegistration link:\nhttps://us06web.zoom.us/webinar/register/WN_JOGSRf0ZQsu0ueVkp2HuWw#/registration \n 
URL:https://solvecfs.org/event/icue-webinar-uniting-voices-amplifying-impact-national-organizations-collaborating-to-support-our-iacc-communities/
CATEGORIES:Advocacy,Long Covid,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/09/icue-graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241009T100000
DTEND;TZID=America/Los_Angeles:20241009T110000
DTSTAMP:20240918T220436Z
CREATED:20240828T233108Z
LAST-MODIFIED:20240918T220436Z
UID:40900-1728468000-1728471600@solvecfs.org
SUMMARY:Severe ME/CFS: Care\, Rights\, and Research Webinar Series -- Caregiving (Pt. 1 of 4)
DESCRIPTION:ME/CFS has a broad spectrum of severity\, with some able to work while others require total care and support. People living with Severe ME are often confined to their beds and require assistance with basic daily activities such as eating or bathing. Their symptoms can be exacerbated by light\, sound\, and movement\, and some may require round-the-clock care. These severe symptoms can limit access to medical care and support\, leading to isolation from family and friends. About 25% of people with ME/CFS are severely ill and bedbound as a result of their illness. For many\, there is a pattern of relapse and remission. \nThis four-part webinar series presented by Solve M.E. and the Bateman Horne Center will feature medical professionals\, legal experts\, scientists\, and care partners discussing tips for caregiving\, legal perspectives on individual rights\, strategies for addressing treatment challenges for medical providers\, and the latest research breakthroughs impacting people with Severe ME. \nWhile this series is focused on Severe ME\, the information shared will be relevant to other severe chronic illnesses\, as well as people with moderate to mild ME/CFS\, Long Covid\, and other infection-associated chronic conditions and illnesses (IACCIs). \nEach webinar takes place from 10-11 am PT (11 am – 12 pm MT). \nTopics and dates for the series are:\n• October 9: Caregiving\n• November 13: Legal rights\n• December 4: Medical care\n• January 15: Research \nThe first webinar in our series focuses on the multifaceted challenges faced by those caring for severe ME/CFS patients and emphasizes the impact of chronic illness on entire support systems. A panel of experienced caregivers will explore navigating healthcare systems\, coping with ambiguous loss\, and maintaining healthy relationships. The panelists will provide valuable insights into balancing self-care with caregiving responsibilities and offer practical strategies for maintaining mental well-being. This event aims to provide caregivers with tools and support for their crucial roles. \nJoin BHC Deputy Executive Director and Education Director\, Tahlia Rushcioni as she moderates a panel of experienced caregivers with unique insights to share with the community. \nPanelists:\nGalen Warden\, mother to an adult son with Severe ME\nAmy Mooney\, mother to a teen daughter with Severe ME\nKim Moy\, wife to a husband with Severe ME\nKyle Kitzmiller\, husband to a woman with Severe ME (American science communicator Dianna Cowern aka YouTuber “Physicsgirl”) \nRegister for one or more of the events in the series here:\nhttps://us02web.zoom.us/webinar/register/WN_YjCfUvHiQnmuAG6yV3jORw \nThe content provided by Solve M.E. and the Bateman Horne Center in this webinar is for informational purposes only and does not constitute legal or medical advice. Viewers are encouraged to consult with qualified legal or medical professionals for specific advice tailored to their individual circumstances.
URL:https://solvecfs.org/event/severe-me-cfs-care-rights-and-research-webinar-series-caregiving-pt-1-of-4/
CATEGORIES:Advocacy,Research,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/08/CaregivingTwitter9.16.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240510T090000
DTEND;TZID=America/Los_Angeles:20240510T120000
DTSTAMP:20240429T164702Z
CREATED:20240429T164557Z
LAST-MODIFIED:20240429T164702Z
UID:40388-1715331600-1715342400@solvecfs.org
SUMMARY:World ME Day: Bridging Borders – Global Voices from the World ME Alliance
DESCRIPTION:Solve is a proud co-founder of the World ME Alliance and we invite you to join us this year for the World ME Day event Bridging Borders – Global Voices from the World ME Alliance! \nSolve M.E. President and CEO and World ME Alliance Co-Chair Emily Taylor will represent Solve as one of the many nonprofit organizations from across the globe showcasing our work to build a #GlobalVoiceForME. \nTune in on May 10th at 9am PT\, 12pm ET\, 5pm BST\, 6pm CEST. \nRSVP on Facebook here: https://www.facebook.com/events/974991507395331/ \nThis event will be livestreamed\, allowing individuals from around the world to tune in\, in real-time. The event will be available to watch afterward on Facebook. \nOr you can register here to join us for the event on Zoom (limited spaces): https://worldmealliance.org/2024/04/register-for-our-live-event-bridging-borders-global-voices-from-the-world-me-alliance/ \nEmily will be joined by speakers from around the world\, including South Africa\, Czechia\, Italy\, France\, and more! \nWith the World ME Alliance\, Solve is bridging borders\, forging connections\, and building toward a better future for people with ME. \n 
URL:https://solvecfs.org/event/world-me-day-bridging-borders-global-voices-from-the-world-me-alliance/
CATEGORIES:Advocacy,Conference,Research,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/04/WorldMEAllianceEvent_5.10.24.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240419T090000
DTEND;TZID=America/Los_Angeles:20240419T124500
DTSTAMP:20240412T192104Z
CREATED:20240312T171855Z
LAST-MODIFIED:20240412T192104Z
UID:39964-1713517200-1713530700@solvecfs.org
SUMMARY:EmPOWER M.E.: How to Build and Work with Your Care Team
DESCRIPTION:As part of Advocacy Week 2024\, our EmPOWER M.E. roundtable on April 19 at 9 am PT / 12 pm ET will feature panels of patient advocates\, professionals\, and scientists who share their expertise on topics relevant to the quality of life for people with ME/CFS\, Long Covid\, and their caregivers. The EmPOWER M.E. topic this year will be “How to Build and Work with Your Care Team.” \nSusannah Fox\, author of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care (MIT Press\, 2024)\, will be the keynote speaker. \nIn Rebel Health\, Fox draws on twenty years of tracking the expert networks of patients\, survivors\, and caregivers who have come of age between the cracks of the healthcare system to offer a way forward. \nEvent Agenda: \n9:00 am PT/12:00 pm ET – EmPOWER M.E. Main Session \n10:30 am PT/1:30 pm ET – 30-minute Break \n11:00 am PT/2:00 pm ET – Panel 1 – What it’s like to be part of a care team (Care Team Perspective) \n11:45 am PT/2:45 pm ET – 15-minute Break \n12:00 pm PT/3:00 pm ET – Panel 2 – How to work with your care team (Patient & Caregiver Perspective) \n12:45 pm PT/4:45 pm ET – End of event \nPanelists include:  \nAshanti Daniel\, Registered Nurse\, Chronic Illness Advocate \nDale Bolger\, Clinical Social Worker/Therapist \nAmy Mooney\, Occupational Therapist \nSanna Stella\, Behavioral Health Specialist \nEmily Taylor\, Solve M.E. President and CEO \n  \nPre-registration is required.  \nRegister here for EmPower M.E. on April 19! \n 
URL:https://solvecfs.org/event/empower-m-e-how-to-build-and-work-with-your-care-team/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Updated-Panelists-Empower-ME-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240415
DTEND;VALUE=DATE:20240420
DTSTAMP:20240129T231857Z
CREATED:20231116T165801Z
LAST-MODIFIED:20240129T231857Z
UID:39499-1713139200-1713571199@solvecfs.org
SUMMARY:Advocacy Week 2024
DESCRIPTION:Advocacy Week 2024 will take place virtually throughout the week of April 15th to April 19th\, 2024. \nAdvocacy Week is a nationwide advocacy effort to connect people with ME/CFS\, Long Covid\, and associated conditions; scientists; clinicians\, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS\, Long Covid\, and post-infection diseases widely understood\, diagnosable\, and treatable. \nThere will be actions for every energy level and ability to join\, from social media posts to virtual meetings with congressional leaders.  \nKey dates are listed below: \nMonday\, April 15th\, 2024 – Training Day \nTuesday\, April 16th\, 2024 – Senate Advocacy Day \nWednesday\, April 17th\, 2024 – Social Media Action Day \nThursday\, April 18th\, 2024 – House Advocacy Day \nFriday\, April 19th\, 10 AM ET\, 2024 – EmPOWER ME Day \nYou can register for Advocacy Week 2024 here. \nStay tuned for other ways to get involved by signing up for the Solve M.E. email newsletter.
URL:https://solvecfs.org/event/advocacy-week-2024/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/12/AdvoWeek2024BannerStacked.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240410T160000
DTEND;TZID=America/Los_Angeles:20240410T170000
DTSTAMP:20240321T192001Z
CREATED:20240312T171000Z
LAST-MODIFIED:20240321T192001Z
UID:39962-1712764800-1712768400@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 4 - South
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-4-south/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240408T160000
DTEND;TZID=America/Los_Angeles:20240408T170000
DTSTAMP:20240321T192413Z
CREATED:20240312T164926Z
LAST-MODIFIED:20240321T192413Z
UID:39952-1712592000-1712595600@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 4: How to use the Advocacy Associates App
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-4-how-to-use-the-advocacy-associates-app/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240403T160000
DTEND;TZID=America/Los_Angeles:20240403T170000
DTSTAMP:20240321T192026Z
CREATED:20240312T170631Z
LAST-MODIFIED:20240321T192026Z
UID:39959-1712160000-1712163600@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 3 - Midwest
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-3-midwest/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240401T160000
DTEND;TZID=America/Los_Angeles:20240401T170000
DTSTAMP:20240321T192347Z
CREATED:20240312T164746Z
LAST-MODIFIED:20240321T192347Z
UID:39950-1711987200-1711990800@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 3: What we are advocating for
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-3-what-we-are-advocating-for/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240327T160000
DTEND;TZID=America/Los_Angeles:20240327T170000
DTSTAMP:20240321T192050Z
CREATED:20240312T170357Z
LAST-MODIFIED:20240321T192050Z
UID:39957-1711555200-1711558800@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 2 - Northeast
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-2-northeast/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240325T160000
DTEND;TZID=America/Los_Angeles:20240325T170000
DTSTAMP:20240321T192307Z
CREATED:20240312T164502Z
LAST-MODIFIED:20240321T192307Z
UID:39948-1711382400-1711386000@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 2: What to expect in your meetings
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App  \n  \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-2-what-to-expect-in-your-meetings/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240320T160000
DTEND;TZID=America/Los_Angeles:20240320T170000
DTSTAMP:20240321T192112Z
CREATED:20240312T165756Z
LAST-MODIFIED:20240321T192112Z
UID:39954-1710950400-1710954000@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 1 - West
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-1-west/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240318T160000
DTEND;TZID=America/Los_Angeles:20240318T170000
DTSTAMP:20240321T192209Z
CREATED:20240306T221835Z
LAST-MODIFIED:20240321T192209Z
UID:39922-1710777600-1710781200@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 1: How to tell your story
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App  \n  \n 
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-1-how-to-tell-your-story/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240216T140000
DTEND;TZID=America/Los_Angeles:20240216T150000
DTSTAMP:20240214T063942Z
CREATED:20240131T224155Z
LAST-MODIFIED:20240214T063942Z
UID:39761-1708092000-1708095600@solvecfs.org
SUMMARY:Caregiving\, Grief\, and Self-Care: Healthy Coping Through Change\, and Loss
DESCRIPTION:In our Caregiver Corner webinar series\, Stephanie Harrison\, founder of The New Happy\, joins Solve M.E. to help you cultivate greater well-being by sharing her unique perspective as a caregiver fused with her expertise in applied positive psychology. \nIn this session\, and in honor of National Caregivers Day (February 16)\, Stephanie will cover the topic of grief. As with patients\, sometimes being a caregiver means grieving losses caused by living with a debilitating disease. From changing relationships and missed opportunities to coping with regret\, Stephanie will discuss tools for managing these difficult feelings and finding hope—and even joy—through times of change and loss. \nStephanie’s interdisciplinary approach to studying happiness is based on hundreds of academic studies and original research that informs The New Happy philosophy that true\, lasting happiness comes from being of service to others. \nNo registration is required. Join at this link.
URL:https://solvecfs.org/event/caregiving-grief-and-self-care-healthy-coping-through-change-and-loss/
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/CaregiverFebUpdateFRIDAY_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240126T120000
DTEND;TZID=UTC:20240126T130000
DTSTAMP:20240125T213444Z
CREATED:20240123T224519Z
LAST-MODIFIED:20240125T213444Z
UID:39759-1706270400-1706274000@solvecfs.org
SUMMARY:January 2024 Advocacy Cafe Chat
DESCRIPTION:Join us for this month’s Advocacy Cafe Chat! In this session\, Solve’s Vice President of Advocacy and Engagement Emily Taylor will review our recently updated Policy Advocacy Statement\, which drives our decisions about the advocacy and engagement work we do here at Solve. Tune in to share your views about the updated Solve Policy Advocacy Statement! \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/january-2024-advocacy-cafe-chat/
CATEGORIES:Advocacy,Advocacy Week 2024,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/Advocacy-Cafe-Jan-2024_500.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20231027T100000
DTEND;TZID=America/Los_Angeles:20231027T110000
DTSTAMP:20231011T213849Z
CREATED:20231011T213849Z
LAST-MODIFIED:20231011T213849Z
UID:39349-1698400800-1698404400@solvecfs.org
SUMMARY:October Advocacy Cafe
DESCRIPTION:Join us for this month’s Advocacy Cafe Chat! This session will be your chance to provide input on our Policy Advocacy Statement. We are about to begin updating the statement\, which drives our decisions about the advocacy and engagement work we do here at Solve. We want to ensure that we hear from the community as we move into this phase of reflection and direction setting. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/october-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230926T110000
DTEND;TZID=America/Los_Angeles:20230926T120000
DTSTAMP:20230918T181956Z
CREATED:20230815T233137Z
LAST-MODIFIED:20230918T181956Z
UID:39065-1695726000-1695729600@solvecfs.org
SUMMARY:Federal Policy: How to Make an Impact with Support Long COVID and a National Taskforce
DESCRIPTION:Join Solve M.E.\, Marked By Covid\, and Long COVID Alliance for an interactive discussion on key COVID policy actions: the National Task Force on the COVID-19 Pandemic Act (S.1489) and Long COVID Support Act (S.2560). This event will detail the bills\, their importance for the COVID and Long Covid patient community\, and next steps for federal advocacy in 2024.  \nSee Samantha Koehler (Health Policy Advisor\, Sen. Tim Kaine) and Gilbert Ruiz (Legislative Director\, Sen. Kirsten Gillibrand) in conversation with Kristin Urquiza (Co-founder\, Marked By Covid)\, Emily Taylor (Vice President of Advocacy\, Solve M.E.)\, Liza Fisher (Executive Committee Member\, Long COVID Alliance)\, and Michael Sieverts (Executive Committee Member\, Long COVID Alliance).  \nRegister here.
URL:https://solvecfs.org/event/advocacy-cafe-chat-2/
LOCATION:Online
CATEGORIES:Advocacy,Long Covid
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/08/LC-Federal-Policy-Webinar-Updated.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230721T120000
DTEND;TZID=America/Los_Angeles:20230721T130000
DTSTAMP:20230706T200638Z
CREATED:20230706T200638Z
LAST-MODIFIED:20230706T200638Z
UID:38930-1689940800-1689944400@solvecfs.org
SUMMARY:July Advocacy Cafe
DESCRIPTION:Advocacy Cafe is a community-favorite event that brings you more stories\, inspiration\, and conversations to connect and empower our advocates. This month’s session will take place 7/21 at 12 pm PT/ 3 pm ET and feature a conversation with Solve M.E.’s Emily Taylor about our appropriations process. \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/july-advocacy-cafe/
LOCATION:Online
CATEGORIES:Advocacy,Webinar
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230512T120000
DTEND;TZID=America/Los_Angeles:20230512T130000
DTSTAMP:20230426T160513Z
CREATED:20230424T210130Z
LAST-MODIFIED:20230426T160513Z
UID:38278-1683892800-1683896400@solvecfs.org
SUMMARY:Advocacy Cafe Chat
DESCRIPTION:Advocacy Cafe is a community-favorite event that brings you more stories\, inspiration\, and conversations to connect and empower our advocates.  \nOur next session will be on Friday\, May 12 at 12 pm PT/ 3 pm ET to coincide with World ME Day. Solve M.E.’s Emily Taylor will bring you a recap of this month’s Advocacy Week. \nPlease note — no registration is required\, join here.
URL:https://solvecfs.org/event/april-advocacy-cafe-chat/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/04/Advocacy-Cafe.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230421T100000
DTEND;TZID=America/New_York:20230421T110000
DTSTAMP:20230330T201248Z
CREATED:20230330T173436Z
LAST-MODIFIED:20230330T201248Z
UID:38107-1682071200-1682074800@solvecfs.org
SUMMARY:EmPOWER M.E. 2023: Navigating the World with Energy Limiting Disabilities
DESCRIPTION:Hosting EmPOWER M.E. during Advocacy Week each year is one of our favorite ways to connect with our community after a long week of congressional meetings.  \nThis year\, our Lived Experience Taskforce (LET) partners helped us choose our topic: Navigating the World with Energy Limiting Disabilities. This special event on April 21 at 10 AM ET will feature expert ME/CFS and Long Covid advocates sharing tips for overcoming personal\, professional\, and medical challenges. \nDuring our EmPOWER M.E. roundtables\, we convene panels of patient advocates\, professionals\, and scientists to share their expertise on topics relevant to the quality of life for people with ME/CFS\, Long Covid\, and their caregivers. Learn more and watch past events here. \nRegister here.
URL:https://solvecfs.org/event/38107/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/03/Empower-ME-2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230417
DTEND;VALUE=DATE:20230423
DTSTAMP:20230207T162649Z
CREATED:20230207T011136Z
LAST-MODIFIED:20230207T162649Z
UID:37652-1681689600-1682207999@solvecfs.org
SUMMARY:Advocacy Week 2023
DESCRIPTION:Advocacy Week 2023 will take place virtually and in person throughout the week of April 17th to April 22nd\, 2023!  \nAdvocacy Week is a nationwide advocacy effort to connect people with ME/CFS\, Long COVID\, and associated conditions; scientists; clinicians\, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS\, Long COVID\, and associated conditions widely understood\, diagnosable\, and treatable. \nThere are actions for every energy level and ability to join\, from social media posts to virtual meetings with Congressional leaders. This year we will be offering both virtual and in-person (Washington DC) events.  \n\n\n\n\nAdvocacy Week 2023  \nMonday\, April 17th\, 2023 – Training Day – Washington DC & Virtual \nTuesday\, April 18th\, 2023 – Senate Advocacy Day – Washington DC \nWednesday\, April 19th\, 2023 – Social Media Action Day – Virtual \nThursday\, April 20th\, 2023 – House Advocacy Day – Virtual \nFriday\, April 21st\, 2023 – EmPOWER ME Day – Virtual \nFor registration and more event details\, visit StopTheLongHaul.org.
URL:https://solvecfs.org/event/advocacy-week-2023/
CATEGORIES:Advocacy,Advocacy Week 2023,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/Advo-Week-2023-Announcement-Graphic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230403
DTEND;VALUE=DATE:20230418
DTSTAMP:20230224T233341Z
CREATED:20230224T233341Z
LAST-MODIFIED:20230224T233341Z
UID:37812-1680480000-1681775999@solvecfs.org
SUMMARY:Solve M.E. Advocacy Week Training Sessions
DESCRIPTION:No advocacy experience? Join our training sessions!\n\n\n \n\n\nWe’re hosting three virtual training sessions — all will cover the same material\, to allow multiple opportunities to register. Join our virtual Congressional Meeting Trainings on Monday\, April 3rd\, Thursday\, April 6th\, and Tuesday\, April 11\, 2023. We will also have an In-Person Congressional Meeting Training on April 17th\, 2023\, in Washington DC. \n\n\n \n\n\nRegister for training here.
URL:https://solvecfs.org/event/solve-m-e-advocacy-week-training-sessions/
LOCATION:Online
CATEGORIES:Advocacy,Advocacy Week 2023
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/02/ADVOCACY-MONTH-ACTION-CENTER.png
END:VEVENT
END:VCALENDAR