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X-WR-CALNAME:Solve ME/CFS Initiative
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X-WR-CALDESC:Events for Solve ME/CFS Initiative
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DTSTART;TZID=America/Los_Angeles:20240419T090000
DTEND;TZID=America/Los_Angeles:20240419T124500
DTSTAMP:20260726T074437
CREATED:20240312T171855Z
LAST-MODIFIED:20240412T192104Z
UID:39964-1713517200-1713530700@solvecfs.org
SUMMARY:EmPOWER M.E.: How to Build and Work with Your Care Team
DESCRIPTION:As part of Advocacy Week 2024\, our EmPOWER M.E. roundtable on April 19 at 9 am PT / 12 pm ET will feature panels of patient advocates\, professionals\, and scientists who share their expertise on topics relevant to the quality of life for people with ME/CFS\, Long Covid\, and their caregivers. The EmPOWER M.E. topic this year will be “How to Build and Work with Your Care Team.” \nSusannah Fox\, author of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care (MIT Press\, 2024)\, will be the keynote speaker. \nIn Rebel Health\, Fox draws on twenty years of tracking the expert networks of patients\, survivors\, and caregivers who have come of age between the cracks of the healthcare system to offer a way forward. \nEvent Agenda: \n9:00 am PT/12:00 pm ET – EmPOWER M.E. Main Session \n10:30 am PT/1:30 pm ET – 30-minute Break \n11:00 am PT/2:00 pm ET – Panel 1 – What it’s like to be part of a care team (Care Team Perspective) \n11:45 am PT/2:45 pm ET – 15-minute Break \n12:00 pm PT/3:00 pm ET – Panel 2 – How to work with your care team (Patient & Caregiver Perspective) \n12:45 pm PT/4:45 pm ET – End of event \nPanelists include:  \nAshanti Daniel\, Registered Nurse\, Chronic Illness Advocate \nDale Bolger\, Clinical Social Worker/Therapist \nAmy Mooney\, Occupational Therapist \nSanna Stella\, Behavioral Health Specialist \nEmily Taylor\, Solve M.E. President and CEO \n  \nPre-registration is required.  \nRegister here for EmPower M.E. on April 19! \n 
URL:https://solvecfs.org/event/empower-m-e-how-to-build-and-work-with-your-care-team/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Updated-Panelists-Empower-ME-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240415
DTEND;VALUE=DATE:20240420
DTSTAMP:20260726T074437
CREATED:20231116T165801Z
LAST-MODIFIED:20240129T231857Z
UID:39499-1713139200-1713571199@solvecfs.org
SUMMARY:Advocacy Week 2024
DESCRIPTION:Advocacy Week 2024 will take place virtually throughout the week of April 15th to April 19th\, 2024. \nAdvocacy Week is a nationwide advocacy effort to connect people with ME/CFS\, Long Covid\, and associated conditions; scientists; clinicians\, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS\, Long Covid\, and post-infection diseases widely understood\, diagnosable\, and treatable. \nThere will be actions for every energy level and ability to join\, from social media posts to virtual meetings with congressional leaders.  \nKey dates are listed below: \nMonday\, April 15th\, 2024 – Training Day \nTuesday\, April 16th\, 2024 – Senate Advocacy Day \nWednesday\, April 17th\, 2024 – Social Media Action Day \nThursday\, April 18th\, 2024 – House Advocacy Day \nFriday\, April 19th\, 10 AM ET\, 2024 – EmPOWER ME Day \nYou can register for Advocacy Week 2024 here. \nStay tuned for other ways to get involved by signing up for the Solve M.E. email newsletter.
URL:https://solvecfs.org/event/advocacy-week-2024/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/12/AdvoWeek2024BannerStacked.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240410T160000
DTEND;TZID=America/Los_Angeles:20240410T170000
DTSTAMP:20260726T074437
CREATED:20240312T171000Z
LAST-MODIFIED:20240321T192001Z
UID:39962-1712764800-1712768400@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 4 - South
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-4-south/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240408T160000
DTEND;TZID=America/Los_Angeles:20240408T170000
DTSTAMP:20260726T074437
CREATED:20240312T164926Z
LAST-MODIFIED:20240321T192413Z
UID:39952-1712592000-1712595600@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 4: How to use the Advocacy Associates App
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-4-how-to-use-the-advocacy-associates-app/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240403T160000
DTEND;TZID=America/Los_Angeles:20240403T170000
DTSTAMP:20260726T074437
CREATED:20240312T170631Z
LAST-MODIFIED:20240321T192026Z
UID:39959-1712160000-1712163600@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 3 - Midwest
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-3-midwest/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240401T160000
DTEND;TZID=America/Los_Angeles:20240401T170000
DTSTAMP:20260726T074437
CREATED:20240312T164746Z
LAST-MODIFIED:20240321T192347Z
UID:39950-1711987200-1711990800@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 3: What we are advocating for
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App \n \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-3-what-we-are-advocating-for/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240327T160000
DTEND;TZID=America/Los_Angeles:20240327T170000
DTSTAMP:20260726T074437
CREATED:20240312T170357Z
LAST-MODIFIED:20240321T192050Z
UID:39957-1711555200-1711558800@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 2 - Northeast
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nStay tuned for call registration info. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-2-northeast/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240325T160000
DTEND;TZID=America/Los_Angeles:20240325T170000
DTSTAMP:20260726T074437
CREATED:20240312T164502Z
LAST-MODIFIED:20240321T192307Z
UID:39948-1711382400-1711386000@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 2: What to expect in your meetings
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App  \n  \nStay tuned for Training Session registration info.
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-2-what-to-expect-in-your-meetings/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240320T160000
DTEND;TZID=America/Los_Angeles:20240320T170000
DTSTAMP:20260726T074437
CREATED:20240312T165756Z
LAST-MODIFIED:20240321T192112Z
UID:39954-1710950400-1710954000@solvecfs.org
SUMMARY:Advocacy Week 2024 Coordination Calls: Group 1 - West
DESCRIPTION:Solve is hosting Advocacy Week 2024 coordination calls so advocates can connect with those from their state or nearby states ahead of meeting with congressional representatives. \nAll coordination calls are at 4 pm PT / 7 pm ET. \nSee the map above to identify which group to join to connect with your state team. (Click here to see an enlarged version of the map.)
URL:https://solvecfs.org/event/advocacy-week-2024-coordination-calls-group-1-west/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Coordination-Calls-dates-with-map.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20240318T160000
DTEND;TZID=America/Los_Angeles:20240318T170000
DTSTAMP:20260726T074437
CREATED:20240306T221835Z
LAST-MODIFIED:20240321T192209Z
UID:39922-1710777600-1710781200@solvecfs.org
SUMMARY:Advocacy Week 2024 Training Session 1: How to tell your story
DESCRIPTION:For new and seasoned advocates alike\, we host training sessions each year to make participating as seamless and effective as possible. We ensure every team includes an experienced advocate able to assist and answer questions. One of the benefits of participating in Advocacy Week is the opportunity to learn from Solve M.E. staff and other experienced advocates.  \nRegistration for Advocacy Week closes March 15th!  \nThere will be four 1-hour training sessions with 20-25 minutes of recorded content\, the rest is Q&A and unrecorded. \nTraining sessions are on Mondays at 4pm PT / 7pm ET from March 18-April 8. \n  \nTraining topics: \nMarch 18: Training 1 – How to tell your story \nMarch 25: Training 2 – What to expect in your meetings \nApril 1: Training 3 – What we are advocating for \nApril 8: Training 4 – How to use the Advocacy Associates App  \n  \n 
URL:https://solvecfs.org/event/advocacy-week-2024-training-session-1-how-to-tell-your-story/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Advo-Week-2024-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240126T120000
DTEND;TZID=UTC:20240126T130000
DTSTAMP:20260726T074437
CREATED:20240123T224519Z
LAST-MODIFIED:20240125T213444Z
UID:39759-1706270400-1706274000@solvecfs.org
SUMMARY:January 2024 Advocacy Cafe Chat
DESCRIPTION:Join us for this month’s Advocacy Cafe Chat! In this session\, Solve’s Vice President of Advocacy and Engagement Emily Taylor will review our recently updated Policy Advocacy Statement\, which drives our decisions about the advocacy and engagement work we do here at Solve. Tune in to share your views about the updated Solve Policy Advocacy Statement! \nPlease note — no registration is required. Join at this link.
URL:https://solvecfs.org/event/january-2024-advocacy-cafe-chat/
CATEGORIES:Advocacy,Advocacy Week 2024,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/01/Advocacy-Cafe-Jan-2024_500.png
END:VEVENT
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