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X-WR-CALDESC:Events for Solve ME/CFS Initiative
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UID:32704-1653559200-1653564600@solvecfs.org
SUMMARY:EmPOWER M.E.: State Advocacy
DESCRIPTION:This year\, our EmPOWER ME roundtable will focus on local advocacy. They say “all politics is local.” What does that mean for creating change for ME/CFS and Long Covid? \nJoin our panel of veteran state advocates as they discuss the importance of local and state advocacy. We’ll hear about initiatives in CA\, FL\, MA\, MD\, MN\, DE\, and NY\, and learn tips for starting projects in your neck of the woods. \nParticipants include: \nMelinda Lipscomb (MD)\nArt Mirin (CA)\nCharmian Proskauer (MA)\nLaura Bucholtz (FL)\nSuzanne Wheeler (MN)\nCharonda Johnson (DE)\nTerri Wilder (NY)
URL:https://solvecfs.org/event/empower-m-e/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/IG-Empower-ME-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220519
DTEND;VALUE=DATE:20220520
DTSTAMP:20260715T090310
CREATED:20220302T010059Z
LAST-MODIFIED:20220517T205140Z
UID:33477-1652918400-1653004799@solvecfs.org
SUMMARY:Signature Event: Long Covid: Research\, Policy and Economic Impact
DESCRIPTION:The Global Interdependence Center\, in partnership with the Solve Long Covid Initiative\, is continuing our conference series exploring the pandemic’s long-term healthcare\, policy\, and economic impact\, specifically the implications of long haul COVID or long COVID. Together\, we invite you to join us for the signature event of this series\, an in-person conference in New York City on Thursday\, May 19\, 2022. \nThe purpose of our conference is to raise awareness of Long Covid by examining the science and research behind it and we hope can join us through one of our registration options\, including in-person or virtual attendance. For those joining us in person\, we are delighted to provide a Patient Rest Area on site at the event. This quiet space will be a rest area for patients who need to step away for flare-up/sensory overload equipped with cots/chairs/blankets. \nSession topics of the conference will include: \n\nA special report from the Solve Long Covid Initiative\nDefining/diagnosing Long Covid\nThe economic recovery and the policy response\nScientific research\nOutlook for the labor force and labor market challenges\nThe human experience\nIndustry specific implications for:\n\nHealth insurers and health care\nPharmaceuticals\nPolicymakers and government officials\n\n\n\nLearn more and register here. \nSpecial thanks to our sponsor\, Responsum Health\, a customized\, uniquely individualized chronic disease patient platform\, for providing streaming services for this event. 
URL:https://solvecfs.org/event/signature-event-long-covid-research-policy-and-economic-impact/
CATEGORIES:Advocacy Month 2022,Conference,Long Covid,Solve M.E. Leadership
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/03/GIC-sig-event.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220517
DTEND;VALUE=DATE:20220518
DTSTAMP:20260715T090310
CREATED:20220118T002358Z
LAST-MODIFIED:20220426T004049Z
UID:32702-1652745600-1652831999@solvecfs.org
SUMMARY:Senate Action Day
DESCRIPTION:Participants who register to participate in meetings with their elected officials will receive personalized meeting links via email or the advocacy portal. \nRegister is closed\, but advocates wishing to participate in online action can visit our action kit.
URL:https://solvecfs.org/event/senate-action-day/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/Senate-Action-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220512
DTEND;VALUE=DATE:20220513
DTSTAMP:20260715T090310
CREATED:20220120T191418Z
LAST-MODIFIED:20220426T004317Z
UID:32894-1652313600-1652399999@solvecfs.org
SUMMARY:World ME Day
DESCRIPTION:Solve M.E. is proud to be a partner in the first-ever World ME Day\, May 12\, 2022. We’re joining ME/CFS organizations around the world to campaign together and raise awareness with the theme #LearnFromME. Learn more: http://worldmeday.org/ \nME/CFS is a chronic\, complex\, neuroimmune disease that profoundly limits the health and productivity of patients. There is no cure\, nor are there any FDA-approved drugs or treatments. Symptoms can include extreme exhaustion at the cellular level (exacerbated by activity)\, and neurological symptoms such as: extreme sensitivity to light and sound\, cognitive impairment\, and even complete organ system shutdown.  \n 
URL:https://solvecfs.org/event/international-me-awareness-day/
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/Screen-Shot-2022-04-25-at-17.41.44.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220511
DTEND;VALUE=DATE:20220512
DTSTAMP:20260715T090310
CREATED:20220118T002321Z
LAST-MODIFIED:20220426T003939Z
UID:32700-1652227200-1652313599@solvecfs.org
SUMMARY:House Action Day 2
DESCRIPTION:Participants who register to participate in meetings with their elected officials will receive personalized meeting links via email or the advocacy portal. \nRegister is closed\, but advocates wishing to participate in online action can visit our action kit.
URL:https://solvecfs.org/event/house-action-day-2/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/House-Action-Days.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220510
DTEND;VALUE=DATE:20220511
DTSTAMP:20260715T090310
CREATED:20220118T002204Z
LAST-MODIFIED:20220426T004017Z
UID:32698-1652140800-1652227199@solvecfs.org
SUMMARY:House Action Day
DESCRIPTION:Participants who register to participate in meetings with their elected officials will receive personalized meeting links via email or the advocacy portal. \nRegister is closed\, but advocates wishing to participate in online action can visit our action kit.
URL:https://solvecfs.org/event/house-action-day/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/House-Action-Days.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220504T100000
DTEND;TZID=America/Los_Angeles:20220504T110000
DTSTAMP:20260715T090310
CREATED:20220413T204106Z
LAST-MODIFIED:20220425T201500Z
UID:34533-1651658400-1651662000@solvecfs.org
SUMMARY:Remote Congressional Meeting Training
DESCRIPTION:Join the Solve M.E. Advocacy team for a training session outlining best practices for your congressional meetings! \nRegister here.
URL:https://solvecfs.org/event/remote-congressional-meeting-training/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/04/Remote-Congressional-Meeting-Training.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20220502T100000
DTEND;TZID=America/Los_Angeles:20220502T110000
DTSTAMP:20260715T090310
CREATED:20220118T002046Z
LAST-MODIFIED:20220426T002535Z
UID:32691-1651485600-1651489200@solvecfs.org
SUMMARY:Advocacy Month Kickoff
DESCRIPTION:We are kicking off Advocacy Month with a keynote address by disability advocate Jessica Kellgren-Fozard and a discussion about the importance of sharing our stories and raising our voices to create change! \nRegister here.
URL:https://solvecfs.org/event/advocacy-month-kickoff/
LOCATION:Online
CATEGORIES:Advocacy Month 2022
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2022/01/Advo-Kickoff-IGFB.png
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