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X-WR-CALDESC:Events for Solve ME/CFS Initiative
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DTSTART;VALUE=DATE:20240415
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UID:39499-1713139200-1713571199@solvecfs.org
SUMMARY:Advocacy Week 2024
DESCRIPTION:Advocacy Week 2024 will take place virtually throughout the week of April 15th to April 19th\, 2024. \nAdvocacy Week is a nationwide advocacy effort to connect people with ME/CFS\, Long Covid\, and associated conditions; scientists; clinicians\, and caregivers to share their unique stories with Congress. Our ultimate goal is to make ME/CFS\, Long Covid\, and post-infection diseases widely understood\, diagnosable\, and treatable. \nThere will be actions for every energy level and ability to join\, from social media posts to virtual meetings with congressional leaders.  \nKey dates are listed below: \nMonday\, April 15th\, 2024 – Training Day \nTuesday\, April 16th\, 2024 – Senate Advocacy Day \nWednesday\, April 17th\, 2024 – Social Media Action Day \nThursday\, April 18th\, 2024 – House Advocacy Day \nFriday\, April 19th\, 10 AM ET\, 2024 – EmPOWER ME Day \nYou can register for Advocacy Week 2024 here. \nStay tuned for other ways to get involved by signing up for the Solve M.E. email newsletter.
URL:https://solvecfs.org/event/advocacy-week-2024/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2023/12/AdvoWeek2024BannerStacked.png
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DTSTART;TZID=America/Los_Angeles:20240419T090000
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UID:39964-1713517200-1713530700@solvecfs.org
SUMMARY:EmPOWER M.E.: How to Build and Work with Your Care Team
DESCRIPTION:As part of Advocacy Week 2024\, our EmPOWER M.E. roundtable on April 19 at 9 am PT / 12 pm ET will feature panels of patient advocates\, professionals\, and scientists who share their expertise on topics relevant to the quality of life for people with ME/CFS\, Long Covid\, and their caregivers. The EmPOWER M.E. topic this year will be “How to Build and Work with Your Care Team.” \nSusannah Fox\, author of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care (MIT Press\, 2024)\, will be the keynote speaker. \nIn Rebel Health\, Fox draws on twenty years of tracking the expert networks of patients\, survivors\, and caregivers who have come of age between the cracks of the healthcare system to offer a way forward. \nEvent Agenda: \n9:00 am PT/12:00 pm ET – EmPOWER M.E. Main Session \n10:30 am PT/1:30 pm ET – 30-minute Break \n11:00 am PT/2:00 pm ET – Panel 1 – What it’s like to be part of a care team (Care Team Perspective) \n11:45 am PT/2:45 pm ET – 15-minute Break \n12:00 pm PT/3:00 pm ET – Panel 2 – How to work with your care team (Patient & Caregiver Perspective) \n12:45 pm PT/4:45 pm ET – End of event \nPanelists include:  \nAshanti Daniel\, Registered Nurse\, Chronic Illness Advocate \nDale Bolger\, Clinical Social Worker/Therapist \nAmy Mooney\, Occupational Therapist \nSanna Stella\, Behavioral Health Specialist \nEmily Taylor\, Solve M.E. President and CEO \n  \nPre-registration is required.  \nRegister here for EmPower M.E. on April 19! \n 
URL:https://solvecfs.org/event/empower-m-e-how-to-build-and-work-with-your-care-team/
CATEGORIES:Advocacy,Advocacy Week 2024
ATTACH;FMTTYPE=image/png:https://solvecfs.org/wp-content/uploads/2024/03/Updated-Panelists-Empower-ME-2024.png
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