In September, RME (The Swedish National Association for ME-patients) organized two open conferences aimed at engaging health care professionals in Stockholm (Oct. 18) and Malmö (Oct. 19). SMCI’s Chief Scientific Officer and VP for Research Dr. Zaher Nahle was invited to attend a roundtable meeting to discuss ongoing research and clinical developments. The roundtable meeting, held October 17 -18, was international in attendance and scope. It covered findings and planned research in Sweden, Denmark, the United Kingdom, and the United States.
Although the roundtable meeting was closed and specific discussion points can’t be shared due to ongoing research, Kerstin Heiling, Chair of RME, noted that the talks “were characterized by openness and scientific curiosity…[and] research is quickly moving forward, to a great extent thanks to international cooperation, increasing the possibilities for those suffering from ME/CFS to receive adequate healthcare and respect in society at large.” Dr. Nahle presented an overview of the work of SMCI and outlined details of the upcoming SMCI National ME/CFS registry. The presentation discussed big data and Electronic Health Records potential impact on our understanding of the natural history of the disease.
Dr. Maureen Hanson, SMCI Research Advisory Council member and collaborator on a SMCI-initiated metabolomics study, as well as Dr. Geraldine (Jo) Cambridge, Primary Investigator on the Ramsay Award Program 2016 Team 2, were also in attendance. Additionally, researchers from the Ramsay Award 2017 cohort participated in the meeting, including Professor Simon Carding from the Quadram Institute in Norwich (Ramsay Award Program 2017 Team 3), and Drs. Jonas Bergquist and Jonas Blomberg (Ramsay Award Program 2017 Team 1) served as moderators at the meeting.
The October 18 and 19 conference agendas included the following lectures:
- The Altered Gut Microbiome in ME/CFS
- Abnormal Exercise Response and Metabolism in ME/CFS (Prof Maureen Hanson, Cornell University, New York)
- ME/CFS and the immune system: Where are we now? (Prof Geraldine (Jo) Cambridge, Dep. Medicine, University College, London)
- Biomarkers for ME/CFS in the Cerebrospinal Fluid
- EMERG and Norwich Center of Excellence activities (Prof Jonas Bergquist, Uppsala University)
- Neuroradiological studies in ME/CFS ( Per Julin, The ME/CFS-clinic, Stora Sköndal, Stockholm)
- Comments from Prof. Jonas Blomberg, Uppsala University
- Abnormal Exercise Response and Metabolism in ME/CFS (Prof. Maureen Hanson, Cornell University, New York)
- ME/CFS and the immune system: Where are we now? (Prof. Geraldine (Jo) Cambridge, Dep. Medicine, University College, London)
- A presentation from Ewa Wadhagen Wedlund, occupational therapist from the ME/CFS clinic at Stora Sköndal in Stockholm