COVID-19 Expert Webinar & NEW Registration for ME/CFS Advocacy Day

Sign up TODAY for ME/CFS Congressional Meetings from Home We are pleased to announce that Advocacy Day congressional meetings will STILL take place on Tuesday, April 21 by remote online and phone systems. Who can participate?          US Citizens and residents What will we do?        Phone meetings with Congressional offices What do I need?         A phone or computer and your […]

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COVID-19 Update: ME/CFS Advocacy Week goes ONLINE!

Solve M.E. Announces 2020 ME/CFS Advocacy Week Virtual Transition in Response to COVID-19 Solve M.E. Advocacy Week activities this April in Washington, D.C., will be transitioning to entirely remote formats and our team will be cancelling in-person events to protect and preserve the health of our ME/CFS community. Our keystone event, ME/CFS Advocacy Day, brings […]

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Woman fired from NHS trust for having too many sick days wins disability discrimination case

Originally posted March 9, 2020 || By Katie Dickinson || Chronicle Live  Tess Ward has been awarded £122,000 ($156,000 USD) after winning her disability discrimination fight against the trust which runs the North East’s mental health services A woman sacked (fired) from the North East’s NHS mental health trust for having too many sick days has been awarded […]

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From the Bateman Horne Center: How Individuals with ME/CFS and FM Can Prepare for Community Illness Outbreak

Linda Milne is a leader with the Voluntary Organizations Active in Disaster (UVOAD) in the Greater Salt Lake City area. Thanks to our friends at Bateman Horne Center for providing this information for the ME/CFS community. Emergency Preparedness Specialist Linda Milne addresses what you can do to be prepared in the event of an illness outbreak […]

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Press Briefing Transcript and Audio Recording for the CDC Telebriefing Update on COVID-19

Originally posted Wednesday, February 26, 2020 | CDC Press Briefing https://www.cdc.gov/media/releases/2020/t0225-cdc-telebriefing-covid-19-update.mp3   Please Note: This transcript is not edited and may contain errors. Welcome and thank you for standing by.  At this time, all participants are on listen-only mode until our question and answer session.  At that time, if you would like to ask a question, […]

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Hitting the Wall, Momentum Building: Emily Taylor on Year Three of the Plan to Get More Funding for ME/CFS

by Cort Johnson | Feb 20, 2020 | Advocacy, Homepage In the third of a series of interviews since full-time ME/CFS advocate Emily Taylor joined Solve ME, I talked to her about what the heck is going with advocacy. I learned a lot. In particular, I learned there’s a lot going on that I didn’t know about. While I was “sleeping” […]

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Trans-NIH ME/CFS Working Group Telebriefing

We request your participation in a telebriefing about updates on NIH’s efforts to advance research on ME/CFS. The telebriefing will be held on March 17, 2020, 11:00 am until 12:00 pm ET.Our guest speaker will be Leonard Jason, Ph.D., director of the Center for Community Research at DePaul University. Please use the following dial-in information […]

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