Advocacy in Action: SMCI Joins the Research!America Alliance

The Solve ME/CFS Initiative is proud to announce our formal membership as part of Research!America, an alliance for discoveries in health. Research!America is the nation’s largest and most effective advocacy coalition dedicated to making medical research for health and scientific research funding a higher national priority. The Solve ME/CFS Initiative is the first organization to […]

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A Candid Discussion with NIH Director Francis Collins

Earlier this week at FasterCures’ Partnering for Cures conference in New York, Solve ME/CFS Initiative President Carol Head and VP of Research and Scientific Programs Dr. Zaher Nahle met with Director Francis Collins of the National Institutes of Health (NIH) for a private conversation regarding ME/CFS. The trio discussed efforts at the NIH to strengthen […]

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Disturbing Steps Backward toward Somatization of ME/CFS

The PACE trial will not go away. In 2011, results were published for a five-year study conducted to determine what therapies, if any, are effective in treating ME. The PACE trial concluded that graded exercise therapy (GET) and cognitive behavioral therapy (CBT) were effective treatments (in other words, the trial concluded that the disease is […]

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November Research 1st – Dr. Nahle’s Letter

Dear Friends, I have the privilege of running a public webinar series at SMCI in which we bring together thought leaders, influencers, and practitioners from multiple disciplines to share ideas and update the community on the most important work in the ME/CFS field. These speaking opportunities create value to the host, guests, and viewers alike. […]

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Recent Tryptase Study Yields Potential ME/CFS Insight

We recently highlighted a paper published online on October 17, 2016 (doi: 10.1038/ng.3696)   the journal Nature Genetics, one of the most rigorous publications in the field of genetics with tantalizing findings. The paper, titled “Elevated basal serum tryptase identifies a multisystem disorder associated with increased TPSAB1 copy number,” had two key features that could […]

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Researchers and Patients Gather for Biannual ME/CFS Conference

The 12th International IACFS/ME joint patient and professional conference took place in late October with significant participation from academia, government agencies, private clinics, patients, advocates, and other stakeholders. This meeting, held every two years, is an opportunity to exchange ideas and updates on the most recent developments in the field. The four-day conference was organized […]

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Disparaged Speaker to Present at NIH Next Week

Yesterday, deeply troubling information was discovered on an archived National Institutes of Health (NIH) webpage. A lecture titled “Chronic Fatigue Syndrome in Historical Perspective” is scheduled for Wednesday, November 9, to be presented by the controversial and inflammatory history professor Edward Shorter, PhD. A professor of psychiatry and history at the University of Toronto, Shorter […]

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