SMCI Survey Data Analyzed for Publication

Leonard A. Jason, along with Laura Nicholson, Diana Ohanian, Kelly O’Connor, & Abigail Brown, all of DePaul University are preparing a paper titled, “ME/CFS Patient Perspectives on Name Change & Priorities for Healthcare Provider Education.” This paper is based on the results of an SMCI survey facilitated prior to an IOM committee meeting earlier this year. Read the summary now, in advance of publication…

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Research Digest – October 2014: The Search for Diagnostic Certainty

Currently ME/CFS is defined by symptoms that are common in many other medical and psychiatric diseases. A lack of specific biomarkers and clear diagnostic criteria often leads to misdiagnosis and muddied research results. In this month’s Research Digest we review three different studies that seek to identify more specific biomarkers for ME/CFS. READ MORE…

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P2P Draft Evidence Review

The Pathway to Prevention draft evidence review has been released. Can a process that seems inappropriate for ME/CFS help inform a path forward? SMCI has utilized the collective brainpower of our Research Advisory Council, led by our scientific director, Suzanne D Vernon, PhD, to perform a careful review and response to the Evidence-Based Practice Centers’ draft evidence-based review for ME/CFS. READ MORE…

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Research Digest – August 2014: More Results from the SolveCFS BioBank

More results from the work being done through the SolveCFS BioBank: We are pleased to report the publication of the initial BioBank study on XMRV and the publication of the first study of epigenetics in ME/CFS. Both used the clinical information and samples from the SolveCFS BioBank that were collected in 2010. READ MORE…

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Guest Blog: Mark A. Demitrack, MD, FAPA – Neurobiology of ME/CFS

Far too often, ME/CFS patients are met with healthcare providers who do not believe in the biological nature of the disease. In this guest blog post, Mark Demitrack, MD, FAPA describes how for a long time he has advocated for and used an integrated approach to understand how the brain is involved in the biology of ME/CFS. READ MORE…

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Research Digest – July 2014: Define & Diagnose

In order for patients to be diagnosed, a disease must be defined. Chronic Fatigue Syndrome is currently defined by excluding other medical and psychiatric diseases that explain the symptoms. This month we highlight three recent publications tackling the “core” components of ME/CFS that are important to defining and diagnosing the disease. READ MORE…

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