In this webinar, our partners at the National Health Council focused on the impact of the Coronavirus on mental health in the US. The speakers discussed the increase in anxiety as well as gave general advice for self-care and advice for LGBTQ youth on coping with stress during the COVID-19 crisis. This webinar is intended […]
Dr. Lily Chu Q&A Follow-Up to June 18 Webinar
The Solve ME/CFS Initiative hosted a webinar with Dr. Lily Chu June 18 called, “Post-Exertional Malaise: History, Characteristics, Evidence.” Dr. Chu has followed up with her responses to questions that were unable to be answered during the webinar due to time limitations. Read More…
Solve ME/CFS Initiative Hosts IOM Briefing in D.C.
On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…
Morgan Fairchild Joins SMCI in DC for IOM Report Briefing
Morgan Fairchild Joins SMCI in DC for an IOM Report Briefing: On March 25, SMCI will host a briefing on the IOM report in Washington, D.C. The goal is to further the IOM report momentum and turn the report into action, particularly by urging additional federal research funding.
Learn more and register to participate…
IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name
IOM Report Released – Recommends New Diagnostic Criteria, Calls for More Research, and Proposes New Disease Name. The report underscores the profound impact that ME/CFS has on the millions who suffer from it worldwide (est. 17 million) and the importance of getting people diagnosed; committee calls for more research funding. READ MORE…
Public Release of the IOM ME/CFS Study February 10
The IOM’s Committee on the Diagnostic Criteria for ME/CFS will hold a public release event for its consensus report on February 10th, 2015 from 11:00 am-12:00 pm EST. Participants may attend live or view via webstream. LEARN MORE and REGISTER…
The P2P Report – CFSAC Drafts Substantive, Expert Response
On 1/13/2015, the CFSAC met and finalized its response and feedback to the P2P draft report. SMCI participated in the process, with Carol Head, president and CEO, serving on the CFSAC working group. SMCI will endorse the CFSAC response in it’s feedback to the P2P panel concerning the report. LEARN MORE…
P2P Draft Report Set to be Published, 30 days for Feedback
On December 9 & 10, the Pathway to Prevention Workshop for “Advancing the Research on ME/CFS” was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings a READ MORE
Deciphering Post-Exertional Malaise
On September 18, 2014, Dane B. Cook, Ph.D., Associate Professor of Kinesiology at the University of Wisconsin, Madison and a Solve ME/CFS Initiative 2011 funded investigator, presented our most popular webinar of the year on the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise. In this guest post for our blog, Dr. Cook reviews the material presented and tackles the many questions we received from webinar participants.
Two Important Federal Meetings Just 4 Days Apart
With only 4 days in between them, December offers two very important meetings to the ME/CFS community. On December 3-4, the CFSAC third and final meeting of 2014; on December 9-10, the Pathway to Prevention Workshop for Advancing Treatment in ME/CFS will occur. LEARN MORE…