The following is a list of our Congressional Champions who supported ME Research and Funding. In order to increase funding for ME/CFS research and education, we had TWO appropriations request letters: DEFENSE & LABOR-HHS. Labor-HHS Appropriations: Preserved $5.4 million for 2020 to fund the Multi-site Clinical Assessment of ME/CFS (which recently expanded into pediatric study) and […]
NIH Study
The Solve ME/CFS Initiative held a phone call with Vicky Whittemore, Ph.D., of the National Institutes of Health yesterday regarding our concerns over staffing of the NIH’s new intramural study on ME/CFS. Read More…
Solve ME/CFS Initiative Joins Forces with Fellow Advocates
We are thrilled to announce our involvement in a new coalition of more than 20 ME/CFS advocates, who have begun working together to share ideas, leverage resources and implement tactics as a single dynamic and powerful community that will bring the greatest benefit to ME/CFS patients. Read More…
Solve ME/CFS Initiative Calls for Review of PACE Trial
The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for Healthcare Research and Quality (AHRQ) to examine the issues raised by journalist David Tuller’s analysis of the U.K.’s £5 million PACE trial for ME/CFS. Read More…
I Thought It Was a Typo…
During the course of interviewing for this position, I was reviewing the amount of government spending on ME/CFS. I came across a figure of $5.4 million in one article. I assumed the number must have been a typo. Read More…
Pathways to Prevention
Last week’s long-awaited briefing on the National Institute of Health’s Pathways to Prevention (P2P) report on ME/CFS failed miserably at continuing the momentum created earlier this year by the Feb. 10 Institute of Medicine publication on the disease. Read More…
Solve ME/CFS Initiative Reappointed to CFSAC Position
The Solve ME/CFS Initiative has been reappointed as one of the liaison organizations for the Chronic Fatigue Syndrome Advisory Committee (CFSAC) for the term May 2015 through May 2017. Read More…
Dr. Ledia Martinez Assumes CFSAC Designated Federal Officer Post
Dr. Ledia Martinez has been appointed as the designated federal officer (DFO) of the Chronic Fatigue System Advisory Committee, effective immediately. Dr. Martinez replaces Barbara James, who is retiring. Read More…
Solve ME/CFS Initiative Hosts IOM Briefing in D.C.
On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…
SMCI Comment on the Institute of Medicine Report – Part 1 of 5
In February, the IOM released its landmark report on ME/CFS [SEID]. In this first of a five-part blog series, Dr. Suzanne D Vernon, SMCI Scientific Director breaks down the report piece by piece, beginning with making the critical distinction between a research case definition and clinical diagnostic criteria. Read More…