In her U.S. News & World Report article, “In Long COVID, Advocates Battling Chronic Fatigue Syndrome See Allies, Hope,” journalist Chelsea Cirruzzo examines the ME/CFS and Long COVID connection, and how the striking similarities are fueling hopes that research can uncover solutions for both. Mentioned in the piece are Solve M.E. President Oved Amitay and the Long COVID […]
Advocacy Week Kicks Off with Virtual Keynote Address by Rep. Jamie Raskin
Advocacy Week Kickoff Event with Rep. Jamie Raskin (MD-08) The 5th Annual Solve M.E. Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. Please join us for a week of advocacy activities that everyone can participate in from home! We’re thrilled to announce that our kickoff event will take […]
Meet Our 2021 Advocacy Week Partners
Advocacy Week Welcomes Partners from Long COVID and Rare Disease Communities The 5th Annual Solve M.E. Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes our new partners from the Long COVID Alliance and the EveryLife Foundation for Rare Diseases […]
Why Long-COVID?
The Long COVID Alliance is a coalition of different complex, chronic, disease organizations who have come together to pool our resources. Each group is bringing along their expertise as well as their connections with patient advocates, disease experts, drug developers, and more. The top three symptoms of Long COVID are the top three symptoms of […]
Solve M.E. Spearheads Formation of Long COVID Alliance to Accelerate Post-Infectious Research
Today, Solve M.E. warmly welcomes 50 new partners in the fight to return millions of Americans to health. The Long COVID Alliance, launched by Solve M.E., is a network of patient-advocates, scientists, disease and public health experts, and drug developers, who have joined together to leverage our collective knowledge and resources to educate policy […]
Registration now open for Solve M.E. 2021 Advocacy Day!
Register for Virtual Advocacy Day today! The 5th Annual ME/CFS Advocacy Day April 20, 2021 The 5th Annual ME/CFS Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes all of our friends and partners from the complex, chronic illness community […]
NIH launches database to track neurological symptoms associated with COVID-19
A new database will collect information from clinicians about COVID-19-related neurological symptoms, complications, and outcomes as well as COVID-19 effects on pre-existing neurological conditions. The COVID-19 Neuro Databank/Biobank (NeuroCOVID), which was created and will be maintained by NYU Langone Health, New York City, will be a resource of clinical information as well as biospecimens from […]
2019 Congressional Champions of ME/CFS
The following is a list of our Congressional Champions who supported ME Research and Funding. In order to increase funding for ME/CFS research and education, we had TWO appropriations request letters: DEFENSE & LABOR-HHS. Labor-HHS Appropriations: Preserved $5.4 million for 2020 to fund the Multi-site Clinical Assessment of ME/CFS (which recently expanded into pediatric study) and […]
NIH Study
The Solve ME/CFS Initiative held a phone call with Vicky Whittemore, Ph.D., of the National Institutes of Health yesterday regarding our concerns over staffing of the NIH’s new intramural study on ME/CFS. Read More…
Solve ME/CFS Initiative Joins Forces with Fellow Advocates
We are thrilled to announce our involvement in a new coalition of more than 20 ME/CFS advocates, who have begun working together to share ideas, leverage resources and implement tactics as a single dynamic and powerful community that will bring the greatest benefit to ME/CFS patients. Read More…