Solve M.E., Long COVID Alliance highlighted in U.S. News & World Report

In her U.S. News & World Report article, “In Long COVID, Advocates Battling Chronic Fatigue Syndrome See Allies, Hope,” journalist Chelsea Cirruzzo examines the ME/CFS and Long COVID connection, and how the striking similarities are fueling hopes that research can uncover solutions for both. Mentioned in the piece are Solve M.E. President Oved Amitay and the Long COVID […]

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Meet Our 2021 Advocacy Week Partners

Advocacy Week Welcomes Partners from Long COVID and Rare Disease Communities The 5th Annual Solve M.E. Advocacy Week will take place from Sunday, April 18, 2021 to Saturday, April 24, 2021. This year, “ME/CFS & Long COVID Advocacy Day” welcomes our new partners from the Long COVID Alliance and the EveryLife Foundation for Rare Diseases […]

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Why Long-COVID?

The Long COVID Alliance is a coalition of different complex, chronic, disease organizations who have come together to pool our resources. Each group is bringing along their expertise as well as their connections with patient advocates, disease experts, drug developers, and more. The top three symptoms of Long COVID are the top three symptoms of […]

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Solve M.E. Spearheads Formation of Long COVID Alliance to Accelerate Post-Infectious Research

  Today, Solve M.E. warmly welcomes 50 new partners in the fight to return millions of Americans to health. The Long COVID Alliance, launched by Solve M.E., is a network of patient-advocates, scientists, disease and public health experts, and drug developers, who have joined together to leverage our collective knowledge and resources to educate policy […]

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NIH launches database to track neurological symptoms associated with COVID-19

A new database will collect information from clinicians about COVID-19-related neurological symptoms, complications, and outcomes as well as COVID-19 effects on pre-existing neurological conditions. The COVID-19 Neuro Databank/Biobank (NeuroCOVID), which was created and will be maintained by NYU Langone Health, New York City, will be a resource of clinical information as well as biospecimens from […]

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2019 Congressional Champions of ME/CFS

The following is a list of our Congressional Champions who supported ME Research and Funding. In order to increase funding for ME/CFS research and education, we had TWO appropriations request letters: DEFENSE & LABOR-HHS. Labor-HHS Appropriations: Preserved $5.4 million for 2020 to fund the Multi-site Clinical Assessment of ME/CFS (which recently expanded into pediatric study) and […]

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NIH Study

The Solve ME/CFS Initiative held a phone call with Vicky Whittemore, Ph.D., of the National Institutes of Health yesterday regarding our concerns over staffing of the NIH’s new intramural study on ME/CFS. Read More…

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