On November 10, the Solve ME/CFS Initiative hosted a webinar with Dr. Anthony L. Komaroff, Simcox-Clifford-Higby professor of medicine at Harvard Medical School and senior physician at Brigham and Women’s Hospital in Boston, Massachusetts. Dr. Komaroff has followed up with his responses to the numerous questions that were unable to be answered during the webinar due to time limitations. To […]
PROMINENT ME/CFS ADVOCATES, INCLUDING SMCI PRESIDENT CAROL HEAD, TO MEET WITH SENIOR HHS OFFICIALS
Solve ME/CFS Initiative (SMCI) President Carol Head and prominent ME/CFS advocates Jen Brea of #MEAction, Mary Dimmock, Jennie Spotila, and Terri Wilder will meet with Karen B. DeSalvo, M.D., M.P.H., M.Sc., acting assistant secretary for health (ASH) at the Department of Health and Human Services (HHS), this August. Read more…
Dr. Susan Levine’s Responses to Follow-Up Webinar Questions—Part II
In Part Two of her follow-up to our March 17 webinar, Dr. Susan Levine, founder of the Medical Office of Susan M. Levine, M.D., responds to a wide range of patient questions that time did not was not able to field during the webinar. Read More…
Dr. Susan Levine’s Responses to Follow-Up Webinar Questions—Part I
On March 17, the Solve ME/CFS Initiative hosted a webinar with Dr. Susan Levine, founder of the Medical Office of Susan M. Levine, M.D., called, “The Future of ME/CFS.” Read More…
NIH Study
The Solve ME/CFS Initiative held a phone call with Vicky Whittemore, Ph.D., of the National Institutes of Health yesterday regarding our concerns over staffing of the NIH’s new intramural study on ME/CFS. Read More…
Solve ME/CFS Initiative Joins Forces with Fellow Advocates
We are thrilled to announce our involvement in a new coalition of more than 20 ME/CFS advocates, who have begun working together to share ideas, leverage resources and implement tactics as a single dynamic and powerful community that will bring the greatest benefit to ME/CFS patients. Read More…
Guest Blog: Making Reasonable Accommodations for ME/CFS Students
Guest blogger Michael Ottlinger, PhD, addresses the reasonable accommodations that must be made for students with ME/CFS. Read More…
Solve ME/CFS Initiative Calls for Review of PACE Trial
The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for Healthcare Research and Quality (AHRQ) to examine the issues raised by journalist David Tuller’s analysis of the U.K.’s £5 million PACE trial for ME/CFS. Read More…
Going the Extra Mile for ME/CFS
Strong support from family and friends is essential to people with a debilitating and poorly understood illness like ME/CFS. As patients work to integrate the challenges of ME/CFS into their daily lives, loved ones can often feel powerless to help them. Read More…
I Thought It Was a Typo…
During the course of interviewing for this position, I was reviewing the amount of government spending on ME/CFS. I came across a figure of $5.4 million in one article. I assumed the number must have been a typo. Read More…