NEW Naviaux Lab Metabolomics Study Participants Needed

The UCSD Dynamic Metabolomic Analysis (DMA) Study University of California, San Diego School of Medicine Naviaux’s study for Southern Californians (PDF) Study specifics: 15 females with ME/CFS 15 females with post-treatment Lyme Disease 15 female healthy controls Participants must commit to 4 consecutive weekly blood draws beginning sometime in August. The location is in Hillcrest. […]

Read More

If You Have Chronic Fatigue or Myalgic Encephalomyelitis,

You’re invited to participate   Approved: July 23, 2019 Expiration Date: September 9, 2019 Stony Brook University IRB (CORIHS B) Study of Chronic Fatigue and ME/CFS: Volunteers Needed: If you have Chronic Fatigue or Myalgic Encephalomyelitis (ME/CFS) You’re invited to participate in a research study of autonomic function (heart rate variability) and brief walking exercise sponsored […]

Read More

In the News: Beth French Shares Her Journey of Battling M.E. while Swimming the Seven Seas with Sharks

Listen to Sportshour Sounds podcast. This article originally appeared in BBC Sportshour Single mum and open water swimmer Beth French attempted a physical challenge that no-one had ever done before. She set out to conquer Oceans Seven, a challenge consisting of the seven most dangerous sea-channels in the world. Her efforts have been turned into […]

Read More

In the News: ME/CFS and the MUPS Myth

By Jochem Verdonk This article originally appeared in Jochem Verdonk Blog For a long time I didn’t want to write about MUPS, for several reasons. Because ME/CFS is not a MUPS. Because I don’t want to encourage the MUPS myth around ME/CFS. Because the MUPS myth bears witness to an unparalleled arrogance. Because… However, I […]

Read More

The NIH Intramural Post-Infectious ME/CFS Study: A Patient-Study Participant Perspective (Part 1)

This interview originally appeared in the April 2019 edition of the Solve M.E. newsletter Research 1st.   In October 2018, SMCI wrote about the NIH Intramural Clinical Study regarding the biological basis of ME/CFS. The NIH has sought greater community participation by both ME/CFS patients and healthy controls to help expand the impact of the […]

Read More

In the News: Medically Documenting Disability in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Cases

By Barbara B. Comerford and Richard Podell This article originally appeared in Frontiers in Pediatrics Patients with severe myalgic encephalomyelitis/Chronic fatigue syndrome (ME/CFS) experience debilitating physical and cognitive symptoms, which often result in the need to file disability claims. A significant number of ME/CFS patients are children or adolescents. ME/CFS patients often turn to physicians […]

Read More

In the News: Transcript of Remarks by Dr. Francis Collins at the NIH Accelerating Research on ME/CFS Conference April 5, 2019

By Jennie Spotilla This article originally appeared on Occupy M.E. Dr. Francis Collins addressed the Accelerating Research in ME/CFS meeting for ten minutes this morning. This is my best effort at a transcript of those comments. Thank you, Walter. I’m really glad to be able to be here for at least a few minutes to […]

Read More

In the News: Researchers Find Evidence Gut Bacteria Plays a Role in Fibromyalgia

by Renee Fabian (The Mighty) This article originally appeared in Yahoo! Lifestyle The connection between the bacteria in your gut and a wide range of chronic (and even mental) illnesses is one of the trendiest research topics. For conditions like fibromyalgia, which doesn’t have a definitive diagnostic test, a new study linking specific gut microbiome patterns […]

Read More