After three years of advocacy, Solve M.E. scored a concrete legislative victory with the passage of The Clinical Treatment Act. This covers clinical trial costs for qualifying 74.8M Medicaid participants — including ME/CFS patients — and provides resources for ME/CFS clinical trials. Lowering the costs and barriers for participation in clinical trials is a key priority […]
Now that our government has narrowly avoided a shutdown, I’d love to share some insights about next year’s federal budget and how we are helping to shape it today. A key goal of Advocacy Day 2021 was to circulate Chairwoman Eshoo and Representative Lofgren’s “e-Dear Colleague” letter, requesting an additional $10 million for the chronic […]
We are so excited to announce that next year’s Solve M.E. 2022 Advocacy Week will be bigger and better than ever — and will now be Advocacy Month! For Advocacy Week in April 2021, we had more registrations than ever before, growing the strength and virtual presence of our community in the hallowed halls of […]
Your advocacy efforts are creating historic opportunities for federal funding of research and ME/CFS education. Two particular pieces of proposed legislation have great potential and I wanted to share my thoughts on each of them Solve M.E. is proud to support The COVID-19 and Pandemic Response Centers of Excellence Act (S. 2307 / H.R.4292). We’re […]
It’s our one-year anniversary and we’re celebrating all month! Today, we announce our 2021 Ramsay Researchers! The Solve M.E. Ramsay Grant Program is designed to build a workforce, with a special focus on early-career investigators, and to allow researchers to generate data to support larger grant applications. The Ramsay network now includes more than 60 researchers around […]
Second year of Solve/UCLA partnership September 2021–Solve M.E. is again partnering with the University of California, Los Angeles (UCLA) Iris Cantor Women’s Health Center to fund ME/CFS research through their Annual Health Pilot Program. This round of funding follows last year’s, which supported a clinical study assessing the effects of repetitive transcranial magnetic stimulation (rTMS) in ME/CFS. Solve’s […]
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are asking that you sign this petition in support of our proposal. At present, […]
What a Year! We grew to nearly 5,000 members and are on track to reach 10,000 by mid-2022, creating a more and more robust resource for researchers. [Click here to enroll.] We gathered more than 2.4 million data points, more than doubling the number in four months. We incorporated Long Covid data to enhance our understanding of […]
The U.S. ME/CFS Clinician Coalition recently released updated clinical guidance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which may also help individuals suffering from Long Covid symptoms. An article about the guidance was published in Mayo Clinic Proceedings, which is widely read by clinicians. Read it here. The updated clinical guidance from the U.S. ME/CFS Clinician […]
Unique collaboration between Harvard, Johns Hopkins and citizen-scientist supported by Solve M.E. A comprehensive review of ME/CFS and Long Covid research published this week suggests that symptoms of both may be caused by redox imbalance, which is linked to inflammation and reduction of cellular energy production. [Redox imbalance occurs when oxidants and antioxidants in a […]