President Carol Head and Vice President for Research and Scientific Programs Dr. Zaher Nahle attended the annual Partnering for Cures event organized by FasterCures, based in Washington DC. FasterCures is an action tank of the Milken Institute that works to speed up and improve the medical research system.
This conference is a unique opportunity to build partnerships with numerous stakeholders across academia, industry, and the federal government. In addition, it offers a platform with dedicated sessions to learn from what other disease organizations have done regarding biomedical innovation, effective advocacy, and partnering with federal agencies such as the National Institutes of Health (NIH) and Food and Drug Administration (FDA). The pharmaceutical and biotech industries are well represented at this conference, which is also useful to bring the voice of ME/CFS patients to that sector.
In light of recent election results, the conference organized sessions dedicated to the expectations of, and approaches for working with, the Trump administration. The conference emphasized the system-wide focus on patient centricity, data-sharing, and the role of patients as partners—not subjects—a core belief of SMCI.