Advocacy in Action: SMCI Joins the Research!America Alliance

researchamericaThe Solve ME/CFS Initiative is proud to announce our formal membership as part of Research!America, an alliance for discoveries in health. Research!America is the nation’s largest and most effective advocacy coalition dedicated to making medical research for health and scientific research funding a higher national priority. The Solve ME/CFS Initiative is the first organization to join the alliance that is exclusively dedicated to ME/CFS.

SMCI was initially contacted by Research!America to provide technical assistance regarding ME/CFS for the “Investment in research saves lives and money” fact sheet campaign. As a formal member, SMCI is proud to lend its support to the fight for research funding and share Research!America’s insider political analysis on the policy landscape in health and research with our patients and supporters. Side by side with over 360 members from the lab bench to the bedside, SMCI is proud to have taken several major actions with the Research!America alliance:

SMCI supports the 21st Century Cures Act: This pending legislation has significant importance for ME/CFS, including funding for research, increased accountability at the NIH, the removal of barriers for researcher collaboration, added value to the patient perspective, and new incentives to research misunderstood diseases. We wholeheartedly support this bill and invite you join us in support by going here.

Called for the finalization of the fiscal year 2017 (FY17) spending bills: There is a strong possibility that Congress will pass a short-term continuing resolution that flat funds most government agencies and programs through 2017 instead of finalizing a budget normally before year-end. A continuing resolution would delay and potentially rule out a pending $1.25-$2 billion budget increase for the National Institutes of Health (NIH) as well as budget increases for other crucial health agencies. SMCI joined a sign-on letter and contacted members of Congress to urge them to complete their work on FY17 spending bills this year in order to ensure that this funding increase REALLY happens.

SMCI joined #CampaignforCures: Campaign for Cures, a national voter education initiative led by Research!America and partner organizations, elevated the importance of research and innovation this election season. Through strategic grassroots activities, communications initiatives, and partnerships with preeminent voter education groups, we are raising awareness about the importance of sustaining medical progress.