SMCI Team Meets with NIH

nihOn Oct. 6, SMCI President Carol Head, Research Director Dr. Zaher Nahle and Board members Diane Bean and Christine Williams met with NIH officials regarding ME/CFS research and how to increase NIH funding so that it is more consistent with the number of Americans who suffer from the disease—between 836,000 and 2.5 million according to this year’s Institute of Medicine report.

The SMCI group was told that there is a renewed NIH commitment to ME/CFS research. NIH staff in the meeting also encouraged the submission of NIH grant proposals by ME/CFS investigators through the parent grant funding opportunity announcements:

The Solve ME/CFS Initiative has agreed to provide suggestions for individuals to serve on the ME/CFS Special Emphasis Panel that reviews the grants submitted to NIH. The Panel has been functioning since 1998.

NIH also agreed to work with the Solve ME/CFS Initiative and ME/CFS investigators to direct trainees and young investigators to funding opportunities that have been designed for these groups of researchers.

The Solve ME/CFS Initiative and NIH agreed to have a follow-up conference call to continue the conversation and identify areas of potential partnership.

5 comments on “SMCI Team Meets with NIH

  1. I am reading “Osler’s Web,” by Hillary Johnson. The NIH has had a long history of saying they are working on the problem, and do nothing. Congress, over the course of many years, has appropriated several millions of dollars to the NIH and the CDC for research for CFS/ME, and those funds were always siphoned off to other projects – not CFS. I sincerely hope that these overtures by the NIH will bear some fruit this time.

  2. Very glad you guys went to DC and met. That’s now a long trip from LA 🙂

    The thing that stood out for me in this rather careful statement (:)) was the renewed commitment of the NIH….that’s very good news. Hopefully the meeting was with someone significant at the NIH as well – and we will hear more later.

  3. i am afraid that we have been fed so many stinking lies by the nih over the years or should i say over the decades, that i have no confidence in them to act in our best interests.
    collins is no different, big on promises last year, but nothing concrete has materialised
    i cant believe how such a purportedly religious man, wants to take the credit for ramping up the scale of CFS research, but at the same time do nothing constructive or worthwhile. its positively sickening

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