ME/CFS Patient-Powered Research Network

“Two things broke down the silos for dramatic advancement in AIDS research leading to rapid therapy development. The first was the collective intent of the patient community that came with a shared sense of urgency. The second was that the patient community once excluded from collaboration now was the catalyst for new drug discovery and […]

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GUT TISSUE BIOPSY SAMPLES STUDIED

Researchers in Belgium, Russia, Hungary and the U.S. (Whittemore Peterson Institute) reported results of a preliminary analysis of de-identified gut tissue obtained from 12 patients meeting Canadian and Fukuda definitions for ME/CFS and CFS and eight control subjects. Tissue samples were obtained during clinical diagnostic procedures and limited information was available about the subjects. Eight of 12 […]

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CFIDS Association Welcomes Interim CEO, Maryam Aghamirzadeh

In anticipation of the April 24, 2013 announcement that longtime Solve ME/CFS Initiative president and CEO, K. Kimberly McCleary, would be leaving the Association, the search for an effective interim CEO was already underway. The best interim CEO is one that would be able to effectively lead the team through the transition with a keen […]

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