Posts Tagged ‘CFS research’

Dr. Peter Rowe’s Responses to Follow-Up Webinar Questions

July 24, 2015

On July 16, the Solve ME/CFS Initiative hosted a webinar with Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, called, “Inducing Post-Exertional Malaise in ME/CFS: A Look at the Research Evidence. Read More…

Dr. Lily Chu Q&A Follow-Up to June 18 Webinar

July 2, 2015

The Solve ME/CFS Initiative hosted a webinar with Dr. Lily Chu June 18 called, “Post-Exertional Malaise: History, Characteristics, Evidence.” Dr. Chu has followed up with her responses to questions that were unable to be answered during the webinar due to time limitations. Read More…

SMCI Comment on the Institute of Medicine Report—Part 5

April 30, 2015

This is the fifth and final blog post that provides insights into the Institute of Medicine’s report on ME/CFS. In this post, SMCI Scientific Director Dr. Suzanne Vernon focuses on cognitive impairment and orthostatic intolerance, one or both of which are required for an ME/CFS/SEID diagnosis, according to the IOM’s recommended criteria.

SMCI Comment on the Institute of Medicine Report—Part 4 of 5

April 28, 2015

This is the fourth of a five-part blog series that addresses aspects of the Institute of Medicine’s recent report on myalgic encephalomyelitis/Chronic Fatigue Syndrome. In this post, author Dr. Suzanne D. Vernon, looks at the IOM’s third recommended diagnostic criteria: sleep.

SMCI Comment on the Institute of Medicine Report—Part 3 of 5

April 24, 2015

This is the third installment of a five-part blog series in which SMCI Scientific Director, Dr. Suzanne Vernon, analyzes the Feb. 10 IOM report section by section. In this post, Dr. Vernon considers the IOM’s second recommended diagnostic criteria: post-exertional malaise (PEM).

SMCI Comment on the Institute of Medicine Report—Part 2 of 5

April 21, 2015

This is the second of a five-part blog series in which Dr. Suzanne Vernon, SMCI Scientific Director, breaks down the landmark IOM report piece by piece. In this post, Dr. Vernon looks at the first recommended diagnostic criteria: defiant fatigue. Read More…

Solve ME/CFS Initiative Hosts IOM Briefing in D.C.

April 2, 2015

On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…

Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report

February 27, 2015

Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…