Posts Tagged ‘CFS research’

P2P Draft Report Set to be Published, 30 days for Feedback

December 18, 2014

On December 9 & 10, the Pathway to Prevention Workshop for “Advancing the Research on ME/CFS” was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings a READ MORE

Research Digest – December 2014: 10 Important Advances in ME/CFS

December 12, 2014

While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…

Funding Research to Inform the Path Forward, part 2

December 10, 2014

In part 2 of our blog series, Funding Research to Inform the Path Forward, we share the progress being made through our second competitive funding opportunity, which occurred in 2011. Through this work, the Solve ME/CFS Initiative is taking strategic steps to shorten the road and speed up progress. READ MORE…

Funding Research to Inform the Path Forward, part 1

December 9, 2014

The Solve ME/CFS Initiative (SMCI) began funding research into ME/CFS as soon as it was founded in 1987. But the first competitive funding opportunity occurred in 2008, followed by another competitive funding cycle in 2011. With an innovative, collaborative approach, and Dr Vernon’s knack for recruiting leaders into the field, SMCI has begun to bring important discoveries to light. In this two part blog series we explore our funded research projects in more depth. READ MORE…

Being “Patient-Centric”

December 8, 2014

Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…

Restructuring Medical Research

December 5, 2014

In the US, it takes an average of 12 years for an experimental drug to travel from the laboratory to your medicine cabinet; the chance for a new drug to actually make it to market is only 1 in 5,000. Diagnosis takes far too long and treatment options for people with ME/CFS have not improved much. So how can the status quo be changed? In this post, we discuss the need to restructure medical research. READ MORE…

Deciphering Post-Exertional Malaise

November 21, 2014

On September 18, 2014, Dane B. Cook, Ph.D., Associate Professor of Kinesiology at the University of Wisconsin, Madison and a Solve ME/CFS Initiative 2011 funded investigator, presented our most popular webinar of the year on the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise. In this guest post for our blog, Dr. Cook reviews the material presented and tackles the many questions we received from webinar participants.

Two Important Federal Meetings Just 4 Days Apart

November 20, 2014

With only 4 days in between them, December offers two very important meetings to the ME/CFS community. On December 3-4, the CFSAC third and final meeting of 2014; on December 9-10, the Pathway to Prevention Workshop for Advancing Treatment in ME/CFS will occur. LEARN MORE…

SMCI – Just The Facts

November 20, 2014

As we approach year end, many are considering giving to a charity that is close to their heart. It is important that you know who we are, what we do and where we focus our energy and precious resources as you make these important decisions. LEARN MORE…