Posts Tagged ‘CFS research’

Guest Blog: Mark A. Demitrack, MD, FAPA – Neurobiology of ME/CFS

July 17, 2014

Far too often, ME/CFS patients are met with healthcare providers who do not believe in the biological nature of the disease. In this guest blog post, Mark Demitrack, MD, FAPA describes how for a long time he has advocated for and used an integrated approach to understand how the brain is involved in the biology of ME/CFS. READ MORE…

Research Digest – July 2014: Define & Diagnose

July 16, 2014

In order for patients to be diagnosed, a disease must be defined. Chronic Fatigue Syndrome is currently defined by excluding other medical and psychiatric diseases that explain the symptoms. This month we highlight three recent publications tackling the “core” components of ME/CFS that are important to defining and diagnosing the disease. READ MORE…

Breaking Down the Complexities of ME/CFS – Part 3

July 9, 2014

Modern day, patient-driven research has the potential to be used as meaningful evidence as larger sets of data are gathered. With the advent of personal tracking and monitoring devices, you now have tremendous resources to track your own data and help us break down the complexities of ME/CFS. Read more…

Solve ME/CFS Initiative 2014 Webinar Series

July 8, 2014

Beginning in July and continuing through year-end, the Solve ME/CFS Initiative (SMCI) will be bringing you a free, monthly webinar series reporting on the progress and promise of research happening through our Research Institute Without Walls. Learn more and RSVP today!

Breaking Down the Complexities of ME/CFS – Part 2

July 7, 2014

“Complex” is a word that is frequently used to describe the ME/CFS disease state for many reasons. One way that research deals with this type of complexity is to break it down so that the most similar people are being studied. Our SolveCFS BioBank is an important part of this process. Read more…

Breaking Down the Complexity of ME/CFS – Part 1

July 2, 2014

A clinical intuition survey helped us capture how ME/CFS experts from around the world are managing and treating their patients. The knowledge that expert ME/CFS clinicians have gained is invaluable to us as we work to break down the complexity of ME/CFS. Learn more…

Dr. Vernon, SMCI Scientific Director, Represents ME/CFS at Life Sciences Meeting

June 18, 2014

Dr. Vernon, Solve ME/CFS Initiative Scientific Director, advocates for ME/CFS at Life Sciences Meeting. Her scholarship to this prestigious event gives her the opportunity to network, listen and learn from global leaders from industry, regulatory agencies, academia and the other patient advocate fellows. Learn more…

Research Digest – June 2014: Neuroinflammation in ME/CFS

June 17, 2014

Neuroimaging has been used to study the structural, functional and metabolic affects of ME/CFS on the brain in ME/CFS patients for the past 25 years. To date there are about 50 papers in the peer-reviewed biomedical literature describing these findings. This month we highlight three publications that directly demonstrate and implicate neuroinflammation in ME/CFS…

Solve ME/CFS Initiative (SMCI) Position on P2P

June 12, 2014

An NIH Pathway to Prevention workshop focusing on ME/CFS is in development. Many in the ME/CFS community have concerns. The Solve ME/CFS Initiative has them as well, specifically about the evidenced-based literature review. SMCI has taken steps to urge the NIH to correct it. Read more about what is underway…

Research Digest – May 2014: Post-Exertional Malaise

May 20, 2014

Post-exertional malaise (PEM) is characteristic of ME/CFS – considered a hallmark of the disease.  Despite this hallmark status, research has not defined what PEM is or how to measure it.  Patients describe PEM as a crash that occurs following physical or mental exertion.   In […]