Posts Tagged ‘2014’

P2P Draft Report Set to be Published, 30 days for Feedback

December 18, 2014

On December 9 & 10, the Pathway to Prevention Workshop for “Advancing the Research on ME/CFS” was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings a READ MORE

Research Digest – December 2014: 10 Important Advances in ME/CFS

December 12, 2014

While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…

Being “Patient-Centric”

December 8, 2014

Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…

Deciphering Post-Exertional Malaise

November 21, 2014

On September 18, 2014, Dane B. Cook, Ph.D., Associate Professor of Kinesiology at the University of Wisconsin, Madison and a Solve ME/CFS Initiative 2011 funded investigator, presented our most popular webinar of the year on the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise. In this guest post for our blog, Dr. Cook reviews the material presented and tackles the many questions we received from webinar participants.

Two Important Federal Meetings Just 4 Days Apart

November 20, 2014

With only 4 days in between them, December offers two very important meetings to the ME/CFS community. On December 3-4, the CFSAC third and final meeting of 2014; on December 9-10, the Pathway to Prevention Workshop for Advancing Treatment in ME/CFS will occur. LEARN MORE…

The Importance of a Representative Patient Population for Research

November 18, 2014

Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….

CDC Stakeholder Call – Open Invitation

August 18, 2014

CDC announces CFS Patient-Centered Outreach and Communications Activity (PCOCA) Conference Call, open to all on September 9, 3pm EST. The main topic on this call will be “Can ME/CFS and FM Sleep Research Help You Sleep?” presented by Lucinda Bateman MD. LEARN MORE…