Posts Tagged ‘2013’

IOM and the Clinical Case Definition Committee – A Case for Hope

December 5, 2013

On Tuesday, December 3, the IOM announced the provisional Clinical Case Definition Committee slate. The Association has reviewed the full slate of committee members and is optimistic that this committee can be effective in fulfilling its important mandate.

Guest Blog – Rocky Mountain Highs, Anna Zapp

November 27, 2013

For ME/CFS sufferers, “coming out” to family and friends about their illness can be a tremendous challenge, especially at the holidays, but it is an important piece of the puzzle. We are proud and thankful to work with individuals who are willing to share their story as widely as possible, like Anna Zapp…

Handling the Holidays: A Gift for Yourself

November 25, 2013

Celebrating the winter holidays is emotionally and physically draining for everyone, but those with ME/CFS and their caregivers can have an especially difficult time. We offer some suggestions to help all those affected by ME/CFS celebrate the holidays within the boundaries that the illness can create.

FDA: The Voice of the Patient

October 10, 2013

On October 16 from 1:30 PM – 3:00 PM EST, FDA will hold a teleconference that is open to the public. Your voice is important in the dialogue.

Clearing the Air

October 10, 2013

Clearing the Air – We must galvanize around ME/CFS in order to conquer it.

The CFIDS Association Statement on the H.H.S. IOM Contract

October 10, 2013

We feel that the Canadian Clinical Consensus can be optimized as a clinical case definition by applying a standardized methodology of execution, through validation of criteria, and a nationwide dissemination to health professionals.