Clinical Research and TrialsAugust 26, 2013
Patient engagement in research is critical. When patients are actively involved in the process, it more readily leads to treatments that better meet people’s needs and are more likely to be put into practice.
Increasingly, researchers are expected to incorporate patients into their plans from the beginning of the grant proposal and ethics committee review stage. The Solve ME/CFS Initiative is dedicated to helping researchers actively involve patients in their research.
The Solve ME/CFS Initiative provides this information as a service to persons with ME/CFS and related disorders who are interested in participating in medical research, and for researchers who are seeking subjects for their studies. The organization does not recommend or endorse participation in any specific medical research study and assumes no responsibility for the safe or ethical conduct of any studies accessible from the links below.
Listings for Clinical Trials
- ClinicalTrials.gov is the National Institutes of Health’s database with information on more than 4,000 federal and private medical studies involving patients at more than 47,000 locations nationwide. Center Watch Clinical Trials Listing Service lists more than 41,000 industry- and government-sponsored clinical trials, as well as new drug therapies recently approved by the FDA.
- Current Controlled Trials is a multi-national effort to provide information about thousands of research studies worldwide.
Resources For Those Considering Enrolling in a Study
Here are some resources to help you evaluate whether participating in a research study is right for you. Please consult with your personal physician about such matters for further information.
- Clinical Trials Fact Sheet for Women – From the National Women’s Health Information Center
- OHRP Informed Consent Frequently Asked Questions – Published by Office for Human Research Protections (OHRP)
- Clinical trials: from centerwatch – What do clinical trials offer the volunteer?
- Participate in Clinical Studies: Information from the National Institutes of Health’s Clinical Center