Privacy Policy

We Respect Your Privacy

The Solve ME/CFS Initiative (SMCI) respects your privacy. This notice explains our donor information practices and the choices you can make about the way your information is collected and used. This notice is available on our homepage and every page throughout the site for your convenience.

Information We Collect and How We Use It
SMCI gathers two types of information:

  1. Personal, or “individually identifiable,” information you voluntarily provide to us; and
  2. Standard web server/traffic information commonly referred to as “aggregate information,” regarding overall Web traffic patterns.

Individually Identifiable Information
SMCI is the sole owner of and the only organization that uses the information collected on this site. We do not sell, share, or rent this information to others under any circumstances.

Information on individual site visitors is requested for purposes such as donation processing, future direct mailings and information requests. The information we request includes name, street address, city, state, zip code, telephone number and e-mail address.

In the case of contributions  we may request credit card information (card number, card type, expiration date) and will process your order via a secure server. All online payments are processed through PayPal and credit card information is not retained by SMCI.

In the case of memorial or honor contributions, we will also request the name and complete mailing address of your designated recipient for the purposes of acknowledgement only.

Our online form has an “opt-out” mechanism for users who wish to donate or request information, but do not wish to receive addition information or material from the Solve ME/CFS Initiative. At any time you can also make an opt-out request, amend or correct your personal information maintained by SMCI by calling us at 704-365-2343.

Changing your Information
If at any time you wish to make changes to the personal information previously provided, we will take steps to verify your identity before making any corrections. You will be asked specific reference questions including full name, address, phone numbers and email address, if applicable.

Aggregate Information
In addition to information provided by our visitors, we track site visits using normal Internet tracking tools to help manage our system and better serve our community. This information is used for reporting purposes only and includes information such as: total number of visits, most visited sections, peak traffic times, browser versions, search terms used and average duration of visit.

Donors Information
The Solve ME/CFS Initiative will not share or sell a donor’s personal information with anyone else, nor send donor mailings on behalf of other organizations.


This site contains links to other, third-party sites. The Solve ME/CFS Initiative is not responsible for privacy practices or the content on these linked Web sites.

Data Security
To prevent unauthorized access and maintain data security, we have put in all reasonable physical, electronic, and managerial procedures to safeguard information collected online. Techniques employed include but are not limited to: user authentication, encryption, firewall technology and the use of detection software. SMCI assumes responsibility for identifying information that must be protected and provides adequate levels of protection for all data collected.

All online payments/donations are processed through PayPal, and credit card information is not retained. All supporting documents for donations mailed to us are shredded.

Our Commitment to Youth Privacy
We recognize the particular importance of protecting privacy where children are involved. We do not knowingly collect personally identifiable information, including names or addresses and/or credit card information on our website from those under the age of 13.

A special section of our website has been created to provide information to young people with ME/CFS addressing their unique needs, questions, and concerns. We do not collect, use or disclose personally identifiable information from children; or give children the ability to publicly post, directly communicate with others or otherwise distribute personally identifiable information.

Notice to Parents: If you have any questions regarding the security of our site contact us by mail at 5455 Wilshire Blvd, Suite 806, Los Angeles, CA 90036, by phone at 704-364-0011 or by email at

Notification of Changes
In the event the Solve ME/CFS Initiative makes any changes to its privacy policy, we will post those changes in the News section of our homepage and will use information in accordance with the privacy policy under which the information was collected.

How to Contact Us
Should you have any questions about our privacy policies, please send an email to with Privacy Policy in the subject line, or you can reach us by mail at 5455 Wilshire Blvd, Suite 806, Los Angeles, CA 90036 or by phone at 704-364-0011

General Disclaimer
The Solve ME/CFS Initiative, Inc. serves as a clearinghouse for information on Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS). Ideas expressed within the SMCI website, print publications or materials, or monthly e-newsletters are strictly those of the authors or quoted individuals. SMCI assumes no liability for any medical treatment or other activity undertaken by individuals and encourages you to seek advice from a licensed health care professional before beginning any new medication, supplement, treatment, therapy, or exercise regime. SMCI does not recommend, endorse, make any warranties or representations with regard to any of the materials, products or services provided by companies or organizations referred to in this website, print publications or materials, or e-newsletters.

Permission is granted to copy or quote from this site for non-commercial purposes only, provided the intended meaning is preserved and proper credit is given to the Solve ME/CFS Initiative (and author if applicable), including  mailing address (5455 Wilshire Blvd, Suite 806, Los Angeles, CA 90036), website url (

Gifts to SMCI are gratefully acknowledged and tax-deductible to the full extent allowed by law. A copy of our latest audited Financial Reports may be obtained here

The latest registration and financial information filed by the Solve ME/CFS Initiative, Inc., may be obtained by contacting the Solve ME/CFS Initiative, email Registration in any state does not imply endorsement.