Research 1st: The Solve ME/CFS Initiative monthly enewsletter. May 2017. This month provides updates on the NIH grant process, ME/CFS Advocacy week, recent publications and conferences.

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Dear Friends,
 
May 2017 is an important month for ME/CFS for many reasons. May 12th commemorated ME/CFS awareness day, an occasion that was promoted this year by the CDC, the NIH, and the states of California and Massachusetts. It is also the month when 1) Numerous applications for the prospective NIH consortiums on ME/CFS were submitted; 2) A new research grant competition cycle was launched through our Ramsay Awards; 3) Thousands of messages were sent to congress to support 53 ME/CFS advocates who converged on capitol hill for a week of intense advocacy that featured an ME/CFS  congressional briefing; 4) An expert panel that is entirely focused on ME/CFS will be convened next week at the prestigious Precision Medicine World Conference (PMWC); 5) and an annual meeting organized by Invest in ME Research is taking place in London at the end of the month. That is in addition to numerous features….  READ MORE

Yours,

Zaher Nahle
Chief Scientific Officer
Vice President for Research 
Solve ME/CFS Initiative

SMCI Collaborates in the Publication of New ME/CFS Pediatric Primer with Dr. Peter Rowe

A new primer focusing on the pediatrics aspect of ME/CFS was recently accepted for publication in the Journal Frontiers in Pediatrics. The work was the vision of colleagues at of the New Jersey ME/ CFS Association who assembled a team of experts to develop this material. Only through collaborations where different entities come together to realize a project like this will we advance the knowledge about this disease. Dr Peter Rowe, lead author of this primer, and a member of the SMCI research Advisory Council… READ MORE

Forging New Paths: Cort Johnson Features Dr. Zaher Nahle and SMCI Bioenergetics Research Program

The last segment of a three-part series covering SMCI in Health Rising highlighted the leadership Dr. Zaher Nahle has provided at SMCI and in the ME/CFS research space.  This series of articles was published by Cort Johnson, lead writer and founder of Health Rising, an online publication “dedicated to providing timely, accurate information to people with chronic fatigue syndrome (ME/CFS) and fibromyalgia.”  Cort himself is an ME/CFS patient and a respected figure in the ME/CFS community. He gives high praise to Dr. Nahle’s influx of strategic decisions and holds optimism for the potential of Dr. Nahle and the Solve ME/CFS Initiative going forward. 
Check out the article at: https://www.healthrising.org/blog/2017/05/16/smci-nahle-chronic-fatigue-syndrome-energy-immune-focus/

Dr. Nahle to Speak at Global ME/CFS Conference

Invest in ME Research (IIMER) is a UK charity which assists and funds biomedical research into ME/CFS as well as engaging in education and lobbying.  This charity hosts an annual international biomedical research conference with the goal of increasing global collaboration in solving ME/CFS.  Dr. Zaher Nahle, chief scientific officer and vice president for research is scheduled to present at the invitation-only research colloquium to the leading ME/CFS researchers, physicians, patient groups and journalists from around the world. READ MORE

On a Mission to Educate: SMCI Continues to Engage Worldwide Scientific Leaders

This month, SMCI chief scientific officer and vice president for research, Dr. Zaher Nahle, makes an east coast tour with two speaking engagements to world leaders in disease and biomedical research. In Washington DC, Dr. Nahle joined individuals from the Rare Disease Legislative Advocates and the Everylife Foundation to discuss the best ways in which scientists and policymakers must work together. The following week, Dr. Nahle chairs the exclusive panel called “ME/CFS: The Mysterious Illness Science has Yet to Unravel” with Dr. Anthony Komaroff of Harvard University and John Nicols, president and CEO of Codexis and an SMCI board member. Drawing over 8,500 research and science professionals… READ MORE

Important Study Exploring Connection of Gut Bacteria to ME/CFS

A new study just released, “Fecal Metagenomic Profiles in Subgroups of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" revealed information that may enable more accurate diagnosis and lead to the development of specific therapeutic strategies in ME/CFS subgroups. READ MORE
SMCI President Carol Head and MEAction Co-founder Jennifer Brea meet with CA Senator Feinstein’s office.

ME/CFS Advocacy Week: Together We Are Strong!

The events in Washington DC this week marked the culmination of over five months of planning as SMCI led two weeks of actions online, locally, and the Capitol building itself. Together with our partners at #MEAction, we built a national coalition to celebrate International ME/CFS Awareness day, drive action in key areas of US policy, and make the voices of people with ME/CFS heard in the halls of Washington. READ MORE

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