SMCI project updates from the board of directors and Capitol Hill. 

 

31 Members of Congress Join ME/CFS Appropriations Effort

Last week, Congresswomen Lofgren and Eshoo again championed ME/CFS. This time, their letter to the leaders of the House Appropriations committees for ME/CFS targets the Congressional budget process to fight for language that supports ME/CFS investments. With only 4 working days, SMCI and advocates from around the country mobilized to secure 31 total supporters, with participation from both parties. Look for more updates as the congressional budget process continues. If one of your members of congress joined this effort, it would help us  grow support if you thanked them personally by email or phone! Find out if your representative joined by viewing the letter here

SMCI board looks to the future

For two intense days, the board of directors of the Solve ME/CFS Initiative gathered in Los Angeles to review the organization’s projects, budget, and plan for the future. The board unanimously approved a 3-year strategic vision to lead SMCI’s efforts through 2020. Every board member is a patient or has a close family member who is a patient. We are grateful for the volunteer effort of these highly capable individuals.  For more information about the SMCI board of directors, please visit: http://solvecfs.org/board-of-directors/

Pictured Left to right: Front row, Acting Board Chair John Nichols, Mike Atherton. Back row: SMCI President, Carol head, Chris Williams, Beth Garfield, Rick Sprout, Mary Dimmock, William Hassler, Diane Bean, Staff member SMCI Chief Scientific Officer and VP of Research Dr. Zaher Nahle. Not pictured: Board Chair Vicki Boies, Sue Perpich, Brett Balzer, Aaron Paas, Fred Friedberg, and Steve Curry.

Welcome to the board, Steve!

Business owner and ME/CFS patient Steve Curry, joined our board of directors last month and participated in last week’s board meeting providing guidance and vision to SMCI. Steve Curry of Minnesota is president and owner of Curry Sales and has more than thirty years of experience leading a highly successful retail business. A married father of four, Steve has been disabled with ME/CFS since 2007 and is a longtime supporter of the Solve ME/CFS Initiative (SMCI). Read more about Steve in his Humans of ME/CFS Story at: http://homecfs.solvecfs.org/steve_c.html

ME/CFS Advcoacy Week Update

SMCI, with our partners at #MEAction will be traveling to DC with 55 advocates representing 21 states, territories and districts to storm Capitol Hill on May 17th. SMCI/#MEAction expect to schedule over 85 meetings throughout the day with congressional offices.  Additionally, there will be a briefing for congressional members and staff on Thursday to further educate them about this disease. Miss the chance to sign up? Don’t worry! You can still participate in a district meeting where YOU live, online social media campaigns, and call-in actions. Sign up here to get more information about how to join the effort: here.
The work of SMCI is entirely fueled by gifts, large and small, from people just like you.