Prominent ME/CFS Advocates, Including SMCI President Carol Head, to Meet with Senior HHS Officials
Solve ME/CFS Initiative (SMCI) President Carol Head and prominent ME/CFS advocates Jen Brea of #MEAction, Mary Dimmock, Jennie Spotila, and Terri Wilder will meet with Karen B. DeSalvo, M.D., M.P.H., M.Sc., acting assistant secretary for health (ASH) at the Department of Health and Human Services (HHS), this August.

For more on this meeting, including specific agenda topics, visit the article on our website.
Severe ME Day Is Monday, August 8
While ME/CFS is a devastating and debilitating disease that deeply affects the lives of all afflicted with it, levels of severity vary from patient to patient. August 8, Severe ME Day, exists to create and raise awareness for those who suffer severely—those who are house- or bedridden, cannot tolerate even small amounts of light and/or sound, or may not be able to feed or groom themselves.

August 8 was chosen because it is the birthday of Sophia Mirza, a UK ME/CFS patient who died in 2005 from an ME/CFS-related complication at the age of 32. 
Save the Date! It’s #MillionsMissing 2.0!
This September 27, there will be a second #MillionsMissing protest. The first #MillionsMissing protest, led by #MEAction on May, 25, 2016, set out to increase ME/CFS awareness across the globe while demanding increased governmental funding and program investments, clinical trials, accurate medical information, and a serious commitment to address ME/CFS. The protest took place in over 13 cities across the globe, was mentioned 100,000 times on social media, and garnered 38,000 signatures. SMCI President Carol Head gave a rousing speech at the San Francisco demonstration, which you can watch on YouTube here

This year, Carol Head will once again be speaking at a protest city TBD. Details are still unfolding. To learn more about these protests, you can visit millionsmissing.meaction.net.  
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