HHS Meeting Update
Earlier this week, Jen Brea, Terri Wilder, Carol Head, Jennie Spotila, and Mary Dimmock met with Dr. Karen DeSalvo, acting assistant secretary for health. The purpose of the August 1 meeting was to impress upon Dr. DeSalvo how woefully inadequate the response to this disease from the U.S. Department of Health and Human Services (HHS) has been—that it is still too slow and too little—and to call on HHS to dramatically step up its commitment to ME. To read more, click here.
Important Change to 2016 Webinar Series
The webinar with Mady Hornig, MA, MD, originally scheduled for August 18 has been postponed in order to include not-yet-released study findings. We will let you know once this webinar has been rescheduled. 

Instead, Maureen Hanson, PhD, will lead a webinar discussing her recent study on intestinal bacteria and the role it may play in ME/CFS on Thursday, September 1, at 3:00 p.m. ET/noon PT. 

The following week, we will welcome Beth Unger, MD, chief of the Chronic Viral Diseases Branch (CVDB) of the Division of High-Consequence Pathogens and Pathology (DHCPP) at the National Center for Emerging and Zoonotic Infectious Diseases (NCEZID), a part of the Centers for Disease Control and Prevention (CDC). 

To attend either of these informative webinars, please sign up here

Severe ME Day Is Next Monday
This Monday, August 8, is Severe ME Day. As mentioned last week, Severe ME Day exists to create and raise awareness for ME/CFS patients who suffer severely—those who are house- or bedridden, cannot tolerate even small amounts of light and/or sound, or may not be able to feed or groom themselves. 

Do you have a friend or family member with severe ME? Help your loved one share his or her personal story on our Humans of ME/CFS website (located at homecfs.solvecfs.org). A campaign to increase understanding of myalgic encephalomyelitis/chronic fatigue syndrome, Humans of ME/CFS is a platform for patients to share their stories with the world. 

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