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MAY 2016

RESEARCH 1ST NEWS | MAY 2016

Last month I shared with you our news on the Robert Wood Johnson Foundation PEER award for a national registry for ME/CFS patients. This month, I have two additional developments at the Solve ME/CFS Initiative to share with you.

First, I am glad to announce that the Solve ME/CFS Initiative is launching a new program, a research grants competition open to basic scientists and clinical researchers interested in studying ME/CFS. We plan to make grant awards annually. Individual awards in 2016 will range between $35,000 and $55,000, made for a one-year period, with the possibility of renewals to projects yielding promising results. Submitted proposals will undergo a rigorous, peer-review process to select the most meritorious applications. The program is part of our organization’s research strategy to encourage participatory investigations, accelerate new discoveries and reduce barriers for entry into the challenging field of ME/CFS. Read More...

Yours,

Zaher Nahle
Vice President for Research and Scientific Programs
Solve ME/CFS Initiative

RESEARCH ROUNDUP

 

Solve ME/CFS Initiative Announces New Research Grants Program

The Solve ME/CFS Initiative is launching the Ramsay Award Program, a research grants competition open to basic scientists and clinical researchers interested in studying ME/CFS. The award is named after Myalgic Encephalomyelitis pioneer Dr. A. Melvin Ramsay, who was the recognized authority in ME from 1955 until his death in 1990, and whose sound descriptions of the disease have stood the test of time.


TO READ MORE, GO HERE.

 

Solve ME/CFS Initiative Announces New Research Advisory Council

The Solve ME/CFS Initiative is proud to announce its new Research Advisory Council (RAC). The members are:

Research Advisory Council

Anthony Komaroff, MD
Simcox-Clifford-Higby Professor of Medicine
at Harvard Medical School
Senior Physician at Brigham and Women’s
Hospital
Boston, Mass.

TO READ MORE, GO HERE.

 

RESEARCH ROUNDUP

 

SMCI Receives Generous Anonymous Gift

The Solve ME/CFS Initiative is pleased to announce an anonymous donor gift in the amount of $150,000 received last month. The same anonymous donor has supported our organization generously for many years and has increased the gift this year following extensive discussions with President Carol Head and Zaher Nahle, Vice President for Research and Scientific Programs. We are grateful for the generosity of these gifts, which allow us to continue our work in research and advocacy as we fight to solve ME/CFS.


 

Zaher Nahle Meets with CDC Officials

On May 28, Dr. Zaher Nahle visited the Centers for Disease Control and Prevention, where he gave a presentation on current ME/CFS affairs to the research group studying ME/CFS at the agency. He also updated them regarding new research efforts at SMCI, including metabolomics, functional genomics and a national patient registry.

TO READ MORE, GO HERE.

 

RESEARCH ROUNDUP

 

Dr. Nahle with Dr. Ralph Garippa, MSKCC laboratory member and head of the RNAi core, and Dr. Myles Fennell, senior research scientist, at MSKCC

Zaher Nahle Meets with MSKCC on Genomics Project

On May 29, Dr. Zaher Nahle, Vice President for Research and Scientific Programs, met with collaborators at Memorial Sloan Kettering Cancer Center (MSKCC) to finalize a new functional genomics project on ME/CFS that is being developed by the Solve ME/CFS Initiative. More details will be forthcoming on this effort, which is focused on biomarker identification and defining functional culprits in the pathophysiology of ME/CFS using large scale, whole genome microRNA screens. This new project is a preliminary component of SMCI’s new comprehensive Bioenergetics project.

 

NEWS AND EVENTS

 

Help Mark ME/CFS Awareness Day

May 12 is International Awareness Day for ME/CFS. The day was chosen as it is the birthday of Florence Nightingale, who was believed to have suffered from ME/CFS.

“There are ‘awareness events’ for so many diseases that are, in fact, very well known,” says Solve ME/CFS President Carol Head. “An AWARENESS day for ME genuinely is very much needed as so many are utterly unfamiliar with this disease and its devastating effect on so many patients.”

TO READ MORE, GO HERE.

 

Register for May 19 Webinar with Dr. Jarred Younger

On May 19, the Solve ME/CFS Initiative will feature a webinar with Jarred Younger, PhD, Associate Professor in the Departments of Psychology, Anesthesiology and Rheumatology in the University of Alabama at Birmingham. Dr. Younger established the Neuroinflammation, Pain and Fatigue Laboratory at UAB, where he oversees the development of new diagnostic tests and treatments for chronic pain and fatigue disorders. Our free webinar will take place at 1 p.m. Eastern time. To register, go here.

TO READ MORE, GO HERE.

 

SUPPORT US

 

To support our important work, please visit SolveCFS.org/Donate. Consider joining our Sustainers Circle, where your monthly gift ensures we can move forward toward making ME/CFS understood, diagnosable and treatable. It is donations from people just like you that make progress possible.

Thank You!

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Please feel free to contact our office if you have any questions.
Phone: 704-364-0016
Email: Research1st@solvecfs.org
5455 Wilshire Blvd., Suite 806, Los Angeles, CA. 90036

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