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JUNE 2016

RESEARCH 1ST NEWS | JUNE 2016

On the third of June, I had the opportunity to participate in a medical conference dedicated to ME/CFS, organized by the UK Charity, Invest in ME-Research. In addition, I took part in a two-day colloquium held immediately prior to the conference, also in the great city of London. International meetings like this reinforce the realization that our disease is a global threat that recognizes neither borders nor boundaries. It devastates the life of its victim regardless of ethnicity, race or national origin. In many ways, ME/CFS is an equal-opportunity destroyer, not sympathetic to an age group or deterred by the individual’s knowledge, status or occupation. It afflicts all kinds of people and can impose a life sentence of pain and suffering whether you live in Stockholm, Sydney or San Francisco Read More...

Yours,

Zaher Nahle
Vice President for Research and Scientific Programs
Solve ME/CFS Initiative

RESEARCH ROUNDUP

 

Significant Forward Movement: NIH Approves New Consortium for ME/CFS

On May 26, NIH’s National Advisory Neurological Disorders and Stroke Council (NANDSC) voted unanimously to support a new consortium effort for ME/CFS. The vote, which was captured via live feed from the NIH headquarters in Bethesda, Md., gave the NINDS the green light to build a new research infrastructure for ME/CFS.


TO READ MORE, GO HERE.

 

NIH Issues Request for Information for ME/CFS

The National Institutes of Health has issued a Request for Information (RFI) to help identify research areas and topics to be included in strategies to advance research efforts on ME/CFS.

Through the RFI, the Trans-NIH ME/CFS Working Group is asking for input from anyone with an interest in the NIH’s research efforts on ME/CFS...


TO READ MORE, GO HERE.

 

RESEARCH ROUNDUP

 

Solve ME/CFS Initiative Takes Part in #MillionsMissing Protest

On May 25, the Solve ME/CFS Initiative took part in the international #MillionsMissing protest, organized by #MEAction. To our knowledge, this is the largest protest for this disease ever.


TO READ MORE, GO HERE.

 

SMCI’s Research Program: Spotlight on Bioenergetics

Bioenergetics is the field of science that describes the underlying biochemical activities of energy production needed for all cognitive and physiological activities. Bioenergetics includes many complex and interconnected regulatory systems at the cellular level but also across the whole organism.


TO READ MORE, GO HERE.

 

NEWS AND EVENTS

 

Update on SMCI National Patient Registry

The Solve ME/CFS Initiative has begun work on the construction of a new ME/CFS registry. A registry is an important tool for research on any disease, and despite repeated recommendations from CFSAC that the federal government fund an ME/CFS patient registry, it has never occurred. Our organization has taken it on as a shared resource for all, despite our limited resources.


TO READ MORE, GO HERE.

 

Report from the Invest in ME Research Conference in London by Dr. Zaher Nahle

The conference and associated colloquium (BRMEC6, Biomedical Research for ME Colloquium 6) organized in London by Invest in ME-Research, a UK-based charity, June 1-2 were very successful and attracted participants from all over the world. The event covered a range of topics in ME/CFS translation and basic research.


TO READ MORE, GO HERE.

 

RESEARCH ROUNDUP

 

Read Dr. Zaher Nahle’s Opinion Piece Published in International Journal

Dr. Zaher Nahle, the Solve ME/CFS Initiative’s Vice President for Research and Scientific Programs’ article was published in the Spring edition of the international journal, Invest in ME Research. The journal is the edition that coincided with the 2016 International ME Conference. To view the article, go to Page 20 of the PDF.

Dr. Nahle attended the conference, which took place in London (See related story).

 

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Thank You!

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