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AUGUST 2016

RESEARCH 1ST NEWS | AUGUST 2016

Dear Friends,

As summer is winding down, l’d like to update you on the status of the Ramsay Award Program launched just a few short months ago. This grant opportunity is part of our 2016 research strategy to encourage participatory research, accelerate the discovery process, and reduce barriers to entry into the field for scientists anywhere in the world interested in studying ME/CFS.

The response to this initiative has been heartening, first and foremost debunking the notion put forth by government administrators for years: that ME/CFS researchers are not interested in submitting grant applications. Read More...

Yours,

Zaher Nahle
Vice President for Research and Scientific Programs
Solve ME/CFS Initiative

RESEARCH ROUNDUP

 

SMCI Supports the 21st Century Cures Act

This pending legislation has significant importance for ME/CFS. We wholeheartedly support this bill and invite you join us in support.

TO READ MORE, GO HERE.

 

Neuromuscular Strain in ME/CFS – Research Study Conclusion

A new study, partially funded by Solve ME/CFS Initiative (SMCI), published by Dr. Peter Rowe of Johns Hopkins and colleagues in the journal PLoS One supports previous observations by the group that increased mechanical sensitivity may be a contributor to the onset of ME/CFS symptoms.


TO READ MORE, GO HERE.

 

RESEARCH ROUNDUP

 

Gut Microbiome and ME/CFS - Research Study Conclusion

Recent work from the Hanson group at Cornell University addressing the potential contribution of gut microbiome to the pathophysiology of ME/CFS was published recently in the journal Microbiome.


TO READ MORE, GO HERE.

 

CDC Workgroup on ME/CFS Update

The Centers for Disease Control and Prevention (CDC) has announced that the first in-person meeting of its newly formed Technical Development Workgroup (TDW) for ME/CFS will take place in September 2016.


TO READ MORE, GO HERE.

 

NEWS AND EVENTS

 

Solve ME/CFS Initiative Announces Its meetME Travel Awards

The Solve ME/CFS Initiative is launching the meetME Travel Award Program to facilitate the participation of junior scientists and underrepresented groups in meetings and conferences focused on ME/CFS.


TO READ MORE, GO HERE.

 

Help Us Put ME/CFS on the Map

Many people are still unaware of the prevalence of ME/CFS. As they say, seeing is believing—so let’s help show everyone just how widespread this devastating disease is. If you haven’t already done so, please head to DiseaseMaps.org and declare that you have “Chronic Fatigue Syndrome/ M.E” (as this is the exact listing the website uses). You can join DiseaseMaps.org via Google, Facebook, or email, and a full name isn’t required. Make your voice heard!


 

NEWS AND EVENTS

 

NIH RFI Responses Published

On July 25, 2016, the Trans-NIH Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Working Group published submissions to the first ever Request for Information (RFI) regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) released by the National Institutes for Health (NIH) on May 24, 2016.


TO READ MORE, GO HERE.

 

Save the Date! It’s #MillionsMissing 2.0!

This September 27, there will be a second #MillionsMissing protest. The first #MillionsMissing protest, led by #MEAction on May, 25, 2016, set out to increase ME/CFS awareness across the globe while demanding increased governmental funding and program investments, clinical trials, accurate medical information, and a serious commitment to address ME/CFS.


TO READ MORE, GO HERE.

 

SUPPORT US

 

To support our important work, please visit SolveCFS.org/Donate. Consider joining our Sustainers Circle, where your monthly gift ensures we can move forward toward making ME/CFS understood, diagnosable and treatable. It is donations from people just like you that make progress possible.

Thank You!

GET CONNECTED

You can get news and updates daily following us on your favorite social network.

Please feel free to contact our office if you have any questions.
Phone: 704-364-0016
Email: Research1st@solvecfs.org
5455 Wilshire Blvd., Suite 806, Los Angeles, CA. 90036

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