Research 1st News  |  January 2015   
Your free and informative monthly e-newsletter from the Solve ME/CFS Initiative. Please forward to a friend and invite your family and friends to subscribe.
It is a new year and for us it brings renewed energy, a reinvigorated hope and a team at SMCI that is ready to charge forward toward better understanding, diagnosis and treatment for ME/CFS.

In this issue we bring you information on the research front, federal activities, engaging ME/CFS articles, a chance to help frame our 2015 webinar series, an opportunity to weigh in on ME/CFS Centers of Excellence and more.

Our final destination is a world free of ME/CFS and I am so honored to be on this journey with you. Onward!

Carol E Head
President and CEO
Research Digest - January: High Interest in ME/CFS Shown in Journal Rankings

Deciphering PEM is a critically important area of research for ME/CFS. Despite the lack of gravity and specificity a term like “post exertional malaise” signifies, research into what it is and how to measure it is some of the most important research - and most popular. The Journal of Translational Medicine ranked two articles dealing with ME/CFS among its most highly accessed for 2014. 


We are thrilled to announce the
Dr. Ralph & Marian Falk Medical Research Trust has awarded $500,000 to the Solve ME/CFS Initiative to further our epigenetic research. 


The CFS Advisory Committee (CFSAC) has established a Working Group for generating compelling arguments for the establishment of Centers of Excellence within the United States for the care of patients with ME/CFS and to research the etiology of the illness. 

To that end, an online survey instrument has been created to garner responses from patients internationally so that international comparisons can be made and we are pleased to circulate it in order to garner a strong response.


Access the survey directly HERE:


In 2014, SMCI held a monthly webinar series that was very well received. If you missed a session, you can access the recordings HERE.

We are now planning our 2015 schedule and we want to hear from you! Take a few minutes to answer just 2 questions that will help us plan a webinar series that you won't want to miss!



Important ME/CFS Federal Updates:

The IOM Committee on the Diagnostic Criteria for ME/CFS will hold a public release event for its consensus report on February 10th, 2015 from 11:00 am-12:00 pm EST. Participants may attend live or view via webstream. 
We first brought you news of the IOM Committee’s charge in October of 2013. The process has been highly scrutinized and widely debated, but SMCI has remained cautiously optimistic. After 16 months of watching and waiting, the committee’s report is to be released a month earlier than originally expected. In addition to making diagnostic criteria recommendations, they could propose the adoption of a new name for ME/CFS.

On 1/13/2015, the CFSAC met and finalized its response and feedback to the P2P draft report. SMCI participated in the process, with Carol Head, president and CEO, serving on the CFSAC working group. SMCI endorsed the CFSAC response in its feedback to the P2P report. LEARN MORE...
Guest Blog: Armin Alaedini, PhD - The Search for Food Sensitivity Biomarkers in ME/CFS
Often those with ME/CFS experience gastrointestinal symptoms. Biomarkers of these symptoms could help to identify subtypes in ME/CFS. Dr. Armin Aledini is using samples from the SolveCFS BioBank™ to look for auto-antibodies against a range of dietary proteins. In this guest blog post he discusses Celiac disease, which is a commonly misdiagnosed condition with symptoms similar to ME/CFS. READ MORE...
ME/CFS In Medical News
On January 8th, 2015, Miriam E. Tucker published an article in MedScape entitle Chronic Fatigue Syndrome: Wrong Name, Real Illness. In it, among other things, she emphasizes that ME/CFS is real and serious. The article remains one of the most popular on Medscape with more than 350 comments and counting. READ MORE...
In order to access the article, you will need to create a free account on Medscape.

“Beyond Tired”, an article by Kirsten Weir, appeared on the American Psychological Association’s website in October of last year. We reported on this important article on our blog HERE. It sought to highlight the biological factors of ME/CFS and dispel the myth among many psychologists that CBT is a cure.

These two important articles, in well-respected medical journals, represent an important shift. 

You may enjoy reading a Health Rising blog on these articles and his conclusion that the tide is changing...

At the Solve ME/CFS Initiative, we are about turning hope into action. It is donations from people just like you that make progress possible.  You can help ensure our work to make ME/CFS understood, diagnosable and treatable not only continues but accelerates by making a donation today.

Please consider joining our Sustainer's Circle, choosing to give monthly. Visit solvecfs.org/donate and get started today.

Thank you!