Research 1st News  | April 2015   
Your free and informative e-newsletter from the Solve ME/CFS Initiative. Please forward to a friend and invite your family and friends to subscribe.
The publication of the IOM report on myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is one of the most important days in the history of our illness. With its pre-eminent roster of scientists and experts, rigorous methodology and forthright conclusions, this is the substance our community has long needed.

It is clearly time for our federal government to dramatically increase funding and support for this disease. We believe the IOM report is a turning point in the history of ME/CFS and that it must move from written report into action. ME/CFS/SEID is a medical problem that simply must be solved.

In this issue, you can learn more about the briefing we held in Washington D.C. concerning the IOM report and read the first part of our 5-part series breaking down its complexities. 

For far too long, those who suffer with ME/CFS have been inhumanely dismissed, funding has been far too low, progress has been far too slow. We continue to leverage our limited resources as effectively as possible, driving forward toward a day when ME/CFS is eradicated. We are so thankful to have you as a part of this community.

Carol E Head
President and CEO
SMCI Comment on the IOM Report, part One of Five
By Suzanne D. Vernon, PhD

Redefining an Illness
In February, the IOM released its landmark report on ME/CFS [SEID]. In this first of a five-part blog series, Dr. Suzanne D Vernon, SMCI Scientific Director breaks down the report piece by piece.

In the first piece in the series, Dr. Vernon makes the critical distinction between a research case definition and clinical diagnostic criteria.  Read More...

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2015 SMCI Webinar Series
Save the Dates!

April 17, 1pm EST
Dr. Lucinda Bateman
Will SEID Diagnostic Criteria Improve Diagnosis and Treatment?


June 18, 1pm EST
Dr. Lily Chu
Post-Exertional Malaise: Characteristics and Research Findings


More webinars will be announced soon. These FREE, regular webinars will continue through the end of 2015, so stay tuned and make plans to join us for them all.


Registration information
coming soon!

Stay tuned to our Facebook page and our blog for registration notification and the link




In the IOM report, the committee proposed new diagnostic criteria in the hopes of facilitating timely diagnosis and care and enhancing understanding among health care providers and the public. The clinicians guide is intended to help primary and specialty care clinicians better understand this complex, debilitating, and often-misunderstood disease.


Share it with your healthcare team!

Solve ME/CFS Initiative Hosts Important IOM Briefing in D.C. 

On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., in an effort to move the IOM report on ME/CFS/SEID into action. 

The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head, SMCI president and CEO, made a strong and compelling call for more federal research funding. 


Access the webcast recording HERE

Review the presentations slides and access Carol Head's comments HERE

Looking for a new way to support the crucial work of the Solve ME/CFS Initiative? 

Interested in inviting your family and friends to join you in making a real difference for all those impacted by ME/CFS?

Join SMCI board members, ME/CFS patients and family members who are jumping into peer-to-peer fundraising on Crowdrise.com. Visit our profile page on Crowdrise to learn more, then contact us if you need help to get started! 

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