Research 1st News  |  December 2014   
Your free and informative monthly e-newsletter from the Solve ME/CFS Initiative. Please forward to a friend and invite your family and friends to subscribe.
Each month we bring you important research news, resources, and information to inform and empower you. This month's issue is full of more of the same, but as we head into the holiday season I want to pause and wish you the best of the holidays. 

May your New Year be filled with hope and promise.

Our final destination is a world free of ME/CFS and I am so honored to be on this journey with you.

Warmest regards and sincere appreciation!

Carol E Head
President and CEO
Research Digest - December: Top 10 Advances in ME/CFS Research
While progress is still far too slow, there have been many recent interesting and important advances in ME/CFS. In this year-end blog post, Drs. Vernon and Komaroff summarize what they regard as the most important recent advances in our field.

You can also learn more about the top advances in ME/CFS Research in the recording of our final webinar of 2014, available HERE

The presentation slides are available HERE

We are thrilled to 
announce that the 
Dr. Ralph & Marian Falk Medical Research Trust has awarded $500,000 
to the Solve ME/CFS Initiative to further our epigenetic research. 

When Danielle, the sister of our board member Aaron Paas, became ill with ME/CFS, like so many patients she went from vibrant and busy to severely ill and debilitated almost overnight. 
Aaron and his wife, Haley, wanted a powerful way to help people understand a little bit about what Danielle’s life is really like. 
For the millions of ME/CFS patients throughout the world, the Solve ME/CFS Initiative is working on the ultimate gift: making ME/CFS understood, diagnosable, and treatable.

We're excited to announce that a generous donor has offered a $50,000 Matching Gift Promise through December 31, 2014.

That means that your $2,500 gift becomes $5,000; your $500 gift becomes $1,000; and your $25 gift becomes $50.

As we look forward to supporting a robust research program in 2015, every dollar counts. If you've already made a gift, words cannot express our gratitude. If you've been thinking of making a year-end gift or making an additional gift, please consider doing it now and making it count twice!

Funding Research to Inform the Path Forward
The Solve ME/CFS Initiative (SMCI) began funding research into ME/CFS as soon as it was founded in 1987. But the first competitive funding opportunity occurred in 2008, followed by another competitive funding cycle in 2011. 
With an innovative, collaborative approach, and Dr Vernon’s knack for recruiting leaders into the field, SMCI has begun to bring important discoveries to light. 

In this two part blog series we explore our funded research projects in more depth. 
Being Patient Centric
Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. 
Restructuring Medical Research
In the US, it takes an average of 12 years for an experimental drug to travel from the laboratory to your medicine cabinet; the chance for a new drug to actually make it to market is only 1 in 5,000. Diagnosis takes far too long and treatment options for people with ME/CFS have not improved much. So how can the status quo be changed? 

In this post, we discuss the need to restructure medical research. 
P2P Draft Report - 30 Days for Feedback
On December 9 & 10, the Pathway to Prevention Workshop for "Advancing the Research on ME/CFS" was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. 

The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings and READ MORE...
As we approach year end, you may be considering giving to a charity that is close to your heart - and we hope that is SMCI. It is donations from people just like you that make progress possible. No gift is too big or too small. You can help ensure our work to make ME/CFS understood, diagnosable and treatable not only continues but accelerates by visiting and making a contribution by December 31st.

Thank you!