On March 25, the Solve ME/CFS Initiative will host a briefing on the Institute of Medicine report in Washington, D.C. The briefing, which will include media, congressional leaders and executive branch decision-makers, is intended to further the IOM report momentum and turn the report into action, particularly by urging additional federal research funding.
The briefing will feature three speakers:
- Morgan Fairchild, Actress, Activist and Former Patient
- Dr. Ellen Wright Clayton, Chair of the IOM Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
- Carol Head, Solve ME/CFS Initiative President/CEO
While the briefing is by invitation-only due to the limited capacity of the venue, we will webcast the event so that all in our community can participate. Please register here for the webcast. We strongly recommend that you test your computer’s ability to stream the event ahead of time. We have included a link to a system check at the bottom of the registration page.
We also plan to include a slide display before the briefing with quotes from patients that answer the question, “What would you do if you were well?” Our hope is that the responses will demonstrate to those present the devastation and debilitation ME/CFS patients suffer as a result of the disease and why the need for more research funding is crucial. Please click here to respond – it will only take a moment:
The Solve ME/CFS Initiative is committed to ensuring that this landmark report will serve as a springboard to increased federal funding, better-educated clinicians, greater public understanding, quicker diagnosis, improved treatment, and above all, a cure.
Tags: 2015, Government Advocacy, IOM, IOM Committee, IOM Report, Morgan Fairchild, SEID, Systemic Exertional Intolerance Disease March 12, 2015