Meeting with an ME/CFS Champion in our Congress

Lofgren GroupPrior to last week’s federal CFSAC meeting, SMCI’s advocacy team visited with Congresswoman Zoe Lofgren of California who, together with colleague Congresswoman Anna Eshoo of California, sponsored the powerful congressional ME/CFS letter to National Institutes of Health (NIH) Director Collins in September 2016. Congresswoman Lofgren met with SMCI President Carol Head, SMCI Board Members Mary Dimmock and Diane Bean, and Diane’s daughter Lauren Bean, who suffers from ME/CFS. They discussed next steps for making progress in Congress for ME/CFS in 2017, including the potential formation of an ME/CFS caucus and a week-long Capitol Hill advocacy effort corresponding with International ME/CFS Awareness Day on May 12. SMCI and Congresswoman Lofgren are committed to working together strategically with advocates and organizations nationwide. Stay tuned for more updates from our SMCI advocacy team!

January 20, 2017