A Guidebook By and For Young People with CFIDS (YPWCs)
We have compiled this booklet of advice for you, a young person who has just entered the world of chronic fatigue and immune dysfunction syndrome (CFIDS).
This booklet is written by young people with CFIDS (YPWCs) for young people who have been recently diagnosed with CFIDS. Thinking back to the time when we first became ill, we remember feeling alone and afraid, confused and isolated and like no one understood. It was hard to understand what was happening and why, let alone trying to explain it to others.
Daily life with this disease can be overwhelming and it is especially difficult when you first become ill. Many people feel as though their lives have ended when so many things suddenly change for them. We want to share with you the things that we have learned after living with this illness ourselves. We want to share with you the knowledge that there is a life with CFIDS and that there are things that can make this life easier. We want to offer you a better understanding of what lies ahead and make the road that you find yourself on an easier one to travel.
Chelsea Berns, Jen Day, Lara Hardinge and Vanessa Matthews
The CFIDS Youth Ambassadors
Young Persons with CFIDS Answer Your Questions:
Disclaimer: This document serves as an information clearinghouse for young persons with CFIDS. The ideas expressed by each quoted individual are strictly his/her own. Some of the information contained herein is intended to help YPWCs make informed decisions about their health. However, The Solve ME/CFS Initiative does not dispense medical advice or endorse any specific medical hypothesis or product and assume no responsibility for any treatment or activity undertaken by readers of this document.
Permission is granted to copy this document in its entirety for non-commercial purposes providing the intended meaning is preserved and proper credit is given to The Solve ME/CFS Initiative, Inc. ©2001, The Solve ME/CFS Initiative, Inc.