Solve ME/CFS Initiative 2014 Webinar Series

October 17, 2016

Workplace-WebinarIn 2014,the Solve ME/CFS Initiative (SMCI) offered a free, monthly webinar series open to all. If you missed one of these great session you can access the great content at your convenience by clicking on the links below:

 

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2014 ME/CFS Research Review


HELD on Tuesday, December 16 , 2014
Video link 
2014 Research Summary Presentation – PDF

Solve ME/CFS Initiative leadership, Carol Head and Suzanne D Vernon, PhD, offered a summary of the progress and promise that has been shown through research efforts recently. The SMCI Research Institute Without Walls has allowed us to fund some of the best and brightest researchers, from leading institutions, without the cost of a bricks and mortar institute. SMCI fosters an innovative and collaborative environment and in this year-end review you’ll learn some of the tangible results of this work in a summary of the top discoveries in recent history.

 

Suzanne

Research Institute Without Walls – Progress and Promise

HELD on Thursday, July 31, 2014
Video Link

Suzanne D. Vernon, Ph.D., scientific director of the Solve ME/CFS Initiative will provide an update on the work being conducted through our Research Institute Without Walls. Participants can also expect to learn more about how the SolveCFS Biobank works and is attracting some of the brightest investigators from the best institutions to ME/CFS research.  You will leave with an understanding of what makes the SolveCFS BioBank unique, how to get enrolled and what to expect when you participate.  Vernon will also provide a sneak peek at some of the types of research being conducted on samples using the SolveCFS BioBank.

 

McGowan

Investigator Report: Epigenetics of ME/CFS

HELD on Thursday, August 21, 2014
Video Link

Patrick O. McGowan, Ph.D., is one of the Solve ME/CFS Initiative 2011 funded investigators.  McGowan is an assistant professor in the Department of Biological Sciences, University of Toronto at Scarborough.  He will talk about his latest results from our grant funding.  McGowan used blood samples from the SolveCFS BioBank to identify the chemical modifications (e.g., methylation) to the DNA that is different in ME/CFS patients compared to healthy people.  This type of research will help explain the immune dysfunction of ME/CFS.

Read our post about Dr McGowan’s research results HERE
Read Dr McGowan’s paper as published in PLOS ONE HERE
http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0104757

 

Dane-CookInvestigator Report: Deciphering Post-Exertional Malaise

HELD on Thursday, September 18, 2014
Video Link

Dane B. Cook, Ph.D. is assistant professor of Kinesiology at the University of Wisconsin, Madison.  Cook is one of the Solve ME/CFS Initiative’s 2011 funded investigators.  Cook will describe the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise.  This is critically important research for ME/CFS because as Cook notes, “You can’t begin to fix a problem like post-exertional malaise until you can understand its underlying cause.”

 

unutmazInvestigator Report: Decoding the Human Immune Response

HELD on Wednesday, October 1, 2014
Video Link

Derya Unutmaz, MD, is Professor of Microbiology, Pathology and Medicine at NYU Langone Medical Center.  Unutmaz is using samples from the SolveCFS BioBank to understand the “Good, Bad and Ugly” aspects of the immune response in ME/CFS.  Unutmaz hypothesizes that a disproportionate immune response leads to damage in ME/CFS.   He will describe what the immune signature of ME/CFS looks like compared to a healthy immune response.

 

PeterRoweInvestigator Report: Neuromuscular Strain in ME/CFS

HELD on Thursday, October 23, 2014
Video Link
Access a one-page handout that you can take to your healthcare provider HERE – Rowe_SkilledManualPT (pdf)

Peter Rowe, MD, who directs the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, describes some novel observations about restrictions in range of motion in the limbs and spine in those with ME/CFS. Many affected individuals have restricted movements and increased mechanical tension in nerves. Applying a further mechanical strain to the nervous system can provoke increased symptoms in some patients. These concepts are starting to help explain the pathogenesis of some symptoms and neurological abnormalities in the illness—not only how they might arise but also how we might treat them more effectively.

 

Bateman-4webCan ME/CFS and Fibromyalgia Research Help You Sleep?

HELD on Friday, November 14, 2014
Video Link
Access the slides from the webinar HERE: SMCI Sleep Webinar_Slides111414 (pdf)

Dr. Lucinda Bateman is one of the top ME/CFS clinicians in the US and conducts ME/CFS research with some of the brightest ME/CFS scientists.  She will tell us about the body systems that regulate and affect sleep and how these systems are affected in patients with ME/CFS and Fibromyalgia.  Dr. Bateman will discuss sleep research can translate into practical solutions and treatment in ME/CFS and FM.