Don’t Pay for Research Twice

The Solve ME/CFS Initiative believes taxpayers should have free access to the scientific research they’ve helped fund. Please join us to petition the Obama administration to ensure journal articles are available to all of us within one year of publication at no extra cost. The NIH has demonstrated this can work, with little impact on the scientific enterprise. We want other government agencies — like CDC and FDA — that fund research to require the same policy.

We believe in the power of open access to foster healthcare innovation, research and education. Researchers, clinicians, patients, caregivers and students should not be blocked by the high costs of access to research that could improve understanding of CFS and other disease states as well as treatment options and ways to improve care and save lives.

Here’s a short video that explains why we think this campaign is so important:

Take action by signing the Access2Research petition to make federally funded research freely available to taxpayers on the Internet in machine-readable form. 25,000 signatures in 30 days gets an official Administration response. Dozens of groups and organizations are working together to hit that number — blow it out of the water — to escalate this issue inside the White House. We believe the idea of requiring free access has support but is stuck. This could well be the event that gets it through.

Signing the petition requires three easy steps that take about 5 minutes to complete:

  1. create an account at the White House petition website (
  2. confirm the account by clicking on a link in your email
  3. sign the petition itself

You can also help with a blog post, an email, a tweet to encourage others to spread the word and sign the petition. Please share the URL with your friends and colleagues. Let’s work together to ensure that the valuable information we’ve paid for is available to all, not just those who have the budget for it.

Read more about our right to data from lybba, an organization working to transform healthcare for good. We’ve compiled these additional resources about open access.

Here are a couple more excellent blog posts that describe why open access is important to everyone, not just scientists:

May 21, 2012