Solve ME/CFS Initiative Joins Letter on CBT and GET

December 2, 2016

A letter jointly signed by the Solve ME/CFS Initiative (SMCI) and over 50 other ME/CFS organizations and advocates was sent to the Centers for Disease Control and Prevention (CDC) this week. The letter, authored by leading advocate and SMCI board member Mary Dimmock, calls for […]

Community Announcement on the October 24 DeSalvo Meeting

December 2, 2016

As reported in the August 5 update on the meeting between HHS and advocates for ME on August 1, Assistant Secretary of Health Dr. Karen DeSalvo had committed to follow up on specific actions and meet again in October. On October 24, Jen Brea, Terri […]

21st Century Cures Act Passes House with Overwhelming Bipartisan Support

December 2, 2016

ME/CFS advocates have been eagerly awaiting passage of the 21st Century Cures act since it was initially introduced in 2013, given it was originally written to increase NIH funding and fast-track research and treatment development. On Wednesday, November 30, a compromise bill with modified provisions […]

November 29, 2016

SMCI’s 2016 Accomplishments in Research Launched three Targeted Initiatives, our own focused projects done in partnership with leading research institutions and biomedical corporations, that represent a paradigm-busting approach to conducting research: Pathways and Biomarkers Discovery Track. Original research in the areas of bioenergetics, metabolomics, and […]

Advocacy in Action: SMCI Joins the Research!America Alliance

November 18, 2016

The Solve ME/CFS Initiative is proud to announce our formal membership as part of Research!America, an alliance for discoveries in health. Research!America is the nation’s largest and most effective advocacy coalition dedicated to making medical research for health and scientific research funding a higher national […]

A Candid Discussion with NIH Director Francis Collins

November 18, 2016

Earlier this week at FasterCures’ Partnering for Cures conference in New York, Solve ME/CFS Initiative President Carol Head and VP of Research and Scientific Programs Dr. Zaher Nahle met with Director Francis Collins of the National Institutes of Health (NIH) for a private conversation regarding […]

Disturbing Steps Backward toward Somatization of ME/CFS

November 11, 2016

The PACE trial will not go away. In 2011, results were published for a five-year study conducted to determine what therapies, if any, are effective in treating ME. The PACE trial concluded that graded exercise therapy (GET) and cognitive behavioral therapy (CBT) were effective treatments […]

November Research 1st – Dr. Nahle’s Letter

November 11, 2016

Dear Friends, I have the privilege of running a public webinar series at SMCI in which we bring together thought leaders, influencers, and practitioners from multiple disciplines to share ideas and update the community on the most important work in the ME/CFS field. These speaking […]