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I Thought It Was a Typo…

August 21, 2015

During the course of interviewing for this position, I was reviewing the amount of government spending on ME/CFS. I came across a figure of $5.4 million in one article. I assumed the number must have been a typo. Read More…

Peter Rowe – Part Four

August 14, 2015

In the fourth and final installment of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on the intersection of PEM and OI and exercise intolerance with OI. Read More…

SMCI Hosts Webinar with Dr. Peter Rowe

August 7, 2015

On July 16, the Solve ME/CFS Initiative hosted a webinar with Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, called, “Inducing Post-Exertional Malaise in ME/CFS: A Look at the Research Evidence.” Dr. Rowe has followed up with his responses to […]

Peter Rowe – Part Three

August 6, 2015

In Part Three of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on the intersection of PEM and OI and exercise intolerance with OI. Read More…

Pathways to Prevention

June 24, 2015

Last week’s long-awaited briefing on the National Institute of Health’s Pathways to Prevention (P2P) report on ME/CFS failed miserably at continuing the momentum created earlier this year by the Feb. 10 Institute of Medicine publication on the disease. Read More…

Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report

February 27, 2015

Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…

Guest Blog: Changing the Conversation – IOM Report Sparks Re-evaluation of ME/CFS in the Media

February 13, 2015

On Tuesday the IOM released its report, “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness”. This landmark report has been highlighted the media this week in more than 300 articles including JAMA, Annals, Science, Nature and a host of accessible lay media including NYT, Al Jazeera America, NPR, CBS Online and HealthDay. In this guest blog, Cort Johnson discusses how the IOM report is changing the conversation. READ MORE…

Pearls of Wisdom from a CFS Physician, part 3

February 13, 2015

In this third and final installment of our 3-part blog series, Pearls of Wisdom from an ME/CFS Physician, Dr Lucinda Bateman speaks to the importance of diagnosing and treating comorbid conditions. READ MORE…