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Restructuring Medical Research

December 5, 2014

In the US, it takes an average of 12 years for an experimental drug to travel from the laboratory to your medicine cabinet; the chance for a new drug to actually make it to market is only 1 in 5,000. Diagnosis takes far too long and treatment options for people with ME/CFS have not improved much. So how can the status quo be changed? In this post, we discuss the need to restructure medical research. READ MORE…

Gift Registry for a Cure

December 3, 2014

When the sister of our board member Aaron Paas, Danielle, became ill with ME/CFS , like so many patients she went from vibrant and busy to severely ill and debilitated almost overnight. Aaron and his wife, Haley, wanted a powerful way to help people understand a little bit about what Danielle’s life is really like. LEARN MORE…

Giving Tuesday 2014 – Join the 10/$12 Challenge!

December 2, 2014

We gave thanks on Thanksgiving, got great shopping deals on Black Friday and Cyber Monday, and now it is Giving Tuesday, a global day for giving thanks and giving back. It’s not about saving money but changing lives and anyone can play a part. LEARN MORE…

SMCI Survey Data Analyzed for Publication

November 7, 2014

Leonard A. Jason, along with Laura Nicholson, Diana Ohanian, Kelly O’Connor, & Abigail Brown, all of DePaul University are preparing a paper titled, “ME/CFS Patient Perspectives on Name Change & Priorities for Healthcare Provider Education.” This paper is based on the results of an SMCI survey facilitated prior to an IOM committee meeting earlier this year. Read the summary now, in advance of publication…

P2P Workshop – Registration Now Open

September 3, 2014

Registration is now open for the Pathways to Prevention workshop for Advancing the Research on ME/CFS. Interested individuals may register to attend live or participate via webcast. It is our hope that many stakeholders will participate in this process in order to ensure the patients have a strong presence and a voice. Read more…

CFSAC Charter Up for Renewal

August 21, 2014

The Solve ME/CFS Initiative is involved in advocacy efforts aimed at improving the research landscape for the early detection, objective diagnosis and effective treatment of ME/CFS.  As part of this effort, we work to validate the burden of illness imposed by ME/CFS in agencies where national policy is made […]

Breaking News: Chemical Changes in Immune Cell DNA from ME/CFS Patients

August 12, 2014

Breaking News: Research conducted in partnership with and funded by the Solve ME/CFS Initiative (SMCI) was published today in the high impact and open access journal PLOS ONE. We are pleased to announce the first study to report epigenetic modifications throughout the genome in female ME/CFS patients compared to a matched sample of healthy controls. READ MORE…

Solve ME/CFS Initiative 2014 Webinar Series

July 8, 2014

Beginning in July and continuing through year-end, the Solve ME/CFS Initiative (SMCI) will be bringing you a free, monthly webinar series reporting on the progress and promise of research happening through our Research Institute Without Walls. Learn more and RSVP today!