Symptom Management

Guest Blog: Dr. Peter Rowe – Is The Physical Examination Normal in CFS? Part 1

September 5, 2014

The first in a series of blog posts from Dr. Peter Rowe of Johns Hopkins University entitled “Is the physical exam in CFS normal?” Read Part 1 of the series – We are certain that this information will be of great value to both you and your doctor and will clearly illustrate the value of a true physical examination in ME/CFS.

Breaking Down the Complexities of ME/CFS – Part 3

July 9, 2014

Modern day, patient-driven research has the potential to be used as meaningful evidence as larger sets of data are gathered. With the advent of personal tracking and monitoring devices, you now have tremendous resources to track your own data and help us break down the complexities of ME/CFS. Read more…

Guest Post: Dr Larry Baldwin on Post-Exertional Debility in ME/CFS

May 14, 2014

Dr. Larry Baldwin, licensed physician and ME/CFS patient, worked with our Scientific Director, Suzanne D. Vernon, PhD to provide comment on post-exertional debility to the Institute of Medicine Committee on Diagnostic Criteria for ME/CFS. We are happy to provide his compelling and intelligent insights here as a guest blog post…

Surviving the Holidays: Resources for You

November 26, 2013

Anticipating the upcoming holidays with a mixture of excitement and dread? Want to do it all but know that will result in a relapse? Refresh your mind with strategies for surviving the holidays – physically and emotionally – as well as possible.

Handling the Holidays: A Gift for Yourself

November 25, 2013

Celebrating the winter holidays is emotionally and physically draining for everyone, but those with ME/CFS and their caregivers can have an especially difficult time. We offer some suggestions to help all those affected by ME/CFS celebrate the holidays within the boundaries that the illness can create.

Treatment FYI: Controlling Pain

September 6, 2013

September is Pain Awareness Month; we wanted to bring you some resources about managing the pain associated with ME/CFS. For a long time pain was not thought to be a prominent symptom in ME/CFS, but muscle pain, joint pain and headache are common in ME/CFS patients.

Post-Exertional Malaise: Resources for You

May 25, 2012

Post-exertional malaise or relapse is a hallmark symptom of CFS. Here’s how one person with CFS described it: “Muscle wilting meltdown, air gulping short of oxygen feeling, brain blood vessels flayed on a laundry line in the wind, metal rods in the back of head […]