SolveCFS BioBank

Research Digest – December 2014: 10 Important Advances in ME/CFS

December 12, 2014

While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…

Funding Research to Inform the Path Forward, part 2

December 10, 2014

In part 2 of our blog series, Funding Research to Inform the Path Forward, we share the progress being made through our second competitive funding opportunity, which occurred in 2011. Through this work, the Solve ME/CFS Initiative is taking strategic steps to shorten the road and speed up progress. READ MORE…

Funding Research to Inform the Path Forward, part 1

December 9, 2014

The Solve ME/CFS Initiative (SMCI) began funding research into ME/CFS as soon as it was founded in 1987. But the first competitive funding opportunity occurred in 2008, followed by another competitive funding cycle in 2011. With an innovative, collaborative approach, and Dr Vernon’s knack for recruiting leaders into the field, SMCI has begun to bring important discoveries to light. In this two part blog series we explore our funded research projects in more depth. READ MORE…

Being “Patient-Centric”

December 8, 2014

Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…

The Importance of a Representative Patient Population for Research

November 18, 2014

Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….

SolveCFS BioBank: Then, Now & the Next Evolution

November 14, 2014

In the last two years, the SolveCFS BioBank™ has provided health information and blood samples to 10 researchers – 8 of them new to ME/CFS research, most recruited by Dr. Suzanne D. Vernon, SMCI Scientific Director. Learn how the BioBank began, where it is today and our vision for future impact on research progress…

Research Digest – August 2014: More Results from the SolveCFS BioBank

August 22, 2014

More results from the work being done through the SolveCFS BioBank: We are pleased to report the publication of the initial BioBank study on XMRV and the publication of the first study of epigenetics in ME/CFS. Both used the clinical information and samples from the SolveCFS BioBank that were collected in 2010. READ MORE…

Breaking News: Chemical Changes in Immune Cell DNA from ME/CFS Patients

August 12, 2014

Breaking News: Research conducted in partnership with and funded by the Solve ME/CFS Initiative (SMCI) was published today in the high impact and open access journal PLOS ONE. We are pleased to announce the first study to report epigenetic modifications throughout the genome in female ME/CFS patients compared to a matched sample of healthy controls. READ MORE…

Breaking Down the Complexities of ME/CFS – Part 3

July 9, 2014

Modern day, patient-driven research has the potential to be used as meaningful evidence as larger sets of data are gathered. With the advent of personal tracking and monitoring devices, you now have tremendous resources to track your own data and help us break down the complexities of ME/CFS. Read more…

Solve ME/CFS Initiative 2014 Webinar Series

July 8, 2014

Beginning in July and continuing through year-end, the Solve ME/CFS Initiative (SMCI) will be bringing you a free, monthly webinar series reporting on the progress and promise of research happening through our Research Institute Without Walls. Learn more and RSVP today!