SolveCFS BioBank

The Importance of a Representative Patient Population for Research

November 18, 2014

Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….

SolveCFS BioBank: Then, Now & the Next Evolution

November 14, 2014

In the last two years, the SolveCFS BioBank™ has provided health information and blood samples to 10 researchers – 8 of them new to ME/CFS research, most recruited by Dr. Suzanne D. Vernon, SMCI Scientific Director. Learn how the BioBank began, where it is today and our vision for future impact on research progress…

Research Digest – August 2014: More Results from the SolveCFS BioBank

August 22, 2014

More results from the work being done through the SolveCFS BioBank: We are pleased to report the publication of the initial BioBank study on XMRV and the publication of the first study of epigenetics in ME/CFS. Both used the clinical information and samples from the SolveCFS BioBank that were collected in 2010. READ MORE…

Breaking News: Chemical Changes in Immune Cell DNA from ME/CFS Patients

August 12, 2014

Breaking News: Research conducted in partnership with and funded by the Solve ME/CFS Initiative (SMCI) was published today in the high impact and open access journal PLOS ONE. We are pleased to announce the first study to report epigenetic modifications throughout the genome in female ME/CFS patients compared to a matched sample of healthy controls. READ MORE…

Breaking Down the Complexities of ME/CFS – Part 3

July 9, 2014

Modern day, patient-driven research has the potential to be used as meaningful evidence as larger sets of data are gathered. With the advent of personal tracking and monitoring devices, you now have tremendous resources to track your own data and help us break down the complexities of ME/CFS. Read more…

Solve ME/CFS Initiative 2014 Webinar Series

July 8, 2014

Beginning in July and continuing through year-end, the Solve ME/CFS Initiative (SMCI) will be bringing you a free, monthly webinar series reporting on the progress and promise of research happening through our Research Institute Without Walls. Learn more and RSVP today!

Breaking Down the Complexities of ME/CFS – Part 2

July 7, 2014

“Complex” is a word that is frequently used to describe the ME/CFS disease state for many reasons. One way that research deals with this type of complexity is to break it down so that the most similar people are being studied. Our SolveCFS BioBank is an important part of this process. Read more…

Breaking Down the Complexity of ME/CFS – Part 1

July 2, 2014

A clinical intuition survey helped us capture how ME/CFS experts from around the world are managing and treating their patients. The knowledge that expert ME/CFS clinicians have gained is invaluable to us as we work to break down the complexity of ME/CFS. Learn more…