SolveCFS BioBank

Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report

February 27, 2015

Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…

Guest Blog: Armin Alaedini, PhD – The Search for Food Sensitivity Biomarkers in ME/CFS

January 17, 2015

Often those with ME/CFS experience gastrointestinal symptoms. Biomarkers of these symptoms could help to identify subtypes in ME/CFS. Dr. Armin Aledini is using samples from the SolveCFS BioBank™ to look for auto-antibodies against a range of dietary proteins. In this guest blog post he discusses Celiac disease, which is a commonly misdiagnosed condition with symptoms similar to ME/CFS. READ MORE…

Research Digest – December 2014: 10 Important Advances in ME/CFS

December 12, 2014

While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…

Being “Patient-Centric”

December 8, 2014

Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…

The Importance of a Representative Patient Population for Research

November 18, 2014

Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….

Research Digest – August 2014: More Results from the SolveCFS BioBank

August 22, 2014

More results from the work being done through the SolveCFS BioBank: We are pleased to report the publication of the initial BioBank study on XMRV and the publication of the first study of epigenetics in ME/CFS. Both used the clinical information and samples from the SolveCFS BioBank that were collected in 2010. READ MORE…

Breaking Down the Complexities of ME/CFS – Part 3

July 9, 2014

Modern day, patient-driven research has the potential to be used as meaningful evidence as larger sets of data are gathered. With the advent of personal tracking and monitoring devices, you now have tremendous resources to track your own data and help us break down the complexities of ME/CFS. Read more…

Breaking Down the Complexities of ME/CFS – Part 2

July 7, 2014

“Complex” is a word that is frequently used to describe the ME/CFS disease state for many reasons. One way that research deals with this type of complexity is to break it down so that the most similar people are being studied. Our SolveCFS BioBank is an important part of this process. Read more…

Breaking Down the Complexity of ME/CFS – Part 1

July 2, 2014

A clinical intuition survey helped us capture how ME/CFS experts from around the world are managing and treating their patients. The knowledge that expert ME/CFS clinicians have gained is invaluable to us as we work to break down the complexity of ME/CFS. Learn more…