Research Library Portal

Research Digest – December 2014: 10 Important Advances in ME/CFS

December 12, 2014

While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…

Funding Research to Inform the Path Forward, part 2

December 10, 2014

In part 2 of our blog series, Funding Research to Inform the Path Forward, we share the progress being made through our second competitive funding opportunity, which occurred in 2011. Through this work, the Solve ME/CFS Initiative is taking strategic steps to shorten the road and speed up progress. READ MORE…

Funding Research to Inform the Path Forward, part 1

December 9, 2014

The Solve ME/CFS Initiative (SMCI) began funding research into ME/CFS as soon as it was founded in 1987. But the first competitive funding opportunity occurred in 2008, followed by another competitive funding cycle in 2011. With an innovative, collaborative approach, and Dr Vernon’s knack for recruiting leaders into the field, SMCI has begun to bring important discoveries to light. In this two part blog series we explore our funded research projects in more depth. READ MORE…

Being “Patient-Centric”

December 8, 2014

Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…

Restructuring Medical Research

December 5, 2014

In the US, it takes an average of 12 years for an experimental drug to travel from the laboratory to your medicine cabinet; the chance for a new drug to actually make it to market is only 1 in 5,000. Diagnosis takes far too long and treatment options for people with ME/CFS have not improved much. So how can the status quo be changed? In this post, we discuss the need to restructure medical research. READ MORE…

Deciphering Post-Exertional Malaise

November 21, 2014

On September 18, 2014, Dane B. Cook, Ph.D., Associate Professor of Kinesiology at the University of Wisconsin, Madison and a Solve ME/CFS Initiative 2011 funded investigator, presented our most popular webinar of the year on the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise. In this guest post for our blog, Dr. Cook reviews the material presented and tackles the many questions we received from webinar participants.

The Importance of a Representative Patient Population for Research

November 18, 2014

Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….

SolveCFS BioBank: Then, Now & the Next Evolution

November 14, 2014

In the last two years, the SolveCFS BioBank™ has provided health information and blood samples to 10 researchers – 8 of them new to ME/CFS research, most recruited by Dr. Suzanne D. Vernon, SMCI Scientific Director. Learn how the BioBank began, where it is today and our vision for future impact on research progress…

Research Digest – October 2014: The Search for Diagnostic Certainty

October 24, 2014

Currently ME/CFS is defined by symptoms that are common in many other medical and psychiatric diseases. A lack of specific biomarkers and clear diagnostic criteria often leads to misdiagnosis and muddied research results. In this month’s Research Digest we review three different studies that seek to identify more specific biomarkers for ME/CFS. READ MORE…