Presentations & Conferences

CDC Stakeholder Call – Open Invitation

August 18, 2014

CDC announces CFS Patient-Centered Outreach and Communications Activity (PCOCA) Conference Call, open to all on September 9, 3pm EST. The main topic on this call will be “Can ME/CFS and FM Sleep Research Help You Sleep?” presented by Lucinda Bateman MD. LEARN MORE…

Dr. Vernon, SMCI Scientific Director, Represents ME/CFS at Life Sciences Meeting

June 18, 2014

Dr. Vernon, Solve ME/CFS Initiative Scientific Director, advocates for ME/CFS at Life Sciences Meeting. Her scholarship to this prestigious event gives her the opportunity to network, listen and learn from global leaders from industry, regulatory agencies, academia and the other patient advocate fellows. Learn more…

2014 IACFSME Summary by Dr. Komaroff

March 31, 2014

March 20-23, 2014 the IACFS/ME Biennial Conference, “Translating Science into Clinical Care”, was held in San Francisco. The IACFS/ME asked Dr. Komaroff to deliver a summary of the conference – we have prepared this video, combining the audio recording with the PowerPoint slides…

Carol Head Addresses the IOM Committee

January 28, 2014

On Monday, January 27th, 2014, Carol Head, Association President and CEO was in Washington D.C. along with several other organization leaders, fellow advocates and patients to take part in the first public meeting of the IOM Committee for Diagnostic Criteria for ME/CFS. Read her full comments and access the “Road to Diagnosis” report we shared.

FDA: The Voice of the Patient

October 10, 2013

On October 16 from 1:30 PM – 3:00 PM EST, FDA will hold a teleconference that is open to the public. Your voice is important in the dialogue.