News

Advocates Obtain Congressional Support for Strengthened ME/CFS Research at NIH

September 9, 2016

LOS ANGELES, September 9, 2016 – After years of neglect by the National Institutes of Health (NIH), patients suffering from myalgic encephalomyelitis (ME), commonly known as chronic fatigue syndrome (CFS), created a win today as members of Congress came together urging the NIH to do the right thing and strengthen ME/CFS research. READ MORE…

Update on August 1 Meeting with Dr. DeSalvo from HHS

August 5, 2016

Earlier this week, Jen Brea, Terri Wilder, Carol Head, Jennie Spotila, and Mary Dimmock met with Dr. Karen DeSalvo, acting assistant secretary for health. The purpose of the August 1 meeting was to impress upon Dr. DeSalvo how woefully inadequate the response to this disease from the U.S. Department of Health and Human Services (HHS) has been—that it is still too slow and too little—and to call on HHS to dramatically step up its commitment to ME. Read More…

SOLVE ME/CFS INTIATIVE LAUNCHES NEW GRANT PROGRAM TO FUND RESEARCH

July 6, 2016

Last week, the Solve ME/CFS Initiative (SMCI) announced its creation of a new funding source for researchers, The Ramsay Award Program, offering competitive annual grants to scientists and researchers at any career stage who are interested in studying myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS). Read More…

NIH Study

February 24, 2016

The Solve ME/CFS Initiative held a phone call with Vicky Whittemore, Ph.D., of the National Institutes of Health yesterday regarding our concerns over staffing of the NIH’s new intramural study on ME/CFS. Read More…