News

Research Digest – September 2014: Cortisol in ME/CFS

September 15, 2014

Cortisol is an essential hormone for immune function and many studies have shown that cortisol is low in ME/CFS patients – known as hypocortisolism. Recent articles find increased cortisol receptor expression is associated with post-exertion malaise (PEM), low cortisol is associated with more severe PEM and a return of cortisol to normal levels is associated with recovery. In this month’s research digest, we review three studies that look at the effect of cortisol on function and post-exertional malaise in ME/CFS…

P2P Workshop – Registration Now Open

September 3, 2014

Registration is now open for the Pathways to Prevention workshop for Advancing the Research on ME/CFS. Interested individuals may register to attend live or participate via webcast. It is our hope that many stakeholders will participate in this process in order to ensure the patients have a strong presence and a voice. Read more…

Research Digest – August 2014: More Results from the SolveCFS BioBank

August 22, 2014

More results from the work being done through the SolveCFS BioBank: We are pleased to report the publication of the initial BioBank study on XMRV and the publication of the first study of epigenetics in ME/CFS. Both used the clinical information and samples from the SolveCFS BioBank that were collected in 2010. READ MORE…

Guest Blog: Roger Dodd, PhD – Retrovirus Testing in Retrospect

August 21, 2014

In response to some lingering questions we recently received from patients concerning a positive test result for XMRV, Roger Dodd, PhD, Vice President of Biomedical Services Research and Development at the American Red Cross, provides this guest post on retrovirus testing and why ME/CFS patients need not be concerned with a positive XMRV test result…

CDC Stakeholder Call – Open Invitation

August 18, 2014

CDC announces CFS Patient-Centered Outreach and Communications Activity (PCOCA) Conference Call, open to all on September 9, 3pm EST. The main topic on this call will be “Can ME/CFS and FM Sleep Research Help You Sleep?” presented by Lucinda Bateman MD. LEARN MORE…

Breaking News: Chemical Changes in Immune Cell DNA from ME/CFS Patients

August 12, 2014

Breaking News: Research conducted in partnership with and funded by the Solve ME/CFS Initiative (SMCI) was published today in the high impact and open access journal PLOS ONE. We are pleased to announce the first study to report epigenetic modifications throughout the genome in female ME/CFS patients compared to a matched sample of healthy controls. READ MORE…

Guest Blog: Mark A. Demitrack, MD, FAPA – Neurobiology of ME/CFS

July 17, 2014

Far too often, ME/CFS patients are met with healthcare providers who do not believe in the biological nature of the disease. In this guest blog post, Mark Demitrack, MD, FAPA describes how for a long time he has advocated for and used an integrated approach to understand how the brain is involved in the biology of ME/CFS. READ MORE…

Research Digest – July 2014: Define & Diagnose

July 16, 2014

In order for patients to be diagnosed, a disease must be defined. Chronic Fatigue Syndrome is currently defined by excluding other medical and psychiatric diseases that explain the symptoms. This month we highlight three recent publications tackling the “core” components of ME/CFS that are important to defining and diagnosing the disease. READ MORE…