News

NIH Study

February 24, 2016

The Solve ME/CFS Initiative held a phone call with Vicky Whittemore, Ph.D., of the National Institutes of Health yesterday regarding our concerns over staffing of the NIH’s new intramural study on ME/CFS. Read More…

Solve ME/CFS Initiative Joins Forces with Fellow Advocates

December 22, 2015

We are thrilled to announce our involvement in a new coalition of more than 20 ME/CFS advocates, who have begun working together to share ideas, leverage resources and implement tactics as a single dynamic and powerful community that will bring the greatest benefit to ME/CFS patients. Read More…

Solve ME/CFS Initiative Calls for Review of PACE Trial

November 20, 2015

The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for Healthcare Research and Quality (AHRQ) to examine the issues raised by journalist David Tuller’s analysis of the U.K.’s £5 million PACE trial for ME/CFS. Read More…

Going the Extra Mile for ME/CFS

October 6, 2015

Strong support from family and friends is essential to people with a debilitating and poorly understood illness like ME/CFS. As patients work to integrate the challenges of ME/CFS into their daily lives, loved ones can often feel powerless to help them. Read More…

I Thought It Was a Typo…

August 21, 2015

During the course of interviewing for this position, I was reviewing the amount of government spending on ME/CFS. I came across a figure of $5.4 million in one article. I assumed the number must have been a typo. Read More…

Peter Rowe – Part Three

August 6, 2015

In Part Three of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on the intersection of PEM and OI and exercise intolerance with OI. Read More…

Peter Rowe – Part Two

July 31, 2015

In Part Two of his follow-up to our July 16 webinar, Dr. Peter Rowe, director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, responds to patients’ questions on orthostatic intolerance, methylation, beta blockers and the effects of talking during tilt table testing. Read More…