Government Advocacy

NIH Study

February 24, 2016

The Solve ME/CFS Initiative held a phone call with Vicky Whittemore, Ph.D., of the National Institutes of Health yesterday regarding our concerns over staffing of the NIH’s new intramural study on ME/CFS. Read More…

Solve ME/CFS Initiative Joins Forces with Fellow Advocates

December 22, 2015

We are thrilled to announce our involvement in a new coalition of more than 20 ME/CFS advocates, who have begun working together to share ideas, leverage resources and implement tactics as a single dynamic and powerful community that will bring the greatest benefit to ME/CFS patients. Read More…

Solve ME/CFS Initiative Calls for Review of PACE Trial

November 20, 2015

The Solve ME/CFS Initiative is one of 12 organizations that have signed a letter asking the heads of the Centers for Disease Control (CDC) and the Agency for Healthcare Research and Quality (AHRQ) to examine the issues raised by journalist David Tuller’s analysis of the U.K.’s £5 million PACE trial for ME/CFS. Read More…

I Thought It Was a Typo…

August 21, 2015

During the course of interviewing for this position, I was reviewing the amount of government spending on ME/CFS. I came across a figure of $5.4 million in one article. I assumed the number must have been a typo. Read More…

Pathways to Prevention

June 24, 2015

Last week’s long-awaited briefing on the National Institute of Health’s Pathways to Prevention (P2P) report on ME/CFS failed miserably at continuing the momentum created earlier this year by the Feb. 10 Institute of Medicine publication on the disease. Read More…

Solve ME/CFS Initiative Reappointed to CFSAC Position

June 11, 2015

The Solve ME/CFS Initiative has been reappointed as one of the liaison organizations for the Chronic Fatigue Syndrome Advisory Committee (CFSAC) for the term May 2015 through May 2017. Read More…

Solve ME/CFS Initiative Hosts IOM Briefing in D.C.

April 2, 2015

On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…

SMCI Comment on the Institute of Medicine Report – Part 1 of 5

April 1, 2015

In February, the IOM released its landmark report on ME/CFS [SEID]. In this first of a five-part blog series, Dr. Suzanne D Vernon, SMCI Scientific Director breaks down the report piece by piece, beginning with making the critical distinction between a research case definition and clinical diagnostic criteria. Read More…

Morgan Fairchild Joins SMCI in DC for IOM Report Briefing

March 12, 2015

Morgan Fairchild Joins SMCI in DC for an IOM Report Briefing: On March 25, SMCI will host a briefing on the IOM report in Washington, D.C. The goal is to further the IOM report momentum and turn the report into action, particularly by urging additional federal research funding.
Learn more and register to participate…