Research Digest – August 2014: More Results from the SolveCFS BioBank

August 22, 2014

More results from the work being done through the SolveCFS BioBank: We are pleased to report the publication of the initial BioBank study on XMRV and the publication of the first study of epigenetics in ME/CFS. Both used the clinical information and samples from the SolveCFS BioBank that were collected in 2010. READ MORE…

CFSAC Charter Up for Renewal

August 21, 2014

The Solve ME/CFS Initiative is involved in advocacy efforts aimed at improving the research landscape for the early detection, objective diagnosis and effective treatment of ME/CFS.  As part of this effort, we work to validate the burden of illness imposed by ME/CFS in agencies where national policy is made […]

Guest Blog: Roger Dodd, PhD – Retrovirus Testing in Retrospect

August 21, 2014

In response to some lingering questions we recently received from patients concerning a positive test result for XMRV, Roger Dodd, PhD, Vice President of Biomedical Services Research and Development at the American Red Cross, provides this guest post on retrovirus testing and why ME/CFS patients need not be concerned with a positive XMRV test result…

CDC Stakeholder Call – Open Invitation

August 18, 2014

CDC announces CFS Patient-Centered Outreach and Communications Activity (PCOCA) Conference Call, open to all on September 9, 3pm EST. The main topic on this call will be “Can ME/CFS and FM Sleep Research Help You Sleep?” presented by Lucinda Bateman MD. LEARN MORE…

Breaking News: Chemical Changes in Immune Cell DNA from ME/CFS Patients

August 12, 2014

Breaking News: Research conducted in partnership with and funded by the Solve ME/CFS Initiative (SMCI) was published today in the high impact and open access journal PLOS ONE. We are pleased to announce the first study to report epigenetic modifications throughout the genome in female ME/CFS patients compared to a matched sample of healthy controls. READ MORE…

Guest Blog: Mark A. Demitrack, MD, FAPA – Neurobiology of ME/CFS

July 17, 2014

Far too often, ME/CFS patients are met with healthcare providers who do not believe in the biological nature of the disease. In this guest blog post, Mark Demitrack, MD, FAPA describes how for a long time he has advocated for and used an integrated approach to understand how the brain is involved in the biology of ME/CFS. READ MORE…

Research Digest – July 2014: Define & Diagnose

July 16, 2014

In order for patients to be diagnosed, a disease must be defined. Chronic Fatigue Syndrome is currently defined by excluding other medical and psychiatric diseases that explain the symptoms. This month we highlight three recent publications tackling the “core” components of ME/CFS that are important to defining and diagnosing the disease. READ MORE…

Breaking Down the Complexities of ME/CFS – Part 3

July 9, 2014

Modern day, patient-driven research has the potential to be used as meaningful evidence as larger sets of data are gathered. With the advent of personal tracking and monitoring devices, you now have tremendous resources to track your own data and help us break down the complexities of ME/CFS. Read more…

Solve ME/CFS Initiative 2014 Webinar Series

July 8, 2014

Beginning in July and continuing through year-end, the Solve ME/CFS Initiative (SMCI) will be bringing you a free, monthly webinar series reporting on the progress and promise of research happening through our Research Institute Without Walls. Learn more and RSVP today!

Breaking Down the Complexities of ME/CFS – Part 2

July 7, 2014

“Complex” is a word that is frequently used to describe the ME/CFS disease state for many reasons. One way that research deals with this type of complexity is to break it down so that the most similar people are being studied. Our SolveCFS BioBank is an important part of this process. Read more…