Morgan Fairchild Joins SMCI in DC for IOM Report Briefing

March 12, 2015

Morgan Fairchild Joins SMCI in DC for an IOM Report Briefing: On March 25, SMCI will host a briefing on the IOM report in Washington, D.C. The goal is to further the IOM report momentum and turn the report into action, particularly by urging additional federal research funding.
Learn more and register to participate…

Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report

February 27, 2015

Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…

Guest Blog: Changing the Conversation – IOM Report Sparks Re-evaluation of ME/CFS in the Media

February 13, 2015

On Tuesday the IOM released its report, “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness”. This landmark report has been highlighted the media this week in more than 300 articles including JAMA, Annals, Science, Nature and a host of accessible lay media including NYT, Al Jazeera America, NPR, CBS Online and HealthDay. In this guest blog, Cort Johnson discusses how the IOM report is changing the conversation. READ MORE…

Pearls of Wisdom from a CFS Physician, part 3

February 13, 2015

In this third and final installment of our 3-part blog series, Pearls of Wisdom from an ME/CFS Physician, Dr Lucinda Bateman speaks to the importance of diagnosing and treating comorbid conditions. READ MORE…

Pearls of Wisdom from an ME/CFS Physician, part 2

February 10, 2015

Pearls of Wisdom from an ME/CFS Physician, Part 2: Dr. Bateman brings you more of her best advice on the treatment of ME/CFS. In this installment, she discussed pain control and physical pacing. READ MORE…

Pearls of Wisdom from an ME/CFS Physician, part 1

February 9, 2015

Pearls of Wisdom Part 1 – In this 3-part blog series, Dr. Bateman brings you some of her best advice on the treatment of ME/CFS, honed by her many years of caring for thousands of ME/CFS patients through the years…

Wanted: Patient Participation in Quality of ME/CFS Medical Care Survey

January 23, 2015

The Chronic Fatigue Syndrome Advisory Committee’s Centers of Excellence Working Group invites the participation of all ME/CFS patients, 18 years of age and older, worldwide, but particularly within the United States, to participate in an online survey the purpose of which is to determine the […]

Public Release of the IOM ME/CFS Study February 10

January 23, 2015

The IOM’s Committee on the Diagnostic Criteria for ME/CFS will hold a public release event for its consensus report on February 10th, 2015 from 11:00 am-12:00 pm EST. Participants may attend live or view via webstream. LEARN MORE and REGISTER…

Research Digest – January 2015: High Interest in ME/CFS Shown in Journal Rankings

January 23, 2015

Deciphering PEM is a critically important area of research for ME/CFS. Despite the lack of gravity and specificity a term like “post exertional malaise” signifies, research into what it is and how to measure it is some of the most important research – and most popular. The Journal of Translational Medicine ranked two articles dealing with ME/CFS among its most highly accessed for 2014. LEARN MORE…