P2P Draft Evidence Review

October 20, 2014

The Pathway to Prevention draft evidence review has been released. Can a process that seems inappropriate for ME/CFS help inform a path forward? SMCI has utilized the collective brainpower of our Research Advisory Council, led by our scientific director, Suzanne D Vernon, PhD, to perform a careful review and response to the Evidence-Based Practice Centers’ draft evidence-based review for ME/CFS. READ MORE…

P2P Releases Systematic Evidence Review

October 1, 2014

On Sept. 22nd, the Association for Health Research and Quality (AHRQ) released the draft systematic evidence review on the Diagnosis and Treatment of ME/CFS for the P2P workshop. The Solve ME/CFS Initiative is in the process of reviewing the draft report more thoroughly with members of its Research Advisory Council in order to provide the most informed comments prior to the deadline…

Research Digest – September 2014: Cortisol in ME/CFS

September 15, 2014

Cortisol is an essential hormone for immune function and many studies have shown that cortisol is low in ME/CFS patients – known as hypocortisolism. In this month’s research digest, we review three studies that look at the effect of cortisol on function and post-exertional malaise in ME/CFS…

Guest Blog: Dr. Peter Rowe – Is The Physical Examination Normal in CFS? Part 1

September 5, 2014

The first in a series of blog posts from Dr. Peter Rowe of Johns Hopkins University entitled “Is the physical exam in CFS normal?” Read Part 1 of the series – We are certain that this information will be of great value to both you and your doctor and will clearly illustrate the value of a true physical examination in ME/CFS.

P2P Workshop – Registration Now Open

September 3, 2014

Registration is now open for the Pathways to Prevention workshop for Advancing the Research on ME/CFS. Interested individuals may register to attend live or participate via webcast. It is our hope that many stakeholders will participate in this process in order to ensure the patients have a strong presence and a voice. Read more…

Research Digest – August 2014: More Results from the SolveCFS BioBank

August 22, 2014

More results from the work being done through the SolveCFS BioBank: We are pleased to report the publication of the initial BioBank study on XMRV and the publication of the first study of epigenetics in ME/CFS. Both used the clinical information and samples from the SolveCFS BioBank that were collected in 2010. READ MORE…

CFSAC Charter Up for Renewal

August 21, 2014

The Solve ME/CFS Initiative is involved in advocacy efforts aimed at improving the research landscape for the early detection, objective diagnosis and effective treatment of ME/CFS.  As part of this effort, we work to validate the burden of illness imposed by ME/CFS in agencies where national policy is made […]