SMCI Comment on the Institute of Medicine Report—Part 5

April 30, 2015

This is the fifth and final blog post that provides insights into the Institute of Medicine’s report on ME/CFS. In this post, SMCI Scientific Director Dr. Suzanne Vernon focuses on cognitive impairment and orthostatic intolerance, one or both of which are required for an ME/CFS/SEID diagnosis, according to the IOM’s recommended criteria.

SMCI Comment on the Institute of Medicine Report—Part 4 of 5

April 28, 2015

This is the fourth of a five-part blog series that addresses aspects of the Institute of Medicine’s recent report on myalgic encephalomyelitis/Chronic Fatigue Syndrome. In this post, author Dr. Suzanne D. Vernon, looks at the IOM’s third recommended diagnostic criteria: sleep.

SMCI Comment on the Institute of Medicine Report—Part 3 of 5

April 24, 2015

This is the third installment of a five-part blog series in which SMCI Scientific Director, Dr. Suzanne Vernon, analyzes the Feb. 10 IOM report section by section. In this post, Dr. Vernon considers the IOM’s second recommended diagnostic criteria: post-exertional malaise (PEM).

SMCI Comment on the Institute of Medicine Report—Part 2 of 5

April 21, 2015

This is the second of a five-part blog series in which Dr. Suzanne Vernon, SMCI Scientific Director, breaks down the landmark IOM report piece by piece. In this post, Dr. Vernon looks at the first recommended diagnostic criteria: defiant fatigue. Read More…

Suzanne D. Vernon Steps Down from Scientific Director Post

April 8, 2015

Eight years after joining the Solve ME/CFS Initiative (SMCI), Suzanne D. Vernon, PhD, will be stepping down as Scientific Director in late June. She will continue with the organization in a consultancy role. SMCI has begun an international search for a Research Director. Read More…

Solve ME/CFS Initiative Hosts IOM Briefing in D.C.

April 2, 2015

On March 25, the Solve ME/CFS Initiative hosted a briefing in Washington, D.C., on the IOM report on ME/CFS [SEID]. The briefing gathered congressional representatives, reporters, government officials and researchers while more than 300 viewed the event through a live webcast. The landmark report was reviewed and Carol Head made a strong and compelling call for more federal research funding. Read More…

SMCI Comment on the Institute of Medicine Report – Part 1 of 5

April 1, 2015

In February, the IOM released its landmark report on ME/CFS [SEID]. In this first of a five-part blog series, Dr. Suzanne D Vernon, SMCI Scientific Director breaks down the report piece by piece, beginning with making the critical distinction between a research case definition and clinical diagnostic criteria. Read More…

Morgan Fairchild Joins SMCI in DC for IOM Report Briefing

March 12, 2015

Morgan Fairchild Joins SMCI in DC for an IOM Report Briefing: On March 25, SMCI will host a briefing on the IOM report in Washington, D.C. The goal is to further the IOM report momentum and turn the report into action, particularly by urging additional federal research funding.
Learn more and register to participate…

Guest Blog: Dr. Lucinda Bateman on the Discussion Surrounding the IOM Report

February 27, 2015

Lucinda Bateman, MD, specializes in the diagnosis and management of unexplained chronic fatigue, ME/CFS and fibromyalgia. Having served on the IOM committee that produced the recent report, Beyond ME/CFS: Redefining an Illness, she brings an in-depth, well-informed opinion to the conversation surrounding the IOM report on ME/CFS, the new diagnostic criteria and the proposed name, Systemic Exertion Intolerance Disease (SEID). READ MORE…

Guest Blog: Changing the Conversation – IOM Report Sparks Re-evaluation of ME/CFS in the Media

February 13, 2015

On Tuesday the IOM released its report, “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness”. This landmark report has been highlighted the media this week in more than 300 articles including JAMA, Annals, Science, Nature and a host of accessible lay media including NYT, Al Jazeera America, NPR, CBS Online and HealthDay. In this guest blog, Cort Johnson discusses how the IOM report is changing the conversation. READ MORE…