Wanted: Patient Participation in Quality of ME/CFS Medical Care Survey

January 23, 2015

The Chronic Fatigue Syndrome Advisory Committee’s Centers of Excellence Working Group invites the participation of all ME/CFS patients, 18 years of age and older, worldwide, but particularly within the United States, to participate in an online survey the purpose of which is to determine the […]

Public Release of the IOM ME/CFS Study February 10

January 23, 2015

The IOM’s Committee on the Diagnostic Criteria for ME/CFS will hold a public release event for its consensus report on February 10th, 2015 from 11:00 am-12:00 pm EST. Participants may attend live or view via webstream. LEARN MORE and REGISTER…

Research Digest – January 2015: High Interest in ME/CFS Shown in Journal Rankings

January 23, 2015

Deciphering PEM is a critically important area of research for ME/CFS. Despite the lack of gravity and specificity a term like “post exertional malaise” signifies, research into what it is and how to measure it is some of the most important research – and most popular. The Journal of Translational Medicine ranked two articles dealing with ME/CFS among its most highly accessed for 2014. LEARN MORE…

Guest Blog: Armin Alaedini, PhD – The Search for Food Sensitivity Biomarkers in ME/CFS

January 17, 2015

Often those with ME/CFS experience gastrointestinal symptoms. Biomarkers of these symptoms could help to identify subtypes in ME/CFS. Dr. Armin Aledini is using samples from the SolveCFS BioBank™ to look for auto-antibodies against a range of dietary proteins. In this guest blog post he discusses Celiac disease, which is a commonly misdiagnosed condition with symptoms similar to ME/CFS. READ MORE…

The P2P Report – CFSAC Drafts Substantive, Expert Response

January 15, 2015

On 1/13/2015, the CFSAC met and finalized its response and feedback to the P2P draft report. SMCI participated in the process, with Carol Head, president and CEO, serving on the CFSAC working group. SMCI will endorse the CFSAC response in it’s feedback to the P2P panel concerning the report. LEARN MORE…

P2P Draft Report Set to be Published, 30 days for Feedback

December 18, 2014

On December 9 & 10, the Pathway to Prevention Workshop for “Advancing the Research on ME/CFS” was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings a READ MORE

Research Digest – December 2014: 10 Important Advances in ME/CFS

December 12, 2014

While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…

Funding Research to Inform the Path Forward, part 2

December 10, 2014

In part 2 of our blog series, Funding Research to Inform the Path Forward, we share the progress being made through our second competitive funding opportunity, which occurred in 2011. Through this work, the Solve ME/CFS Initiative is taking strategic steps to shorten the road and speed up progress. READ MORE…

Funding Research to Inform the Path Forward, part 1

December 9, 2014

The Solve ME/CFS Initiative (SMCI) began funding research into ME/CFS as soon as it was founded in 1987. But the first competitive funding opportunity occurred in 2008, followed by another competitive funding cycle in 2011. With an innovative, collaborative approach, and Dr Vernon’s knack for recruiting leaders into the field, SMCI has begun to bring important discoveries to light. In this two part blog series we explore our funded research projects in more depth. READ MORE…