P2P Draft Report Set to be Published – 30 days for Feedback

December 18, 2014

On December 9 & 10, the Pathway to Prevention Workshop for “Advancing the Research on ME/CFS” was held. The draft report is scheduled to be posted on December 18, 2014 with a 30 day comment period. The Solve ME/CFS Initiative will work with members of its Research Advisory Council and other advisers to issue a response to the report. Access the workshop recordings a READ MORE

Research Digest – December 2014: 10 Important Advances in ME/CFS

December 12, 2014

While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…

Funding Research to Inform the Path Forward, part 2

December 10, 2014

In part 2 of our blog series, Funding Research to Inform the Path Forward, we share the progress being made through our second competitive funding opportunity, which occurred in 2011. Through this work, the Solve ME/CFS Initiative is taking strategic steps to shorten the road and speed up progress. READ MORE…

Funding Research to Inform the Path Forward, part 1

December 9, 2014

The Solve ME/CFS Initiative (SMCI) began funding research into ME/CFS as soon as it was founded in 1987. But the first competitive funding opportunity occurred in 2008, followed by another competitive funding cycle in 2011. With an innovative, collaborative approach, and Dr Vernon’s knack for recruiting leaders into the field, SMCI has begun to bring important discoveries to light. In this two part blog series we explore our funded research projects in more depth. READ MORE…

Being “Patient-Centric”

December 8, 2014

Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…

Restructuring Medical Research

December 5, 2014

In the US, it takes an average of 12 years for an experimental drug to travel from the laboratory to your medicine cabinet; the chance for a new drug to actually make it to market is only 1 in 5,000. Diagnosis takes far too long and treatment options for people with ME/CFS have not improved much. So how can the status quo be changed? In this post, we discuss the need to restructure medical research. READ MORE…

Gift Registry for a Cure

December 3, 2014

When the sister of our board member Aaron Paas, Danielle, became ill with ME/CFS , like so many patients she went from vibrant and busy to severely ill and debilitated almost overnight. Aaron and his wife, Haley, wanted a powerful way to help people understand a little bit about what Danielle’s life is really like. LEARN MORE…

Giving Tuesday 2014 – Join the 10/$12 Challenge!

December 2, 2014

We gave thanks on Thanksgiving, got great shopping deals on Black Friday and Cyber Monday, and now it is Giving Tuesday, a global day for giving thanks and giving back. It’s not about saving money but changing lives and anyone can play a part. LEARN MORE…

Deciphering Post-Exertional Malaise

November 21, 2014

On September 18, 2014, Dane B. Cook, Ph.D., Associate Professor of Kinesiology at the University of Wisconsin, Madison and a Solve ME/CFS Initiative 2011 funded investigator, presented our most popular webinar of the year on the system biology approach his team is taking to provide a clear picture as to what causes post-exertional malaise. In this guest post for our blog, Dr. Cook reviews the material presented and tackles the many questions we received from webinar participants.