Pathways to Prevention for ME/CFS

April 8, 2014

There is a lot of activity on a federal level related to ME/CFS –including the Pathway to Prevention (P2P) initiative through the National Institutes of Health. In this post we break down the P2P program and where ME/CFS is in the approval process so far.

A Tale of Two IOM Committees

March 12, 2014

Today the Institute of Medicine (IOM) published the report titled, “Chronic Multisymptom Illness in Gulf War Veterans: Case Definitions Reexamined”. Given that the IOM has been engaged in a project regarding ME/CFS, we felt it would be useful to compare the two studies…

SolveCFS BioBank: Breaking Down Barriers to ME/CFS Research, part 2 of 4

January 28, 2014

The SolveCFS BioBank is an important resource to attract the brightest investigators from the best medical institutions into the field of ME/CFS, lowering the barriers to participation in the field of advancing ME/CFS research. Read more in part 2 of 4 in the series…

Carol Head Addresses the IOM Committee

January 28, 2014

On Monday, January 27th, 2014, Carol Head, Association President and CEO was in Washington D.C. along with several other organization leaders, fellow advocates and patients to take part in the first public meeting of the IOM Committee for Diagnostic Criteria for ME/CFS. Read her full comments and access the “Road to Diagnosis” report we shared.

IOM: Let’s Get It Right

January 10, 2014

The CFIDS Association, along with PANDORA Org and other advocates, has been invited to make a brief presentation to the IOM Committee on ME/CFS. They want to know what primary thing they should keep in mind as they look at the research. We want YOUR thoughts so we can best represent your concerns and make the most of the open session on January 27th. TAKE OUR SURVEY