Author Archive

SMCI Comment on the Institute of Medicine Report—Part 4 of 5

April 28, 2015

This is the fourth of a five-part blog series that addresses aspects of the Institute of Medicine’s recent report on myalgic encephalomyelitis/Chronic Fatigue Syndrome. In this post, author Dr. Suzanne D. Vernon, looks at the IOM’s third recommended diagnostic criteria: sleep.

SMCI Comment on the Institute of Medicine Report—Part 3 of 5

April 24, 2015

This is the third installment of a five-part blog series in which SMCI Scientific Director, Dr. Suzanne Vernon, analyzes the Feb. 10 IOM report section by section. In this post, Dr. Vernon considers the IOM’s second recommended diagnostic criteria: post-exertional malaise (PEM).

SMCI Comment on the Institute of Medicine Report—Part 2 of 5

April 21, 2015

This is the second of a five-part blog series in which Dr. Suzanne Vernon, SMCI Scientific Director, breaks down the landmark IOM report piece by piece. In this post, Dr. Vernon looks at the first recommended diagnostic criteria: defiant fatigue. Read More…

SMCI Comment on the Institute of Medicine Report – Part 1 of 5

April 1, 2015

In February, the IOM released its landmark report on ME/CFS [SEID]. In this first of a five-part blog series, Dr. Suzanne D Vernon, SMCI Scientific Director breaks down the report piece by piece, beginning with making the critical distinction between a research case definition and clinical diagnostic criteria. Read More…

Research Digest – January 2015: High Interest in ME/CFS Shown in Journal Rankings

January 23, 2015

Deciphering PEM is a critically important area of research for ME/CFS. Despite the lack of gravity and specificity a term like “post exertional malaise” signifies, research into what it is and how to measure it is some of the most important research – and most popular. The Journal of Translational Medicine ranked two articles dealing with ME/CFS among its most highly accessed for 2014. LEARN MORE…

Guest Blog: Armin Alaedini, PhD – The Search for Food Sensitivity Biomarkers in ME/CFS

January 17, 2015

Often those with ME/CFS experience gastrointestinal symptoms. Biomarkers of these symptoms could help to identify subtypes in ME/CFS. Dr. Armin Aledini is using samples from the SolveCFS BioBank™ to look for auto-antibodies against a range of dietary proteins. In this guest blog post he discusses Celiac disease, which is a commonly misdiagnosed condition with symptoms similar to ME/CFS. READ MORE…

Research Digest – December 2014: 10 Important Advances in ME/CFS

December 12, 2014

While progress is still far too slow, there have been many recent interesting and important discoveries in ME/CFS. In this year-end blog post, Dr. Vernon and Dr. Komaroff summarize what they regard as the most important recent advances in our field. READ MORE…

Being “Patient-Centric”

December 8, 2014

Patients are central to a solution for ME/CFS. We have designed our SolveCFS BioBank™ to collect and manage data so that the individual is the central organizing principle. LEARN MORE…

The Importance of a Representative Patient Population for Research

November 18, 2014

Being able to offer researchers access to ME/CFS patients with demographic and clinical characteristics that represent the full range of people affected with ME/CFS removes a significant hurdle all researchers face. With the SolveCFS BioBank™ we can make ME/CFS research more appealing and accessible. But how do we ensure our SolveCFS BioBank™ is representative of the entire patient population? READ MORE….

Research Digest – October 2014: The Search for Diagnostic Certainty

October 24, 2014

Currently ME/CFS is defined by symptoms that are common in many other medical and psychiatric diseases. A lack of specific biomarkers and clear diagnostic criteria often leads to misdiagnosis and muddied research results. In this month’s Research Digest we review three different studies that seek to identify more specific biomarkers for ME/CFS. READ MORE…