Author Archive

IOM: Let’s Get It Right

January 10, 2014

The CFIDS Association, along with PANDORA Org and other advocates, has been invited to make a brief presentation to the IOM Committee on ME/CFS. They want to know what primary thing they should keep in mind as they look at the research. We want YOUR thoughts so we can best represent your concerns and make the most of the open session on January 27th. TAKE OUR SURVEY

IOM and the Clinical Case Definition Committee – A Case for Hope

December 5, 2013

On Tuesday, December 3, the IOM announced the provisional Clinical Case Definition Committee slate. The Association has reviewed the full slate of committee members and is optimistic that this committee can be effective in fulfilling its important mandate.

Handling the Holidays: A Gift for Yourself

November 25, 2013

Celebrating the winter holidays is emotionally and physically draining for everyone, but those with ME/CFS and their caregivers can have an especially difficult time. We offer some suggestions to help all those affected by ME/CFS celebrate the holidays within the boundaries that the illness can create.

Clearing the Air

October 10, 2013

Clearing the Air – We must galvanize around ME/CFS in order to conquer it.

The CFIDS Association Statement on the H.H.S. IOM Contract

October 10, 2013

We feel that the Canadian Clinical Consensus can be optimized as a clinical case definition by applying a standardized methodology of execution, through validation of criteria, and a nationwide dissemination to health professionals.

A Call for Unity – CFS Advisory Committee, Public Testimony

June 25, 2013

I attended my first CFS Advisory Committee (CFSAC) meeting on May 22nd & 23rd in Washington DC. I was there as the newest staff representative of the Solve ME/CFS Initiative , sitting in as a member of the public vs. an official seat at the […]