Author Archive

SMCI Comment on the Institute of Medicine Report—Part 5

April 30, 2015

This is the fifth and final blog post that provides insights into the Institute of Medicine’s report on ME/CFS. In this post, SMCI Scientific Director Dr. Suzanne Vernon focuses on cognitive impairment and orthostatic intolerance, one or both of which are required for an ME/CFS/SEID diagnosis, according to the IOM’s recommended criteria.

SMCI Comment on the Institute of Medicine Report—Part 4 of 5

April 28, 2015

This is the fourth of a five-part blog series that addresses aspects of the Institute of Medicine’s recent report on myalgic encephalomyelitis/Chronic Fatigue Syndrome. In this post, author Dr. Suzanne D. Vernon, looks at the IOM’s third recommended diagnostic criteria: sleep.

SMCI Comment on the Institute of Medicine Report—Part 3 of 5

April 24, 2015

This is the third installment of a five-part blog series in which SMCI Scientific Director, Dr. Suzanne Vernon, analyzes the Feb. 10 IOM report section by section. In this post, Dr. Vernon considers the IOM’s second recommended diagnostic criteria: post-exertional malaise (PEM).

SMCI Comment on the Institute of Medicine Report—Part 2 of 5

April 21, 2015

This is the second of a five-part blog series in which Dr. Suzanne Vernon, SMCI Scientific Director, breaks down the landmark IOM report piece by piece. In this post, Dr. Vernon looks at the first recommended diagnostic criteria: defiant fatigue. Read More…

IOM: Let’s Get It Right

January 10, 2014

The CFIDS Association, along with PANDORA Org and other advocates, has been invited to make a brief presentation to the IOM Committee on ME/CFS. They want to know what primary thing they should keep in mind as they look at the research. We want YOUR thoughts so we can best represent your concerns and make the most of the open session on January 27th. TAKE OUR SURVEY

IOM and the Clinical Case Definition Committee – A Case for Hope

December 5, 2013

On Tuesday, December 3, the IOM announced the provisional Clinical Case Definition Committee slate. The Association has reviewed the full slate of committee members and is optimistic that this committee can be effective in fulfilling its important mandate.

Handling the Holidays: A Gift for Yourself

November 25, 2013

Celebrating the winter holidays is emotionally and physically draining for everyone, but those with ME/CFS and their caregivers can have an especially difficult time. We offer some suggestions to help all those affected by ME/CFS celebrate the holidays within the boundaries that the illness can create.

Clearing the Air

October 10, 2013

Clearing the Air – We must galvanize around ME/CFS in order to conquer it.

The CFIDS Association Statement on the H.H.S. IOM Contract

October 10, 2013

We feel that the Canadian Clinical Consensus can be optimized as a clinical case definition by applying a standardized methodology of execution, through validation of criteria, and a nationwide dissemination to health professionals.