Archive for January, 2017

Carol Head Participates in Meeting at UCLA Clinical and Transitional Science Institute

January 26, 2017

The goal of clinical and translational science institutes (CTSIs) is to combine disciplines, resources, expertise, and techniques to promote enhancements in prevention, diagnosis, and therapies. There are now CTSI’s at most leading research universities. The UCLA CTSI is a dynamic partnership of four institutions in the […]

What Will CFSAC Look Like in 2017?

January 20, 2017

January’s meeting was technically the concluding meeting of 2016, as a second meeting was not convened last year. Commander Gustavo Seinos, the designated federal officer assigned to coordinate CFSAC, announced there will be at least two additional CFSAC meetings in 2017. All CFSAC business is […]

Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting Summary

January 20, 2017

On January 12 and 13, the Federal Chronic Fatigue Syndrome Advisory Committee (CFSAC) met in Washington DC for one of its biannual meetings. CFSAC works to provide advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health […]

Meeting with an ME/CFS Champion in our Congress

January 20, 2017

Prior to last week’s federal CFSAC meeting, SMCI’s advocacy team visited with Congresswoman Zoe Lofgren of California who, together with colleague Congresswoman Anna Eshoo of California, sponsored the powerful congressional ME/CFS letter to National Institutes of Health (NIH) Director Collins in September 2016. Congresswoman Lofgren […]

Listen to Carol Head’s Rousing CFSAC Presentation

January 20, 2017

SMCI President Carol Head delivered a hard-hitting call to action during her presentation to CFSAC, providing specific recommendations to each agency for improvements in the handling of ME/CFS. Carol was the first at the meeting to call ME/CFS a “public health crisis” before adding that […]

Non-Invasive Diagnostic Test Project Seeks to Detect ME/CFS

January 13, 2017

This week, we highlight the Cathleen J. Gleeson PhD Fund and our collaborative partnership with the University of Washington on diagnostic testing in ME/CFS. This study of diagnostics and metabolic imaging uses advanced, non-invasive magnetic resonance spectroscopy (MRS) to measure muscle metabolites in ME/CFS patients […]

New Study Explores Role of Energy-Regulating Enzyme PDH in ME/CFS

January 13, 2017

A new study entitled “Metabolic profiling indicates impaired pyruvate dehydrogenase function in myalgic encephalopathy/chronic fatigue syndrome” by Fluge et al. was recently published in the leading Journal of Clinical Investigation. The study examined a total of 300 participants (approximately 200 ME/CFS patients, diagnosed according to […]

January 2017 Research 1st – Dr. Nahle Letter

January 13, 2017

Dear Friends, With every new year, we renew our commitment to remain the uncompromising force working on behalf of patients. Indeed, our dedication to finding solutions to this disease has never been stronger or better focused. And while we scrape a dollar from here and […]

Dr. Maureen Hanson Visits SMCI to Discuss Ongoing Collaboration

January 13, 2017

On Thursday, January 5, Dr. Maureen Hanson of Cornell University visited SMCI’s Los Angeles headquarters. Dr. Hanson’s visit provided the opportunity to meet with SMCI President Carol Head and Chief Scientific Officer and Vice President for Research Dr. Zaher Nahle to discuss ongoing projects and […]