Archive for November, 2016

Advocacy in Action: SMCI Joins the Research!America Alliance

November 18, 2016

The Solve ME/CFS Initiative is proud to announce our formal membership as part of Research!America, an alliance for discoveries in health. Research!America is the nation’s largest and most effective advocacy coalition dedicated to making medical research for health and scientific research funding a higher national […]

A Candid Discussion with NIH Director Francis Collins

November 18, 2016

Earlier this week at FasterCures’ Partnering for Cures conference in New York, Solve ME/CFS Initiative President Carol Head and VP of Research and Scientific Programs Dr. Zaher Nahle met with Director Francis Collins of the National Institutes of Health (NIH) for a private conversation regarding […]

Dr. Anthony Komaroff’s Responses to Follow-Up Webinar Questions

November 16, 2016

On November 10, the Solve ME/CFS Initiative hosted a webinar with Dr. Anthony L. Komaroff, Simcox-Clifford-Higby professor of medicine at Harvard Medical School and senior physician at Brigham and Women’s Hospital in Boston, Massachusetts. Dr. Komaroff has followed up with his responses to the numerous questions that were unable to […]

Disturbing Steps Backward toward Somatization of ME/CFS

November 11, 2016

The PACE trial will not go away. In 2011, results were published for a five-year study conducted to determine what therapies, if any, are effective in treating ME. The PACE trial concluded that graded exercise therapy (GET) and cognitive behavioral therapy (CBT) were effective treatments […]

November Research 1st – Dr. Nahle’s Letter

November 11, 2016

Dear Friends, I have the privilege of running a public webinar series at SMCI in which we bring together thought leaders, influencers, and practitioners from multiple disciplines to share ideas and update the community on the most important work in the ME/CFS field. These speaking […]

Recent Tryptase Study Yields Potential ME/CFS Insight

November 11, 2016

We recently highlighted a paper published online on October 17, 2016 (doi: 10.1038/ng.3696)   the journal Nature Genetics, one of the most rigorous publications in the field of genetics with tantalizing findings. The paper, titled “Elevated basal serum tryptase identifies a multisystem disorder associated with […]

Researchers and Patients Gather for Biannual ME/CFS Conference

November 11, 2016

The 12th International IACFS/ME joint patient and professional conference took place in late October with significant participation from academia, government agencies, private clinics, patients, advocates, and other stakeholders. This meeting, held every two years, is an opportunity to exchange ideas and updates on the most […]

Disparaged Speaker to Present at NIH Next Week

November 4, 2016

Yesterday, deeply troubling information was discovered on an archived National Institutes of Health (NIH) webpage. A lecture titled “Chronic Fatigue Syndrome in Historical Perspective” is scheduled for Wednesday, November 9, to be presented by the controversial and inflammatory history professor Edward Shorter, PhD. A professor […]

2016 IACFSME Award Winners

November 4, 2016

Governor Rudy Perpich Memorial Award Lucinda Bateman, MD Dr. Lucinda Bateman, an internist specializing in the treatment of ME/CFS and fibromyalgia, graduated from the Johns Hopkins School of Medicine. Dr. Bateman has served on the boards of the International Association of Chronic Fatigue Syndrome (IACFS/ME) […]