Archive for October, 2015

SMCI Team Meets with NIH

October 16, 2015

On Oct. 6, SMCI President Carol Head, Research Director Dr. Zaher Nahle and Board members Diane Bean and Christine Williams met with NIH officials regarding ME/CFS research and how to increase NIH funding so that it is more consistent with the number of Americans who […]

Daughter Launches Crowdrise Campaign to Honor Mother

October 15, 2015

Kaycee Mackley has launched a Crowdrise campaign to honor her mother, Chardale (Dotson) Irvine, whose hard-fought battle with ME/CFS ended earlier this year. “I watched this illness slowly take my mother’s life, which ended Feb. 22, 2015 after suffering for over 20 years,” says Kaycee. […]

Carol Head Invited to Join UCLA’s CTSI Patient Advocacy Board

October 15, 2015

Solve ME/CFS Initiative President Carol Head has been invited to join the Patient Advocacy Board of UCLA’s Clinical and Translational Science Institute. Board members are selected based on their role in clinical research as a health advocate and/or their status as a patient or family […]

SMCI Board Meets in D.C.; Adds New Member

October 15, 2015

The Solve ME/CFS Initiative (SMCI) Board of Directors convened in the Washington, D.C., area for its fall meeting Oct. 2-4. Board members and staff spent the weekend reviewing progress and sharing ideas on how to make the most impact for patients in the shortest amount of […]

SMCI Meets with Senate Appropriations Staff

October 15, 2015

On Oct. 5, SMCI President Carol Head and Board members Diane Bean and Christine Williams met with majority and minority staff members of the Subcommittee on Labor, HHS and Education of the Senate Appropriations Committee following their Board meeting in the Washington, D.C., area. Williams […]

Zaher Letter

October 14, 2015

October has been a busy month at the Solve ME/CFS Initiative with many events taking place in quick succession. The month began with our board meeting in the Washington, D.C., area and segued into meetings with the National Institutes of Health and Senate staff members, […]

Going the Extra Mile for ME/CFS

October 6, 2015

Strong support from family and friends is essential to people with a debilitating and poorly understood illness like ME/CFS. As patients work to integrate the challenges of ME/CFS into their daily lives, loved ones can often feel powerless to help them. Read More…